Collaboration between Families and Early Intervention Service Providers

Filer, Janet; Mahoney, Gerald

doi:10.1097/00001163-199610000-00005

Cited by 31 publications

(14 citation statements)

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“…Finally, a much wider range of parent reports of service received have been developed. Many studies have reported significant differences between parent and staff ratings of the family-centered nature of early intervention services (Dempsey & Carruthers, 1997;Filer & Mahoney, 1996;McBride, Brotherson, Joanning, Whiddon, & Demmitt, 1993;R. A. McWilliam, Snyder, Harbin, Porter, & Munn, 2000).…”

Section: Service Delivery Processesmentioning

confidence: 99%

A Review of Processes and Outcomes in Family-Centered Services for Children With a Disability

Dempsey

Keen

2008

Topics in Early Childhood Special Education

230

183

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The importance of being family centered when providing services to children with a disability and their families has gained currency in the research and practice literature. A growing body of evidence has validated many of the theoretical links between the help-giving practices of staff and desirable outcomes for families with a child with a disability. However, it is clear from the research to date that the relationship between the provision of family-centered services and the achievement of positive outcomes for children and their parents is complex and is yet to be fully understood. The present article reviews the research in this area and discusses the links between help-giving practices and child and family outcomes for families who have a member with a disability. The article summarizes the extant research in an accessible format and identifies areas for future research.

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Section: Service Delivery Processesmentioning

confidence: 99%

A Review of Processes and Outcomes in Family-Centered Services for Children With a Disability

Dempsey

Keen

2008

Topics in Early Childhood Special Education

230

183

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“…Filla, Wolery, & Anthony, 1999;Strain, 1999;Warren, 1998). For example, studies have suggested that IFSPs still stress child outcomes to the exclusion of more broad-based family mediated outcomes and support strategies (Boone, McBride, Swann, Moore, & Drew, 1998;Bruder, Staff, & McMurrer-Kaminer, 1997;Farel, Shackelford, & Hurth, 1997;Summers et al, 1990); studies have also shown that service providers struggle with the delivery of services that include families (Filer & Mahoney, 1996;McBride & Peterson, 1997;McWilliam et al, 1995;McWilliam, Tocci, & Harbin, 1998). Additionally, both providers and researchers struggle with whether parent education and intervention on parent-infant interaction is encompassed within a family-centered framework (Mahoney et al, 1999;McCollum, 1999), whether early intervention should be child-centered or family-centered (Able- Boone, 1996, Beckman, Frank, & Newcomb, 1996, and whether the emphasis in early intervention should be relationship focused (Kelly & Barnard, 1999).…”

Section: Isaiahmentioning

confidence: 99%

Topics in Early Childhood Special Education

Voress

Holsker

2014

Encyclopedia of Special Education

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Family-centered early intervention remains an elusive goal for our field. The following stories illustrate some of the challenges associated with this goal. MICHAELOn April 29, 1999, my son Michael was born. He was unresponsive and very floppy. It was a horrible time because unlike when my daughter was born, all the nurses left us alone most of the time and kept shutting the door to my room. Because we insisted, a geneticist came to see him the next day. He ordered an MRI, ultrasound, and bloodwork and said he would get back to us the next week. Michael's pediatrician told my sister that she (the pediatrician) used to work with multihandicapped children, but hopefully Michael wouldn't turn out that way. We learned the next week that Michael had Prader-Willi syndrome.Michael's first problem was with eating. As with most children with this syndrome, Michael's low tone interfered with his sucking and swallowing. My pediatrician told me it was okay because these children have a problem with eating too much. She also said we did not need early intervention until he was older.We changed pediatricians (to one who was a father of a child with a disability) and started early intervention. After a brief phone conversation with someone from the county program, a packet of materials was sent to us (about an inch thick). My husband and I could not make sense of them, so we waited until a service coordinator came to see us. I then signed about ten forms including insurance forms, and she scheduled assessments for Michael to see if he could get early intervention.The early intervention evaluation was done by a feeding specialist and physical therapist because these were his primary needs. The two professionals came separately because they worked for separate agencies. They both expressed concern about Michael's lack of responsiveness and both told me that there was a Prader-Willi group home in the next town for when Michael was older. The reports they did on Michael were mailed to us about a week later. They were very detailed and very negative. While reading them, both my husband and I cried.Next came our IFSP meeting. My mother, sister, and another parent were there with the service coordinator and another early interventionist. The evaluations were read, and

