Challenges on the usability of digital platforms for informal caregivers and health professionals: the case study of Help2Care

Caroço, João; Gomes, Nuno; Martinho, Ricardo; Rijo, Rui; Peralta, Teresa; Carvalho, Daniel; Querido, Ana; Dixe, Maria dos Anjos

doi:10.1016/j.procs.2019.12.241

Cited by 4 publications

(2 citation statements)

References 7 publications

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“…Evaluating IT applications for informal caregivers is important in identifying and addressing usability issues and ensuring that they are effective and useful for their intended purpose [14]. Caroço et al [15] and Gomes et al [16] report on the usability studies of Help2Care, an eHealth platform that provides digital training materials for informal caregivers. Both studies found that the platform had less usable aspects, such as navigation flow and design elements, which were identified through usability tests.…”

Section: Overviewmentioning

confidence: 99%

Designing and Evaluating IT Applications for Informal Caregivers: Protocol for a Scoping Review

Premanandan¹,

Ahmad²,

Cajander³

et al. 2023

JMIR Res Protoc

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Background A growing number of informal caregivers in many countries are important for effective functioning of health care in our society. Hence, they must receive the required support and services to continue providing care. IT applications can be used to support informal caregivers in their caregiving activities. However, evidence-informed guidelines for developing such IT applications and their evaluation are scarce. Hence, this scoping review can aid researchers and designers by providing design recommendations for IT apps for caregivers and potentially improve the design of IT applications for caregivers to meet their needs better. Objective This study aims to describe the proposal for a scoping review of current practices and recommendations in designing and evaluating IT applications for informal caregivers. The scoping review will also discuss the opportunities and challenges in designing these IT applications. Methods We will use a 5-step scoping review methodology to map relevant literature published as follows: (1) identify the research question, (2) identify relevant studies, (3) select relevant studies for review, (4) chart the data from selected literature, and (5) summarize and report results. A structured search will be conducted in PubMed, Scopus, IEEE digital library, Web of Science, and ACM Digital Library databases. In addition, hand searches of reference lists and keyword searches in Google Scholar will also be conducted. Inclusion criteria will be researched (journal and conference) articles focused on IT applications designed for use by informal caregivers and study type to be qualitative studies. Two reviewers will independently identify articles for review and extract data. Conflicts will be discussed, and a third reviewer will be consulted if a consensus cannot be reached. These data will be analyzed using thematic analysis. Results The results from this scoping review will be presented in a narrative form, and additional data on study characteristics will be presented in diagrams or tabular format. Uppsala University first initiated this scoping review protocol in December 2021 as part of the European Union–funded project ENTWINE. This work was also supported by the Swedish Research Council and the Swedish Cancer Society. The results will be presented in August 2023 and will be disseminated through a report to the European Union and a peer-reviewed journal publication. In addition, the team plans to share its findings on various public platforms, including social media, blog posts, and relevant conferences and workshops. Conclusions This is, to our knowledge, the first study to map the literature on the design and evaluation of IT applications for informal caregivers. The scoping review’s results will detail the requirements, design suggestions, and user preferences, as well as the usability criteria and features of IT applications for informal caregivers. A mapping of studies could inform the design and implementation of future IT applications for informal caregivers. International Registered Report Identifier (IRRID) DERR1-10.2196/47650

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Section: Overviewmentioning

confidence: 99%

Designing and Evaluating IT Applications for Informal Caregivers: Protocol for a Scoping Review

Premanandan¹,

Ahmad²,

Cajander³

et al. 2023

JMIR Res Protoc

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“…The results obtained for the usability tests of the mobile app revealed that caregivers had difficulties regarding some interactive elements in the user interface, and age/experience with smartphones and mobile apps was of great influence in the results. Concerning the web application, RNs reported some difficulty in the navigation flow of the application, causing a loss of context in the accomplishment of tasks (mainly in registering data from caregivers and patients, associating needs to patients and associating training materials to caregivers) (9) .…”

Section: Experience In the Help2care Ehealth Applicationmentioning

confidence: 99%

Help2care: ehealth strategies for self care of users and caregivers based on Nightingale’s work

Querido¹,

Laranjeira²,

Dixe³

2020

Rev. Bras. Enferm.

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Objective: To report the experience of design and implementation of the Help2Care (an ehealth program that aims to support informal caregivers of dependent people); and to identify its structure and functionality. Methods: This is a Portuguese experience report about Help2Care, a practice-based action research project carried out between 2017 and 2019, having as a guiding axis Florence Nightingale’s concepts about the relevance of the home-care environment. Results: The Help2Care program revealed itself to be a valuable support tool for providing better healthcare learning, counselling, and assistance of the informal caregivers of dependent people. Different ehealth strategies were used to empower caregivers in self-care in order to have a safe transition between contexts of care at the time of patient discharge. Conclusion: Help2Care allows to inspire other ways of providing care, as well as a reduction in the readmission rate in health organizations for patients who reveal poor care support in home environments.

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Solution to support informal caregivers of patients with dementia

Lobão

Guan

Curado

et al. 2021

Procedia Computer Science

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Challenges on the usability of digital platforms for informal caregivers and health professionals: the case study of Help2Care

Cited by 4 publications

References 7 publications

Designing and Evaluating IT Applications for Informal Caregivers: Protocol for a Scoping Review

Designing and Evaluating IT Applications for Informal Caregivers: Protocol for a Scoping Review

Help2care: ehealth strategies for self care of users and caregivers based on Nightingale’s work

Solution to support informal caregivers of patients with dementia

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