Communicating in a multicultural society II: Greek community attitudes towards cancer in Australia

Goldstein, David; Thewes, Belinda; Butow, Phyllis

doi:10.1046/j.1445-5994.2002.00230.x

Cited by 61 publications

(52 citation statements)

References 16 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Some patients held the traditional view that it was the families' responsibility to protect patients from unnecessary emotional burden by making decisions on their behalf, although, however the majority preferred to make their own decisions, often in consultation with family. This view was inconsistent with previous studies in Australia [11,14]. To ensure consultations are tailored to individual patient need, our study findings suggest it is necessary for doctors to ask patients about family involvement at the beginning of discussions.…”

Section: Discussioncontrasting

confidence: 99%

“…Families can also play a significant role in migrant patients' decision making, [11,19] acting as gatekeepers to protect patients from distress and having to make difficult decisions. In our study patients provided a range of expectations for family involvement.…”

Section: Discussionmentioning

confidence: 99%

“…Other studies suggest migrants' information preferences are dependent upon their level of acculturation [11,12]. However little is known about the preferences of migrants with cancer to participate in treatment decision-making discussions.…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

Treatment decision making experiences of migrant cancer patients and their families in Australia

Shaw¹,

Zou²,

Butow³

2015

Patient Education and Counseling

View full text Add to dashboard Cite

Objective: To explore treatment decision-making experiences of Australian migrants with cancer from Arabic, Chinese, or Greek backgrounds and their relatives.Methods: 73 patients and 18 caregivers from cancer support groups and oncology clinics participated in either a focus group (n=14) or semi-structured interview (n=21) conducted in the participant's own language. Participant treatment decision-making preferences were discussed as part of patients' overall treatment experience and a thematic analysis conducted.Results: Four main themes emerged from the data:(1) perceived role of the patient in decision-making;(2) access to information and the impact of language; (3)cultural influences (4)family involvement. The majority of participants experienced passive involvement during treatment consultations, but expressed a desire for greater involvement. Language rather than culture was a greater obstacle to active participation. Difficulty communicating effectively in English was the most significant barrier to participation in treatment decisions. To overcome language challenges, participants actively sought information from alternative sources. Conclusion and practice implications:This study provides new insights into the influence of language and culture on the treatment decision-making experiences of migrants with cancer and their families within the Australian cancer care system. To reduce health disparities doctors need to address language difficulties and be aware of cultural differences.

show abstract

Section: Discussioncontrasting

confidence: 99%

Section: Discussionmentioning

confidence: 99%

See 1 more Smart Citation

Treatment decision making experiences of migrant cancer patients and their families in Australia

Shaw¹,

Zou²,

Butow³

2015

Patient Education and Counseling

View full text Add to dashboard Cite

show abstract

“…If even two Western cultures differ, more divergent cultures may have greater differences. People from Eastern and some European cultures have been reported to prefer non-disclosure of prognostic information [40,41], although we found in a recent qualitative study of Chinese, Arabic and Greek immigrants in Australia with incurable cancer, that the majority of patients preferred open disclosure [42]. Direct comparisons of different cultures using identical interview schedules, as done here, would usefully add to the cross-cultural literature on these topics.…”

Section: Discussionmentioning

confidence: 87%

Patient perspectives regarding communication about prognosis and end-of-life issues: How can it be optimised?

Walczak

Butow

Davidson

et al. 2013

Patient Education and Counseling

View full text Add to dashboard Cite

Objective: to explore patients' perspectives across two cultures (Australia and USA) regarding communication about prognosis and end-of-life care issues and to consider the ways in which these discussions can be optimised.Methods: Fifteen Australian and 11 US patients completed individual semi-structured qualitative interviews. A further 8 US patients participated in a focus group. Interviews and focus group recordings were transcribed verbatim and interpreted using thematic text analysis with an inductive, data-driven approach.Results: Global themes identified included readiness for and outcomes of discussions of prognosis and end-of-life issues. Contributing to readiness were sub themes including patients' adjustment to and acceptance of their condition (together with seven factors promoting this), doctor and patient communication skills, mutual understandings and therapeutic relationship elements. Outcomes included sub themes of achievement of control and ability to move on. A model of the relationships between these factors, emergent cross cultural differences, and how factors may help to optimise these discussions are presented. Conclusion: Identified optimising factors illustrate Australian and US patients' perspectivesregarding how prognosis and end-of-life issues can be discussed with minimised negative impact.Practice Implications: Recognition of factors promoting adjustment, acceptance and readiness and use of the communication skills and therapeutic relationship elements identified may assist in optimising discussions and help patients plan care, achieve more control of their situation and enjoy an optimal quality-of-life.