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“…Filla, Wolery, & Anthony, 1999;Strain, 1999;Warren, 1998). For example, studies have suggested that IFSPs still stress child outcomes to the exclusion of more broad-based family mediated outcomes and support strategies (Boone, McBride, Swann, Moore, & Drew, 1998;Bruder, Staff, & McMurrer-Kaminer, 1997;Farel, Shackelford, & Hurth, 1997;Summers et al, 1990); studies have also shown that service providers struggle with the delivery of services that include families (Filer & Mahoney, 1996;McBride & Peterson, 1997;McWilliam et al, 1995;McWilliam, Tocci, & Harbin, 1998). Additionally, both providers and researchers struggle with whether parent education and intervention on parent-infant interaction is encompassed within a family-centered framework (Mahoney et al, 1999;McCollum, 1999), whether early intervention should be child-centered or familycentered (Able- Boone, 1996, Beckman, Frank, & Newcomb, 1996, and whether the emphasis in early intervention should be relationship focused (Kelly & Barnard, 1999).…”

Section: Isaiahmentioning

confidence: 99%

Family-Centered Early Intervention

Bruder

2000

Topics in Early Childhood Special Education

194

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The term family-centered early intervention refers to both a philosophy of care and a set of practices. Both have been used to guide research, training, and service delivery for well over a decade. Unfortunately, though, the universal adoption of family-centered values and practice in early intervention is problematic for a number of reasons. This article will discuss these reasons in the context of the current state of early intervention and provide recommendations for the new millennium.Family-centered early intervention remains an elusive goal for our field. The following stories illustrate some of the challenges associated with this goal. MICHAELOn April 29, 1999, my son Michael was born. He was unresponsive and very floppy. It was a horrible time because unlike when my daughter was born, all the nurses left us alone most of the time and kept shutting the door to my room. Because we insisted, a geneticist came to see him the next day. He ordered an MRI, ultrasound, and bloodwork and said he would get back to us the next week. Michael's pediatrician told my sister that she (the pediatrician) used to work with multihandicapped children, but hopefully Michael wouldn't turn out that way.We learned the next week that Michael had Prader-Willi syndrome.Michael's first problem was with eating. As with most children with this syndrome, Michael's low tone interfered with his sucking and swallowing. My pediatrician told me it was okay because these children have a problem with eating too much. She also said we did not need early intervention until he was older.We changed pediatricians (to one who was a father of a child with a disability) and started early intervention. After a brief phone conversation with someone from the county program, a packet of materials was sent to us (about an inch thick). My husband and I could not make sense of them, so we waited until a service coordinator came to see us. I then signed about ten forms including insurance forms, and she scheduled assessments for Michael to see if he could get early intervention.The early intervention evaluation was done by a feeding specialist and physical therapist because these were his primary needs. The two professionals came separately because they worked for separate agencies. They both expressed concern about Michael's lack of responsiveness and both told me that there was a Prader-Willi group home in the next town for when Michael was older.The reports they did on Michael were mailed to us about a week later. They were very detailed and very negative. While reading them, both my husband and I cried.Next came our IFSP meeting. My mother, sister, and another parent were there with the service coordinator and another early interventionist. The evaluations were read, and when the service coordinator asked me if I had any questions, I asked, &dquo;How come the reports were so negative, and they didn't say anything positive or hopeful about Michael?&dquo; She told me that the therapists were doing their job, documenting Michael's needs. The service coordina...

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Collaboration between Families and Early Intervention Service Providers

Cited by 31 publications

References 0 publications

A Review of Processes and Outcomes in Family-Centered Services for Children With a Disability

A Review of Processes and Outcomes in Family-Centered Services for Children With a Disability

Topics in Early Childhood Special Education

Family-Centered Early Intervention

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