Co-Production: An Ethical Model for Mental Health Research?

Effective engagement and involvement with community stakeholders in the co-production of global health research

“…The BMJ peer reviewed, edited, and made the decision to publish. Doreen Tembo, senior research manager patient and public involvement and external review 1 Gary Hickey, senior public involvement manager 1,2 Cristian Montenegro, assistant professor 3 David Chandler, chief executive 4 Erica Nelson, research fellow 5 Katie Porter, assistant research manager, patient and public involvement 1 Lisa Dikomitis, professor of anthropology and sociology of health 6 Mary Chambers, head of public engagement with science 7,8 Moses Chimbari, professor of public health 9 Noni Mumba, head of community engagement 10 Peter Beresford, emeritus professor of citizen participation 11 Peter O Ekiikina, public contributor low and middle income countries 12 Rosemary Musesengwa, senior researcher 13 Sophie Staniszewska, professor of health research (patient and public involvement and experiences of care) 14 Tina Coldham, public adviser and research fellow 15,16 Una Rennard, public contributor to health and social care research 17…”

“…6 Such an approach supports research that is ethical, specific, and appropriate to the local community. [7][8][9][10][11][12] Involvement of end users in the design of projects has also been shown to improve recruitment of participants and research methods, making implementation and the impact of the research results more likely. 9 13 Various challenges exist to the effective adoption of co-production in global health research.…”

Co-production practice and future research priorities in United Kingdom-funded applied health research: a scoping review

“…The papers also emphasized the skills required of researchers for co-production, which authors felt lay outside the typical academic or researcher skill set [ 29 ]—for example, collaborating with diverse stakeholders, negotiation skills [ 90 ], good persuasive communication [ 29 , 46 ], managing expectations [ 29 ], prolonged involvement with service users and other stakeholders, and flexibility in maintaining relationships [ 30 , 104 ] and showcasing outcomes [ 46 ]. One paper recognized the difficulty of doing co-production as a mandated activity and acknowledged that not everything has to be co-designed and not everyone will want to occupy this space [ 35 ].…”

Determining stakeholder priorities and core components for school-based identification of mental health difficulties: A Delphi study

“…As such, the study includes both experts by profession (i.e., mental health and education researchers, school mental health practitioners) and experts by experience (i.e., parents and school staff members). Although the opinions of experts by profession have long dominated in (mental) health research, there is increasing recognition that expertise gained through experience is equally valid and important, and that it contributes to higher quality research processes and outputs ( Brett et al, 2014 ; Greenhalgh et al, 2015 ; Lignou et al, 2019 ; Moreno et al, 2020 ; Staley et al, 2021 ; Thornicroft & Tansella, 2005 ; Wykes et al, 2015 ). Furthermore, there is a strong precedent of including experts by experience in Delphi studies in particular ( Fischer et al, 2013 ; Howarth et al, 2019 ; Jorm, 2015 ; Kelly et al, 2008 ; Kelly et al, 2010 ; Law & Morrison, 2014 ; Mitchell et al, 2021 ; Morgan & Jorm, 2009 ).…”