Caring for the Disabled: Applying Different Theoretical Perspectives to Understand Racial and Ethnic Variations Among Families

Goldner, Melinda; Drentea, Patricia

doi:10.1080/01494920903050805

Cited by 12 publications

(3 citation statements)

References 80 publications

(113 reference statements)

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“…Caregivers of persons under the age of 25 years also had significantly shorter telomeres than caregivers of older persons (although this effect was attenuated when saliva samples were dropped). Providing care for a child who is ill or disabled may be considered "off-time" or nonnormative (80) and has been associated with feelings of uncertainty and depression (81,82), and may therefore be more deleterious to the caregiver. These changes may accumulate over time and may not manifest as health problems until later in life (71), plausibly due to accelerated telomere attrition.…”

Section: No Of Estimated Base Pairsmentioning

confidence: 99%

Association Between Informal Caregiving and Cellular Aging in the Survey of the Health of Wisconsin: The Role of Caregiving Characteristics, Stress, and Strain

Litzelman¹,

Witt²,

Gangnon³

et al. 2014

American Journal of Epidemiology

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The pathophysiological consequences of caregiving have not been fully elucidated. We evaluated how caregiving, stress, and caregiver strain were associated with shorter relative telomere length (RTL), a marker of cellular aging. Caregivers (n = 240) and some noncaregivers (n = 98) in the 2008-2010 Survey of the Health of Wisconsin, comprising a representative sample of Wisconsin adults aged 21-74 years, reported their sociodemographic, health, and psychological characteristics. RTL was assayed from blood or saliva samples. Median T and S values were used to determine the telomere-to-single copy gene ratio (T/S) for each sample, and log(T/S) was used as the dependent variable in analyses. Multivariable generalized additive models showed that RTL did not differ between caregivers and noncaregivers (difference in log(T/S) = -0.03; P > 0.05), but moderate-to-high levels of stress versus low stress were associated with longer RTL (difference = 0.15; P = 0.04). Among caregivers, more hours per week of care, caring for a young person, and greater strain were associated with shorter RTL (P < 0.05). Caregivers with discordant levels of stress and strain (i.e., low perceived stress/high strain) compared with low stress/low strain had the shortest RTL (difference = -0.24; P = 0.02, Pinteraction = 0.13), corresponding to approximately 10-15 additional years of aging. Caregivers with these characteristics may be at increased risk for accelerated aging. Future work is necessary to better elucidate these relationships and develop interventions to improve the long-term health and well-being of caregivers.

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Section: No Of Estimated Base Pairsmentioning

confidence: 99%

Association Between Informal Caregiving and Cellular Aging in the Survey of the Health of Wisconsin: The Role of Caregiving Characteristics, Stress, and Strain

Litzelman¹,

Witt²,

Gangnon³

et al. 2014

American Journal of Epidemiology

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“…Disability does not only affect the person who is disabled but also has an impact on the entire family because disabled persons require help in performing their daily activities and in managing medications [ 9 , 10 ]. Parents, especially mothers, take on the responsibility as primary caregivers helping disabled individuals in maintaining their community connections [ 11 ].…”

Section: Introductionmentioning

confidence: 99%

Determinants of caregiver burden of persons with disabilities in a rural district in Egypt

et al. 2020

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Background: Family caregivers are critical partners in the plan of care of people with disabilities. The study aims to demonstrate the factor structure and internal consistency of the Caregiver Burden Inventory (CBI) among the studied caregivers of disabled persons and to determine the effects of patients' and caregivers' characteristics on the burden and its dimensions. Methods: A cross-sectional study among 260 family caregivers of disabled patients was carried out in a randomly chosen rural area, Minia, Egypt, 2019. Exploratory factor analysis (EFA) was conducted to determine the factorial validity of the CBI. Multiple linear regression was used to identify the significant factors affecting the burden. Results: Factor analysis resulted in a five-factor solution using 20 items (four for each dimension) accounting for 72.7% of the total variance. The CBI and its dimensions showed high internal consistency (Cronbach's alpha value > 0.70). Education of caregiver, family income, mental impairments, and mixed disabilities were significant predictors of total CBI burden. Conclusions: CBI is an effective multidimensional measure of the caregiver burden of disabled subjects. Caregivers experienced a distinct level of burden that is determined by caregiver and care recipient characteristics. Therefore, support and individualized counseling services should be optimized.

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“…Cultural meaning of caregiving can have a direct influence on health, beliefs, and practices of the carer (Hoffmann & Mitchell, ; Long, ). Cultural and ethnic values influence family values and determine elements such as norms of a family member's responsibility, values placed on familism (valuing family over personal needs and interests) (Goldner & Drentea, ), perceptions of the caregiving burden, and the use of community resources (Jones, Winslow, Lee, Burns, & Zhang, ).…”

Section: Introductionmentioning

confidence: 99%

Variables That Can Enhance and Complicate Sibling Caregiving of Individuals With Intellectual and Developmental Disabilities

Saxena

2015

Policy Practice Intel Disabi

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The increasing longevity of adults with intellectual and developmental disabilities (I/DD) has raised new issues for families. Individuals with I/DD who face difficulties in achieving full independence might remain dependent on family members such as aging parents, who may be unable to provide continued support. Therefore, reliance on siblings for the future care can be an adaptive action for many families. Sibling caregiving is a universal phenomenon and requires rigorous examination and exploration. Like other carers, siblings require support and services to fulfill their role's expectations. Nonetheless, the degree and kind of support and services needed by them remains undetermined owing to the lack of research. The author reviewed variables that can enhance and complicate sibling caregiving of individuals with I/DD through the application of the Push-Pull model. The Push-Pull model can help in understanding that the role and interaction of multiple influences can have methodological and pedagogical implications for sibling caregiving research, support programs, social law, and policy change. The author notes that the review can provide a foundation for future studies, and she recommends inclusion of siblings in family policies.

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Caring for the Disabled: Applying Different Theoretical Perspectives to Understand Racial and Ethnic Variations Among Families

Cited by 12 publications

References 80 publications

Association Between Informal Caregiving and Cellular Aging in the Survey of the Health of Wisconsin: The Role of Caregiving Characteristics, Stress, and Strain

Association Between Informal Caregiving and Cellular Aging in the Survey of the Health of Wisconsin: The Role of Caregiving Characteristics, Stress, and Strain

Determinants of caregiver burden of persons with disabilities in a rural district in Egypt

Variables That Can Enhance and Complicate Sibling Caregiving of Individuals With Intellectual and Developmental Disabilities

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