Chronic Pain and Its Impact on Quality of Life in Adolescents and Their Families

Hunfeld, J. A. M.; Perquin, Christel W.; Duivenvoorden, Hugo J.; Hazebroek-Kampschreur, Alice A.J.M.; Passchier, Jan; Suijlekom-Smit, Lisette W. A. van; Wouden, Johannes C. van der

doi:10.1093/jpepsy/26.3.145

Cited by 349 publications

(242 citation statements)

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“…HRQOL is a subjective, multidimensional construct that relates to the individual's relevant life domains 19 . Numerous investigations have indicated that the experience of chronic, recurrent pain substantially impacts the daily life of children and adolescents 8,24,26 , leading to decrements in physical 8, 11 , psychological 9, 10, 21 and social functioning 11, 24 . Relatively little is known however, about the factors influencing HRQOL in chronic pediatric pain. Whereas increased pain is associated with lower HRQOL 8, 14, 22, 24 , pain characteristics have accounted for relatively small amounts of variance 6,8 .…”

Section: Introductionmentioning

confidence: 99%

“…Numerous investigations have indicated that the experience of chronic, recurrent pain substantially impacts the daily life of children and adolescents 8,24,26 , leading to decrements in physical 8, 11 , psychological 9, 10, 21 and social functioning 11, 24 . Relatively little is known however, about the factors influencing HRQOL in chronic pediatric pain. Whereas increased pain is associated with lower HRQOL 8, 14, 22, 24 , pain characteristics have accounted for relatively small amounts of variance 6,8 . Studies among children with specific pain complaints have found that increased symptomatology predicted worse HRQOL in: irritable bowel syndrome (IBS) 36 , arthritis 1 , and recurrent headache 14,15 .…”

Section: Introductionmentioning

confidence: 99%

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Anxiety Sensitivity and Health-Related Quality of Life in Children With Chronic Pain

Tsao

Meldrum²,

Kim

et al. 2007

The Journal of Pain

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Anxiety sensitivity (AS), or the fear of anxiety sensations has been shown to independently predict poorer health-related quality of life (HRQOL) in adults with chronic pain. Specifically, AS was found to contribute to decrements in psychological well-being and social functioning but not to decrements in physical functioning. Existing studies have not examined the relationship between AS and HRQOL in children with chronic pain. The present study used multivariate regression analysis to test the association between AS and self-reported HRQOL in 87 children (62 girls; mean age = 14.4 years ± 2.3) presenting for treatment at a tertiary, multidisciplinary clinic specializing in pediatric chronic pain. After controlling for key sociodemographic and pain-related characteristics, higher AS was associated with poorer perceived general and mental health, greater impairment in family activities, lower self-esteem, increased behavior problems, and more social/academic limitations due to emotional problems. AS accounted for 4% -28% of incremental variance in these HRQOL domains above and beyond the demographic and pain-related variables. However, AS was not significantly associated with physical functioning or with academic/social limitations due to physical health. Additional research is required to delineate possible mechanisms by which AS may influence certain aspects of children's HRQOL but not others.Perspective-The present findings support the evaluation of AS in pediatric chronic pain patients as part of a comprehensive assessment battery. The links between AS and multiple HRQOL domains suggests that treatment components aimed at reducing AS may lead to enhanced psychosocial wellbeing in children with chronic pain.

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Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Anxiety Sensitivity and Health-Related Quality of Life in Children With Chronic Pain

Tsao

Meldrum²,

Kim

et al. 2007

The Journal of Pain

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“…Compared to families with typically developing children, a child with a disability poses specific challenges. A multitude of adverse effects of a disability on the family have been found, including higher levels of stress, lower well-being, more negative feelings on parenting, less marital satisfaction, a financial and a caretaker burden (Baker, Blacher, & Olsson, 2005;Blacher & McIntyre, 2006;Hatton & Emerson, 2003;Hunfeld et al, 2001;Maes, Broekman, Dosen, & Nauts, 2003;McIntyre, Blacher, & Baker, 2002;Wilkinson et al, 2001). …”

mentioning

confidence: 99%

Quality of Life in Adolescents with a Disability and Their Parents: The Mediating Role of Social Support and Resilience

