Caregiving burden and gain among adult-child caregivers caring for parents with dementia in China: the partial mediating role of reciprocal filial piety

Yu, Hua; Wu, Li; Chen, Shu; Wu, Qiuyun; Yang, Yuan Han; Edwards, Helen

doi:10.1017/s1041610216000685

Cited by 53 publications

(38 citation statements)

References 15 publications

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“…It dictates the expectations and obligations of children. Children are obligated to respect, care, greet, obey, and assure their parents' physical and emotional well-being (Yu et al, 2016;Dong, Zhang, & Simon, 2014). Discussing taboo topics such as ACP is viewed as upsetting, uncaring, and disrespectful to others.…”

Section: Intergeneration Differences and Acp In Chinese Americansmentioning

confidence: 99%

Beliefs in advance care planning among Chinese Americans: Similarities and differences between the younger and older generations

Lee¹,

Byon²,

Hinderer³

et al. 2017

Asian/Pacific Island Nursing Journal

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The purpose of this research is to explore behavioral, normative, and control beliefs in the discussion of advance care planning (ACP) among older and younger Chinese Americans. Ethnic minority groups have been identified as less engaged in ACP and this represents an ethnic and cultural gap. Older Chinese American adults often have different beliefs and values compared to the younger generation who are more acculturated to American mainstream culture. These differences may hinder the discussion of ACP with Chinese older adults.A qualitative design was used. The Theory of Planned Behavior guided the development of the interview guide. We recruited 60 Chinese Americans. Prior experience was identified as a theme that influenced attitudes about ACP. We found that older and younger Chinese participants had different beliefs in the norm and control related to ACP discussions, but not in the belief of attitudes about ACP discussions. Both younger and older Chinese American participants believed that ACP was important and necessary. Participants in both clusters expressed that they were ready and willing to engage in ACP discussions with their family members but hesitant to initiate these discussions. The reluctance in discussing ACP with Chinese older adults may be related to the expectations and obligations of Xiao (filial piety) in Chinese culture. This study describes the similarities and differences of beliefs in ACP between older and younger Chinese Americans. We identified barriers and facilitators in behavioral, normative, and control beliefs that can be used to promote ACP for Chinese Americans.

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Section: Intergeneration Differences and Acp In Chinese Americansmentioning

confidence: 99%

Beliefs in advance care planning among Chinese Americans: Similarities and differences between the younger and older generations

Lee¹,

Byon²,

Hinderer³

et al. 2017

Asian/Pacific Island Nursing Journal

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show abstract

“…The number of people with dementia was over 9.5 million in 2015 and is expected to rise to over 16 million by 2030 (Jia et al, ; Wimo et al, ). Most people with dementia are cared for at home by unpaid family caregivers, of whom the majority (about 60%) are adult–child caregivers (Friedemann & Buckwalter, ; Yu et al, ). Existing research has revealed the high caregiving burden on adult–children of people with dementia (Svendsboe et al, ), which can lead to adverse health outcomes for these caregivers (e.g.…”

Section: Introductionmentioning

confidence: 99%

The relationship between comorbidities in dementia patients and burden on adult–child primary caregivers: Does having a secondary caregiver matter?

