Cerebral palsy in Victoria, Australia: Mortality and causes of death

Reddihough, DS; Baikie, Gordon; Walstab, JE

doi:10.1046/j.1440-1754.2001.00644.x

Cited by 94 publications

(84 citation statements)

References 13 publications

(29 reference statements)

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“…Teresina, PI, 2012 Pulmonary disorders are an important cause of morbidity and mortality in children with CP, predominantly in tetraparetic spastic type or children with GMFCS level V. 22 In studies on the prevalence of respiratory disorders in children with CP, it was found that more than half (56.14 %) of the children studied had pneumonia at some point in their life and 40.35% had disease of the upper airways (rhinitis, sinusitis, sore adenoid, flu) or lower airways (bronchitis, asthma, bronchial dysplasia). 23 Corroborating the findings of this research.…”

Section: Conditions Of Child…mentioning

confidence: 99%

Conditions of child health stricken by cerebral palsy in Family Health Strategy

Xavier¹,

Brito²,

Moura³

et al. 2014

R. pesq. cuid. fundam. online

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Objective: To investigate the child's health condition with cerebral palsy accompanied in the Family Health Strategy. Method: Descriptive, exploratory and cross-sectional study, conducted with 13 children 1-12 years old. Through home visits investigating socioeconomic and health conditions, physical examination, vital signs, pneumofuncional evaluation and testing of the gross motor function classification system. Results: The majority of children a family income of up to 2 minimum wages, are benefited by the National Institute of Social Security, use the services of the National Health System also submitted respiratory function unchanged, growth putting structural suitable for age, prevalence of quadriparesia spastic, use of anticonvulsant medication, respiratory problems last year as influenza and pneumonia. Conclusion: It was observed that the higher the motor impairment developed more comorbidities. Children with cerebral palsy accompanied by the Family Health Program in Teresina, PI, are in proper health

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Section: Conditions Of Child…mentioning

confidence: 99%

Conditions of child health stricken by cerebral palsy in Family Health Strategy

Xavier¹,

Brito²,

Moura³

et al. 2014

R. pesq. cuid. fundam. online

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“…Their study found that 44.7 percent of the people who died had severe to profound intellectual disabilities, were more inclined to have severe and complex medical disorders and required a great deal of support with core areas such as eating, mobility and incontinence. A Victorian study 32 of children and adults with cerebral palsy, found an increased risk of death due to respiratory disease, particularly in children with severe spastic quadriplegia, epilepsy and intellectual disability. Chaney and Eyman 33 found similar results in a longitudinal study in the United States identifying those most at risk as young, with feeding difficulties, and severe to profound intellectual disability.…”

Section: Mortality Rates In People With Disabilitymentioning

confidence: 99%

People with an intellectual disability in the discourse of chronic and complex conditions: an invisible group?

Goddard¹,

Davidson²,

Daly³

et al. 2008

Aust. Health Review

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People with an intellectual disability and their families experience poorer health care compared with the general population. Living with an intellectual disability is often challenged by coexisting complex and chronic conditions, such as gastrointestinal and respiratory conditions. A literature review was undertaken to document the needs of this vulnerable population, and consultation was undertaken with mothers of children with disabilities and with professionals working within disability services for people with an intellectual disability and their families. Based on this review, there is a need to increase the profile of people with an intellectual disability in the discourse surrounding chronic and complex conditions. Strategies such as guideline and competency development may better prepare health professions to care for people with disabilities and chronic and complex care

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“…1,2 Although seizures and disturbances in motor control, cognition, communication, perception, and behavior are the most common features of the disorder, respiratory complications are of concern to a significant proportion of severely disabled patients with CP and represent a major cause of morbidity and mortality. [3][4][5][6][7] Patients with CP are often vulnerable to respiratory complications that can lead to exacerbation. Identifying reliable markers of exacerbation risk could aid physicians in making timely decisions about patient care and recommendations with regard to pulmonary rehabilitation programs.…”

Section: Introductionmentioning

confidence: 99%

“…10 They are also the immediate cause of death in ϳ40% of children with spastic quadriplegia, produce severe distress and poorer health status, and impose a substantial burden on caregivers. 6,7,[11][12][13] Several factors can potentially contribute to the development of respiratory exacerbation in patients with CP, including ineffective cough with airway mucus encumbrance, inability to handle oropharyngeal secretions, swallowing disorders, and gastroesophageal reflux, all conditions that can lead to an increased risk of pulmonary aspiration. In addition, inadequate nasopharyngeal motor tone causing upper-airway obstruction and obstructive sleep apnea syndrome, scoliosis deformities leading to obstruction of the lower-lobe bronchi, and poor nutritional status may further compromise respiratory function.…”

Section: Introductionmentioning

confidence: 99%

Clinical and Pulmonary Function Markers of Respiratory Exacerbation Risk in Subjects With Quadriplegic Cerebral Palsy

Vianello¹,

Carraro

Pipitone

et al. 2015

Respir Care

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BACKGROUND: Although respiratory exacerbations are common in patients with quadriplegic cerebral palsy (CP), little is known about the factors that are related to increased exacerbation risk. This study aimed to identify the clinical and pulmonary function variables signaling risk of exacerbation in this type of patient. METHODS: Thirty-one children and young adults with quadriplegic CP underwent a comprehensive history, physical examination, and pulmonary function test, including arterial blood gas analysis, airway resistance using the interrupter technique, and home overnight S pO 2 monitoring. Subjects were divided into 2 groups depending on the number of respiratory exacerbations reported during the year before study entry: frequent exacerbators (ie, > 2 exacerbations) and infrequent exacerbators (ie, < 2 exacerbations). RESULTS: The frequent exacerbators were more likely to require hospitalization due to respiratory disorders compared with the infrequent exacerbators (13/14 vs 9/17, P ‫؍‬ .02). Respiratory exacerbation was found to be associated with diagnosis of gastroesophageal reflux (adjusted odds ratio of 23.95 for subjects with confirmed diagnosis, P ‫؍‬ .02) and higher P aCO 2 levels (adjusted odds ratio of 12.60 for every 5-mm Hg increase in P aCO 2 , P ‫؍‬ .05). Subjects with P aCO 2 > 35 mm Hg showed an exacerbation odds ratio of 15.2 (95% CI 1.5-152.5, P ‫؍‬ .01). CONCLUSIONS: Gastroesophageal reflux and increased P aCO 2 can be considered simple, clinically useful markers of increased exacerbation risk in young subjects with quadriplegic CP.

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Cerebral palsy in Victoria, Australia: Mortality and causes of death

Cited by 94 publications

References 13 publications

Conditions of child health stricken by cerebral palsy in Family Health Strategy

Conditions of child health stricken by cerebral palsy in Family Health Strategy

People with an intellectual disability in the discourse of chronic and complex conditions: an invisible group?

Clinical and Pulmonary Function Markers of Respiratory Exacerbation Risk in Subjects With Quadriplegic Cerebral Palsy

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