et al. 2012

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The aim of this study was to test whether the effect of the pile-up of demands associated with a disability on quality of One of the core notions in the systemic approach is that families form an interactive and interdependent system where what happens to one family member will also affect all the other members of the system (Goldenberg & Goldenberg, 2003;Turnbull & Turnbull, 2001). The disability of a child is such an event that will affect the whole family. Compared to families with typically developing children, a child with a disability poses specific challenges. A multitude of adverse effects of a disability on the family have been found, including higher levels of stress, lower well-being, more negative feelings on parenting, less marital satisfaction, a financial and a caretaker burden (Baker, Blacher, & Olsson, 2005;Blacher & McIntyre, 2006;Hatton & Emerson, 2003;Hunfeld et al., 2001;Maes, Broekman, Dosen, & Nauts, 2003;McIntyre, Blacher, & Baker, 2002;Wilkinson et al., 2001).However, research in families with a child with a disability is inconclusive regarding the impact of the disability on the family. Other studies in families of children with a disability recognize the positive effects these children can have on their family members, including better parent-child interactions, more family cohesion and a stronger life purpose Quality of Life 4 (Flaherty & Glidden, 2000;Glidden, Bamberger, Turek, & Hill, 2010;Green, 2007; Hastings & Taunt, 2002;Kearney & Griffin, 2001;Taanila, Jarvelin, & Kokkonen, 1999). Thus some families seem to do well despite the extra stressor of the disability of their child, while others struggle and succumb.There is a large body of literature suggesting several individual and family characteristics that are positively related to the family's adaptation to a child with a disability. Social support, resilience, good family cohesion, effective coping skills and positive cognitive appraisals might all influence the potential negative impact of the disability on the family (Lavee, Hamilton, & Patterson, 1985;Saloviita, Itälinna, & Leinonen, 2003;Taanila et al., 1999;Tak & McCubbin, 2002).It has become apparent that individual and family outcomes due to the impact of a pile-up of demands associated with living with a disability are the result of multiple factors interacting with each other. Therefore a multivariate model incorporating both psychological and social variables that could intervene between the stressor and the outcome is needed. The double ABCX model of McCubbin and Patterson (1983) is one of the most influential theoretical frameworks in this field. The model provides a theoretical basis for examining the effect of a stressor and pile-up of demands (factor aA) on the family adaptation (factor XX) through the Quality of Life 5 mediation of the existing and expanding family recourses (factor bB), the meaning the family assigns to their situation (factor cC), and the coping strategies employed by the family (factor BC) (Jacques, 2006;McCubbin & Patterson, 1983), w...

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“…Therefore, cross-sector collaborations are important to reduce suicide [16]. Through an interdisciplinary approach incorporating behavioral health professionals into the regular assessment and management of pediatric pain patients, efforts to eliminate suicide will be maximized [17][18][19][20][21].…”

Section: Discussionmentioning

confidence: 99%

Chronic Pain in Pediatric Patients and the Association of Suicidal Ideations and Suicidal Attempts

Santana¹,

Luu²,

Krienke³

2017

J Child Adolesc Behav

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Objective: This retrospective study determined the rate of suicidal ideations and attempts and explored the correlations of chronic pain and suicidal ideations or attempts of adolescent patients who were between the ages of 10 and 17 years diagnosed with a chronic pain condition at an outpatient pediatric pain clinic. Contributing factors, such as age, gender, ethnicity, sleep issues, or any psychological stressors placing adolescents at higher risk of either suicidal ideations or attempts were examined. Methods:A chart review was performed of 205 pediatric patients (163 females) aged 10 to 17 years who attended the outpatient pediatric pain clinic between 2013 and 2015. Data were collected and underwent statistical analysis to determine the strength of the correlations between the contributing factors and suicidal ideations and attempts. Results:We compared the resulting data with data from the Centers for Disease Control regarding suicidal ideations and attempts in adolescents. The frequency of suicidal ideations in these patients was 59/205 (28.8%). History of being bullied, female gender, recent breakup, family conflict, prior psychological interventions, depression or anxiety, and history of substance abuse showed statistically significant associations with suicidal ideations. The frequency of suicidal attempts in these patients was 20/205 (9.8%). In patients aged 14 to 17 years, history of psychological intervention and anxiety or depression showed statistically significant associations with suicidal attempts.Conclusions: This analysis of factors that influence risk of suicidal ideations and attempts in the adolescent population with chronic pain will help physicians identify these risk factors in their patients and emphasize the importance of preventive measures.

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Chronic Pain and Its Impact on Quality of Life in Adolescents and Their Families

Cited by 349 publications

References 28 publications

Anxiety Sensitivity and Health-Related Quality of Life in Children With Chronic Pain

Anxiety Sensitivity and Health-Related Quality of Life in Children With Chronic Pain

Quality of Life in Adolescents with a Disability and Their Parents: The Mediating Role of Social Support and Resilience

Chronic Pain in Pediatric Patients and the Association of Suicidal Ideations and Suicidal Attempts

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