Liu

Fang

Chan

et al. 2019

Int J Mental Health Nurs

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Primary family caregivers of patients with dementia often experience high caregiver burden and significant decline in a range of health outcomes. The current study examined the relationship between medical comorbidities of inpatients with dementia and caregiver burden in adult–child primary caregivers, and the buffering effect of having a secondary caregiver on the relationship between patients’ comorbidities and caregiver burden. The study is a secondary analysis of data from a cross‐sectional observational study design. The sample comprised 477 dyads of inpatients with dementia and adult–child primary caregivers attending the neurological department of two grade A hospitals. All the inpatients were assessed with the Charlson Comorbidity Index (CCI) and the Mini‐Mental State Examination (MMSE). All the adult–child primary caregivers were assessed with the Zarit Burden Interview (ZBI) and completed the questionnaires on socio‐demographic data, caring hours, presence of secondary caregiver, and the level of impairment of the patient. Higher burden was associated with higher scores on the CCI and having a spouse of the patient as the secondary caregiver. A significant interaction occurred between the CCI and caregiver burden when having a spouse as the secondary caregiver, indicating the negative effect of the CCI on caregiver burden was greater when the spouse of the patient served as the secondary caregiver. In summary, the negative impact of patients’ comorbidities on caregiver burden in adult–child primary caregivers was heightened when the secondary caregiver role was undertaken by the spouse of the patient with dementia. These results may inform programmes targeted to improve care arrangements for people with dementia and their caregivers.

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“…As a result, temporal and cognitive proportions for care at home are expected to be higher than those for care of other diseases or those with dementia without BPSD symptoms. Furthermore, Yu et al reported that having more symptoms of BPSD increased caregiving hours and burden of family caregivers . Hence, it is inferred that the family caregiver role and increased care burden create stress that is being carried over to work.…”

Section: Discussionmentioning

confidence: 99%

“…Furthermore, Yu et al reported that having more symptoms of BPSD increased caregiving hours and burden of family caregivers. 22 Hence, it is inferred that the family caregiver role and increased care burden create stress that is being carried over to work. In addition, employed family members who care for PWD in some cases might not respond flexibly to sudden BPSD due to the inability to adjust their work schedule.…”

Section: Discussionmentioning

confidence: 99%

Associations among behavioral and psychological symptoms of dementia, care burden, and family‐to‐work conflict of employed family caregivers

Sakka

Goto

Kita

et al. 2018

Geriatrics Gerontology Int

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Aim The present study aimed to examine the associations among behavioral and psychological symptoms of dementia (BPSD) of persons with dementia (PWD), care burden and family‐to‐work conflict (FWC) of employed family caregivers. Method A cross‐sectional study was carried out with employed adult daughter or son (or in‐law) caregivers for PWD from two rural cities in Japan. FWC, care burden and the degree of BPSD were evaluated by the Survey Work‐Home Interaction‐NijmeGen, Zarit Burden Scale‐Short Version and Dementia Behavior Disturbance Scale, respectively. Of the 200 questionnaires distributed, 130 were returned. A total of 53 respondents were not employed, and seven questionnaires had missing data for demographic variables, Survey Work‐Home Interaction‐NijmeGen, Zarit Burden Scale‐Short Version or Dementia Behavior Disturbance Scale. Thus, complete data from 70 respondents were analyzed through structural equation modeling. Results The mean age of employed family caregivers was 56 years, and 34 (48.5%) were men. The mean age of PWD was 84 years, and there were 68 (68.6%) men. The path model with a good fit was shown (root mean square error of approximation 0.136, comparative fit index 0.960 and goodness of fit index 0.965). The path model showed that BPSD affected FWC, and that the association was partially mediated by care burden. Conclusions The results show that a decrease in not only care burden, but also BPSD, of PWD is important for employed family caregivers to reduce their FWC and maintain their work–life balance. Geriatr Gerontol Int 2019; 19: 51–55.

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Caregiving burden and gain among adult-child caregivers caring for parents with dementia in China: the partial mediating role of reciprocal filial piety

Abstract: The findings suggest that the effect of care recipient's BPSD on caregiver's burden/gain may be related to the level of RFP among adult-child caregivers in China.

Cited by 53 publications

References 15 publications

Beliefs in advance care planning among Chinese Americans: Similarities and differences between the younger and older generations

Beliefs in advance care planning among Chinese Americans: Similarities and differences between the younger and older generations

The relationship between comorbidities in dementia patients and burden on adult–child primary caregivers: Does having a secondary caregiver matter?

Associations among behavioral and psychological symptoms of dementia, care burden, and family‐to‐work conflict of employed family caregivers

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