Cognitive coping style (monitoring and blunting) and the need for information, information satisfaction and shared decision making among patients with haematological malignancies

Rood, J.A.J.; Zuuren, F.J. van; Stam, Frank; Ploeg, Tjeerd van der; Huijgens, Peter C.; Leeuw, Irma M. Verdonck‐de

doi:10.1002/pon.3699

Cited by 37 publications

(41 citation statements)

References 24 publications

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“…() and Rood, van Zuuren, Stam, van der Ploeg, Huijgens, et al. () appeared to use the same sample. While all qualitative papers included only haematological cancer patients, four of the 13 papers with quantitative data included participants with other cancers.…”

Section: Resultsmentioning

confidence: 99%

“…Quantitative sample sizes ranged from 31 to 3,080 and qualitative samples ranged from 11 to 54. Collectively the quantitative studies included 6,575 participants (counting the sample reported by Rood, van Zuuren, Stam, van der Ploeg, et al., ; Rood, van Zuuren, Stam, van der Ploeg, Huijgens, et al., only once) and the qualitative studies included 191 participants.…”

Section: Resultsmentioning

confidence: 99%

“…One structural equation analysis was guided by theory about mediating variables (Arora, Weaver, Clayman, Oakley‐Girvan, & Potosky, ). One survey paper stated 12 hypotheses linking information‐seeking style to several outcomes (Rood, van Zuuren, Stam, van der Ploeg, Huijgens, et al., ). In general, however, quantitative analyses were descriptive or post hoc , unguided by hypotheses.…”

Section: Resultsmentioning

confidence: 99%

“…Nevertheless, some studies did point to unmet information needs, including around treatments and recurrence (Keegan et al., ) and fertility and sexual function (Hammond et al., ). Reported correlates of greater information needs were inconsistent, including being younger, unmarried, male, non‐white, employed, more educated, a member of a patient association, having comorbidity and poorer quality of life, and having information‐seeking or information‐avoiding coping styles (Keegan et al., ; Lobb et al., ; Oerlemans et al., ; Rood, van Zuuren, Stam, van der Ploeg, et al., ; Rood, van Zuuren, Stam, van der Ploeg, Huijgens, et al., ). Husson et al.…”

Section: Resultsmentioning

confidence: 99%

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Understanding the information needs of people with haematological cancers. A meta-ethnography of quantitative and qualitative research

2017

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Clinical practice in haematological oncology often involves difficult diagnostic and treatment decisions. In this context, understanding patients' information needs and the functions that information serves for them is particularly important. We systematically reviewed qualitative and quantitative evidence on haematological oncology patients' information needs to inform how these needs can best be addressed in clinical practice. PsycINFO, Medline and CINAHL Plus electronic databases were searched for relevant empirical papers published from January 2003 to July 2016. Synthesis of the findings drew on meta-ethnography and meta-study. Most quantitative studies used a survey design and indicated that patients are largely content with the information they receive from physicians, however much or little they actually receive, although a minority of patients are not content with information. Qualitative studies suggest that a sense of being in a caring relationship with a physician allows patients to feel content with the information they have been given, whereas patients who lack such a relationship want more information. The qualitative evidence can help explain the lack of association between the amount of information received and contentment with it in the quantitative research. Trusting relationships are integral to helping patients feel that their information needs have been met.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

See 2 more Smart Citations

Understanding the information needs of people with haematological cancers. A meta-ethnography of quantitative and qualitative research

2017

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“…Self-efficacy as a psychological resource is associated with better outcomes in most demanding situations and this may partly explain the association we revealed. More specific medical information will give these individuals higher degrees of satisfaction and further reduce their level of anxiety symptoms [41, 49, 50]. …”

Section: Discussionmentioning

confidence: 99%

Anxiety and depression symptoms among women attending group-based patient education courses for hereditary breast and ovarian cancer

Listøl

Høberg-Vetti

Eide

et al. 2017

Hered Cancer Clin Pract

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BackgroundWomen carrying BRCA-mutations are facing significant challenges, including decision making regarding surveillance and risk-reducing surgery. They often report that they are left alone with these important decisions. In order to enhance the genetic counselling session we organized a group-based patient education (GPE) course for women with BRCA-mutations. The study aims were to characterize women attending a group-based patient education (GPE) course for hereditary breast and ovarian cancer, consider the usefulness of the course, evaluate symptoms of anxiety and depression among the participants, and finally investigate whether their levels of anxiety and depression changed from before to after the course session.MethodsA prospective study was conducted. Two weeks before (T1) and 2 weeks after (T2) attending the GPE-course the participants received questionnaires by mail. We collected information on demographic- and medical variables, anxiety and depression using Hospital Anxiety and Depression Scale (HADS), self-efficacy using The Bergen Genetic Counseling Self-Efficacy scale (BGCSES) and coping style using the Threatening Medical Situations Inventory (TMSI). A total of N = 100 (77% response rate) women participated at baseline and 75 (58% response rate) also completed post-course assessment.ResultsThe mean level of anxiety symptoms was elevated among participants but decreased significantly during follow-up. Lower anxiety symptom levels were associated with “longer time since disclosure of gene test result”, “higher levels of self-efficacy” and having experienced “loss of a close relative due to breast or ovarian cancer”. Lower depression symptom levels were associated with “higher levels of education” and “loss of a close relative due to breast or ovarian cancer”.ConclusionThe women in this study seemed to benefit from the GPE course. Women newly diagnosed with a BRCA mutation who reported lower levels of self-efficacy and lower levels of education were more vulnerable. These women need special attention.

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Interactions between affect, cognition, and information behavior in the context of fibromyalgia

Chen¹

2021

Asso for Info Science & Tech

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It is widely recognized that affect and cognition can have a profound influence on information behavior. However, how these factors affect information behavior in the context of chronic, stigmatized conditions is less clear. This study employed a qualitative approach to explore the interrelatedness of affect, cognition, and information behavior among persons with fibromyalgia. Persons with fibromyalgia were recruited using multiple recruitment strategies (e.g., listservs and social media) for an interview study. The interview guided participants to tell their story as they drew a timeline. Data were analyzed using qualitative data analysis methods based on the Grounded Theory Methodology. Participants' narratives illustrated that affect and cognition had diverse effects on participants' information and health behaviors: uncertainty and negative affect promoted information seeking; affect and information facilitated reconceptualization and self-growth; and online venues facilitated venting, gave rise to validating experiences, and provided opportunities to help others. This study's findings contribute to extant knowledge by connecting affect, cognition, and action in long-term health management. The study also provides recommendations for practice: a need to focus on practical management strategies in information provision, develop information resources to address the needs of diverse populations, and promote empathy and awareness concerning invisible conditions.

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Cognitive coping style (monitoring and blunting) and the need for information, information satisfaction and shared decision making among patients with haematological malignancies

Cited by 37 publications

References 24 publications

Understanding the information needs of people with haematological cancers. A meta-ethnography of quantitative and qualitative research

Understanding the information needs of people with haematological cancers. A meta-ethnography of quantitative and qualitative research

Anxiety and depression symptoms among women attending group-based patient education courses for hereditary breast and ovarian cancer

Interactions between affect, cognition, and information behavior in the context of fibromyalgia

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