Children with Physical Handicaps and Their Mothers: The Interrelation of Social Support, Maternal Adjustment, and Child Adjustment

Barakat, Lamia P.; Linney, Jean Ann

doi:10.1093/jpepsy/17.6.725

Cited by 104 publications

(73 citation statements)

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“…Previous research has shown that social support, family functioning, and stress management may constrain resources with regard to caregiver health outcomes. 7,12,29,[35][36][37][38][39][40][41] The proposed direct link between social support and health was not replicated in this study. Clearly, the influence of social support provided by extended family, friends, and neighbors on health outcomes was secondary to that of the immediate family working closely together.…”

Section: Discussionmentioning

confidence: 71%

The Health and Well-Being of Caregivers of Children With Cerebral Palsy

et al. 2005

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ABSTRACT. Objective. Most children enjoy healthy childhoods with little need for specialized health care services. However, some children experience difficulties in early childhood and require access to and utilization of considerable health care resources over time. Although impaired motor function is the hallmark of the cerebral palsy (CP) syndromes, many children with this development disorder also experience sensory, communicative, and intellectual impairments and may have complex limitations in self-care functions. Although caregiving is a normal part of being the parent of a young child, this role takes on an entirely different significance when a child experiences functional limitations and possible longterm dependence. One of the main challenges for parents is to manage their child's chronic health problems effectively and juggle this role with the requirements of everyday living. Consequently, the task of caring for a child with complex disabilities at home might be somewhat daunting for caregivers. The provision of such care may prove detrimental to both the physical health and the psychological well-being of parents of children with chronic disabilities. It is not fully understood why some caregivers cope well and others do not. The approach of estimating the "independent" or "direct" effects of the care recipient's disability on the caregiver's health is of limited value because (1) single-factor changes are rare outside the context of constrained experimental situations; (2) assumptions of additive relationships and perfect measurements rarely hold; and (3) such approaches do not provide a complete perspective, because they fail to examine indirect pathways that occur between predictor variables and health outcomes. A more detailed analytical approach is needed to understand both direct and indirect effects simultaneously. The primary objective of the current study was to examine, within a single theorybased multidimensional model, the determinants of physical and psychological health of adult caregivers of children with CP.Methods. We developed a stress process model and applied structural equation modeling with data from a large cohort of caregivers of children with CP. This design allowed the examination of the direct and indirect relationships between a child's health, behavior and functional status, caregiver characteristics, social supports, and family functioning and the outcomes of caregivers' physical and psychological health. Families (n ‫؍‬ 468) of children with CP were recruited from 19 regional children's rehabilitation centers that provide outpatient disability management and supports in Ontario, Canada. The current study drew on a population available to the investigators from a previous study, the Ontario Motor Growth study, which explored patterns of gross motor development in children with CP. Data on demographic variables and caregivers' physical and psychological health were assessed using standardized, self-completed parent questionnaires as well as a face-to-face home interview...

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Section: Discussionmentioning

confidence: 71%

The Health and Well-Being of Caregivers of Children With Cerebral Palsy

et al. 2005

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“…Some document the presence of increased family distress [8,20,26,27], reduced marital satisfaction [24,28] and inadequate levels of social support [24,29,30], while others suggest that the functioning of these families is not more problematic [16,18,31], and that marital satisfaction and social support are no different from that of couples who have children without disabilities [16,18,20,[31][32][33][34].…”

Section: Introductionmentioning

confidence: 99%

The health and psychosocial functioning of caregivers of children with neurodevelopmental disorders

Lach

Kohen

Garner

et al. 2009

Disability and Rehabilitation

118

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“…Research conducted with families of children with brain injury provides evidence of an effect of child status on parents, and parental status upon the injured child, [17][18][19][20] to be expected given the relationship of parents and young children. There is less evidence for a reciprocal relationship between functioning of adults who have sustained a moderate to severe TBI and family functioning.…”

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confidence: 99%