Children’s experiences of visiting a seriously ill/injured relative on an adult intensive care unit

Knutsson, Susanne; Samuelsson, Ingrid Pramling; Hellström, Andreas; Bergbom, Ingegerd

doi:10.1111/j.1365-2648.2007.04472.x

Cited by 53 publications

(79 citation statements)

References 14 publications

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“…Information must be given with respect for the child's experiential as well as developmental level. Knowing what the child has gone through and what he/she wants to take part in and is able to do, is significant information for the nurse to gather (Knutsson et al, 2008). Fostering participary strategies encourages greater responsibility for learning and well-being (Borzekowski, 2009;Coyne, 2006).…”

Section: Discussionmentioning

confidence: 96%

“…Previous experience, emotional maturity, the context of the illness and family relationships, all affect the way that children perceive, experience and understand difficult situations (Doverberg and Pramling Samuelsson, 2000;Knutsson et al, 2008;Stewart, 2003;Hymovich, 1995;McCubbin and McCubbin, 1993). The degree to which children with cancer can understand and make sense of their experiences might determine how well they adjust to the physical and emotional demands of cancer and its treatment (Bearison, 1991).…”

Section: Introductionmentioning

confidence: 98%

“…The degree to which children with cancer can understand and make sense of their experiences might determine how well they adjust to the physical and emotional demands of cancer and its treatment (Bearison, 1991). Exploring and understanding what children experience and understand and knowing the adaption process of children with cancer, are fundamental aspects in caring for them (Knutsson et al, 2008;Yeh, 2001).…”

Section: Introductionmentioning

confidence: 99%

See 2 more Smart Citations

The process of striving for an ordinary, everyday life, in young children living with cancer, at six months and one year post diagnosis

Darcy¹,

Björk²,

Enskär³

et al. 2014

European Journal of Oncology Nursing

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Section: Discussionmentioning

confidence: 96%

Section: Introductionmentioning

confidence: 98%

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

The process of striving for an ordinary, everyday life, in young children living with cancer, at six months and one year post diagnosis

Darcy¹,

Björk²,

Enskär³

et al. 2014

European Journal of Oncology Nursing

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“…One reason could be that today there are many reality series about hospitals on the television and people are more used to high-tech caring environments and connect them with positive feelings. Knutsson et al (2008) described this earlier in an interview study with children visiting an adult ICU. Children have vivid imaginations and hearing stories told by adults they could produce pictures that are worse than the reality.…”

Section: Discussionmentioning

confidence: 99%

The experiences of patients and their families of visiting whilst in an intensive care unit – A hermeneutic interview study

Eriksson

Bergbom

Lindahl

2011

Intensive and Critical Care Nursing

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SummaryAim: The aim of this study was to interpret and understand the meanings of the lived experiences of visiting of patients in an ICU and their families. Method: The research design was hermeneutic, based on interviews. This study includes 12 interviews with seven patients and five relatives who had been in an ICU. The interview text was interpreted in a Gadamerian manner as different plays with actors and plots. Findings: Patients' narratives could be divided into two parts; recall of real life and unreal life experiences, the unreal being more common. Relatives' narratives are described as being on stage and being backstage, i.e. in the room with the patient and outside it. Conclusion: The final interpretation elucidated the experience of visiting as the sudden shift between being present in real life vs. being present in the real life of unreality. It was a process whereby the patient and the family build a new understanding of life that creates a new form of interplay within the family. The pre-critical illness life is no longer there -a new life has begun. To support patients and their families in this process of change a family-centred care perspective is necessary.

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“…Family members describe this limbo as an uncertain period, like existing in a parallel universe, shielded from reality, where time feels as if it is standing still . In this limbo, family members live in uncertainty, worrying about what will happen to their relative – whether they will live or die – and this constantly gnaws at them . To relieve the suffering from being in limbo, they want answers and information about their relative's condition but they usually just have to wait and this waiting is stressful, difficult and remorseless.…”

Section: Resultsmentioning

confidence: 99%

Family members’ experiences of waiting in intensive care: a concept analysis

Björk

Lindahl

Fridh

2019

Scandinavian Caring Sciences

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Aim The aim of this study was to explore the meaning of family members’ experience of waiting in an intensive care context using Rodgers’ evolutionary method of concept analysis. Method Systematic searches in CINAHL and PubMed retrieved 38 articles which illustrated the waiting experienced by family members in an intensive care context. Rodgers’ evolutionary method of concept analysis was applied to the data. Findings In total, five elements of the concept were identified in the analysis. These were as follows: living in limbo; feeling helpless and powerless; hoping; enduring; and fearing the worst. Family members’ vigilance regarding their relative proved to be a related concept, but vigilance does not share the same set of attributes. The consequences of waiting were often negative for the relatives and caused them suffering. The references show that the concept was manifested in different situations and in intensive care units (ICUs) with various types of specialties. Conclusions The application of concept analysis has brought a deeper understanding and meaning to the experience of waiting among family members in an intensive care context. This may provide professionals with an awareness of how to take care of family members in this situation. The waiting is inevitable, but improved communication between the ICU staff and family members is necessary to reduce stress and alleviate the suffering of family members. It is important to acknowledge that waiting cannot be eliminated but family‐centred care, including a friendly and welcoming hospital environment, can ease the burden of family members with a loved one in an ICU.

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Children’s experiences of visiting a seriously ill/injured relative on an adult intensive care unit

Abstract: Children's experiences of visiting an adult intensive care unit seem to support theories that emphasize the involvement and participation of children in family matters.

Cited by 53 publications

References 14 publications

The process of striving for an ordinary, everyday life, in young children living with cancer, at six months and one year post diagnosis

The process of striving for an ordinary, everyday life, in young children living with cancer, at six months and one year post diagnosis

The experiences of patients and their families of visiting whilst in an intensive care unit – A hermeneutic interview study

Family members’ experiences of waiting in intensive care: a concept analysis

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