Collaborative goal setting with and for children as part of therapeutic intervention

Costa, Úrsula; Brauchle, Gernot; Kennedy‐Behr, Ann

doi:10.1080/09638288.2016.1202334

Cited by 50 publications

(52 citation statements)

References 42 publications

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“…The priority list could be influenced by the children's ability to express their priorities. There is growing evidence that children above 5 years of developmental cognitive age have this ability, and this might partially explain the age group difference in this study. Another explanation of the age‐ and functioning‐dependent priority differences could be the fact that the ability to sit and stand freely facilitates daily routines, which are more often carried out by parents and caregivers in young and more severely affected patients.…”

Section: Discussionmentioning

confidence: 81%

ICF mobility and self‐care goals of children in inpatient rehabilitation

Rast

Labruyère

2020

Develop Med Child Neuro

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Aim To develop a detailed priority list of family‐centred rehabilitation goals on the activity level within the International Classification of Functioning, Disability and Health (ICF) chapters d4 ‘Mobility’ and d5 ‘Self‐care’ in a paediatric population with a broad range of health conditions. Method Twenty‐two months after implementing a systematic, family‐centred, goal‐setting process, the rehabilitation goals of 212 inpatients were retrospectively allocated to the most detailed level of ICF categories by two independent researchers. The overall frequencies of these goals were calculated and stratified by health condition, functional independence, and age. Results Ninety‐three females and 119 males were included in the study (mean age 10y 9mo, SD 4y 5mo, range 2y 1mo–21y 5mo). The five most frequent rehabilitation goals were ICF codes d4500 ‘Walking short distances’ (11%), d4200 ‘Transferring oneself while sitting’ (9%), d5400 ‘Putting on clothes’ (7%), d451 ‘Going up and down stairs’ (6%), and d4153 ‘Maintaining a sitting position’ (5%). These top goals varied in the subgroups with regard to the underlying health condition, functional independence, and age. Interpretation The findings of this study are not generalizable due to the large heterogeneity in priorities. However, they can be used to incorporate families' needs into future research designs and the development of new technologies. What this paper adds Walking short distances is the most frequent mobility/self‐care goal of paediatric rehabilitation. The top goals depend on health condition, functional independence, and age. Priorities vary considerably between children undergoing rehabilitation. Rehabilitation goals need to be assessed individually for each child.

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Section: Discussionmentioning

confidence: 81%

ICF mobility and self‐care goals of children in inpatient rehabilitation

Rast

Labruyère

2020

Develop Med Child Neuro

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“…Parents, teachers and children do not mention the same goals for occupational therapy intervention. Costa et al (2017) compared these goals and showed that whereas parents and teachers are mainly focused on the occupational performance area productivity, children mention goals in all three areas: productivity, personal maintenance and leisure. This finding fits within the large scope of activities performed by children with a mitochondrial disorder, which was already known (Lindenschot et al 2018) and expanded in the current study.…”

Section: Discussionmentioning

confidence: 99%

“…To achieve value-based care, we need to know how children value their activities. Previous literature that studied the perspective of children on their everyday life activities focused specifically on leisure or play and not on everyday activities, even though children want to participate in all parts of everyday life (Costa et al 2017). For example, Powrie et al (2015) conducted a systematic evidence synthesis of the meaning of leisure for children and young people with physical disabilities.…”

Section: Introductionmentioning

confidence: 99%

“…Unfortunately, they included more literature about children with physical disabilitiesthanchildrenwithmultipledisabilities.Theyalsoincludedstudiesfromboththe children's and parents' perspectives. While Costa et al (2017) mentioned that parents' main concerns are related to school task performance, children assign priority to their independence, competence and joy in meaningful everyday activities. Nonetheless, we are aware of one study that focused on participation concepts in children and adults with multiple disabilities (Eriksson and Granlund 2004) that may be comparable to our study population.…”

Section: Introductionmentioning

confidence: 99%

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The Perspectives and Values of Children with a Mitochondrial Disorder with Regard to Everyday Activities

et al. 2019

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Engagement for children with mitochondrial disorder is not self evident. To develop personalised and value-based care for this population, we require knowledge about their perspectives and values with regards to everyday activities. To gain insight into children's perspective on activities by (1) asking what activities they perform, (2) how they perform them, (3) how they experience these activities and (4) their wants and needs. Seven semistructured content analyzed interviews. The interviews identified a variety of activities. The overarching themes on wants/needs were 'I want to meet up with others whenever I want to','I want to be able to…', 'I don't want to…' and 'Dream'. These themes were interconnected to thirteen other themes that captured how children experience and perform activities, for example, 'Because I can decide by myself', 'Because I can do it on my own' and 'It is more fun to do things with other people'. The activities children performed represent regular childhood activities. The identified themes fit with the three aspects of the self-determination theory: autonomy, competence and relatedness. This study exposed the broad child perspective and should provide better understanding of children's choices in their participation in everyday activities.

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“…Findings related to the comparison of competence perceptions and to priorities in goal setting by the participating children, parents, and teachers are described elsewhere (Costa & Brauchle, 2013).…”

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confidence: 99%

Translation and Cross-Cultural Adaptation of the Perceived Efficacy and Goal Setting System (PEGS): Results from the First Austrian-German PEGS Version Exploring Meaningful Activities for Children

Costa¹

2014

OTJR: Occupation, Participation and Health

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Occupation-based participatory assessment and treatment planning requires appropriate tools to explore clients' perceptions and priorities for their day-to-day lives. Currently, no such instrument is available in German for use with children and their proxies. This study aimed to translate and adapt the Perceived Efficacy and Goal Setting System (PEGS) for use in German-speaking regions. Translation, adaptation, and field testing of the Austrian-German PEGS version followed guidelines for cross-cultural adaptation of self-report assessments. Forty-two children, ages 5 to 10, with various health conditions, their parents, and teachers participated in this study. The Austrian-German PEGS was successfully translated and culturally adapted. Children, their parents, and teachers reported the child's competences related to the addressed items and identified goals for intervention. Participants added specific culturally relevant activities. Data can now be used to further develop the PEGS for German-speaking regions and to continue research on culturally meaningful activities for children and families. [OTJR: Occupation, Participation and Health. 2014; 34(3):119–130.

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Collaborative goal setting with and for children as part of therapeutic intervention

Cited by 50 publications

References 42 publications

ICF mobility and self‐care goals of children in inpatient rehabilitation

ICF mobility and self‐care goals of children in inpatient rehabilitation

The Perspectives and Values of Children with a Mitochondrial Disorder with Regard to Everyday Activities

Translation and Cross-Cultural Adaptation of the Perceived Efficacy and Goal Setting System (PEGS): Results from the First Austrian-German PEGS Version Exploring Meaningful Activities for Children

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