show abstract

“…Immigrant groups diagnosed with cancer are worse off than comparable non-immigrant groups in terms of survival [5], psychological morbidity and quality of life [6]. These disparities may arise from a lack of familiarity with the healthcare system, lack of culturally appropriate information, communication difficulties for culturally and linguistically diverse (CALD) patients, and cultural attitudes and beliefs toward cancer [7][8][9]. Thus there is an imperative to develop and validate a questionnaire to assess unmet needs in immigrant cancer patients and survivors [2,10,11].…”

mentioning

confidence: 99%

Assessing the invariance of a culturally competent multi-lingual unmet needs survey for immigrant and Australian-born cancer patients: a Rasch analysis

et al. 2014

Self Cite

View full text Add to dashboard Cite

Purpose: To assess the invariance of a culturally competent multi-lingual unmet needs survey.Methods: A cross-sectional study was conducted among immigrants of Arabic, Chinese and Greekspeaking backgrounds, and Anglo-Australian-born controls, recruited through Cancer Registries (n = 591) and oncology clinics (n = 900). The survey included four subscales, with newly developed items addressing unmet need in culturally competent health information and patient support (CCHIPS), and items adapted from existing questionnaires addressing physical and daily living (PDL), sexuality (SEX) and survivorship (SURV) unmet need. The measure was translated into Arabic, Chinese and Greek. Rasch analysis was carried out on the four domains.Results: While many items were mistargeted to less prevalent areas of unmet need, causing substantial floor effects in person estimates, reliability indices were all acceptable. The CCHIPS domain showed differential item functioning (DIF) for cultural background and language and the PDL domain showed DIF for treatment phase and gender. The results for SEX and SURV domains were limited by floor effects and missing responses. All domains showed adequate fit to the model after DIF was resolved and a small number of items were deleted.Conclusions: The study highlights the intricacies in designing a culturally competent survey that can be applied to culturally and linguistically diverse groups across different treatment contexts. Overall, the results demonstrate that this survey is somewhat invariant with respect to these factors. Future refinements are suggested to enhance the survey's cultural competence and general validity.Identification of the unmet supportive care needs of cancer patients and survivors informs appropriate resource allocation and optimisation of service provision relative to actual needs [1][2][3][4].To date, such assessment has focused on non-immigrant cancer patients. Immigrant groups diagnosed with cancer are worse off than comparable non-immigrant groups in terms of survival [5], psychological morbidity and quality of life [6]. These disparities may arise from a lack of familiarity with the healthcare system, lack of culturally appropriate information, communication difficulties for culturally and linguistically diverse (CALD) patients, and cultural attitudes and beliefs toward cancer [7][8][9]. Thus there is an imperative to develop and validate a questionnaire to assess unmet needs in immigrant cancer patients and survivors [2,10,11].Existing unmet needs questionnaires address themes that may be common to immigrant and nonimmigrant cancer survivors, including needs related to the health system and information, physical and daily living, patient care and support, sexuality, and survivorship [1,4,7]. However, immigrants may have unique needs as a result of the issues outlined above [7]. Furthermore, the interpretation of items and scores must remain invariant across diverse languages and cultural groups to enable valid comparisons.Rasch analysis provides a robust me...

show abstract

Communicating in a multicultural society II: Greek community attitudes towards cancer in Australia

Cited by 61 publications

References 16 publications

Treatment decision making experiences of migrant cancer patients and their families in Australia

Treatment decision making experiences of migrant cancer patients and their families in Australia

Patient perspectives regarding communication about prognosis and end-of-life issues: How can it be optimised?

Assessing the invariance of a culturally competent multi-lingual unmet needs survey for immigrant and Australian-born cancer patients: a Rasch analysis

Contact Info

Product

Resources

About