Caregivers of Stroke Patient Family Members: Behavioral and Attitudinal Indicators of Overprotective Care

Thompson, Suzanne C.; Galbraith, Michael E.; Thomas, Craig W.; Swan, Joye; Vrungos, Shelley

doi:10.1080/08870440290029557

Cited by 41 publications

(21 citation statements)

References 27 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…These divergences of perspective are congruent with previous studies on care in general (Power, 2008;Thompson, Galbraith, Thomas, Swan & Vrungos, 2002) and aphasia in particular (Croteau & Le Dorze, 2006). The persistency of these discrepancies within care relationships needs explanation.…”

Section: Discussion and Emergent Questionssupporting

confidence: 78%

Divergences of perspective between people with aphasia and their family caregivers

2010

View full text Add to dashboard Cite

LSE has developed LSE Research Online so that users may access research output of the School. Copyright © and Moral Rights for the papers on this site are retained by the individual authors and/or other copyright owners. Users may download and/or print one copy of any article(s) in LSE Research Online to facilitate their private study or for non-commercial research. You may not engage in further distribution of the material or use it for any profit-making activities or any commercial gain. You may freely distribute the URL (http://eprints.lse.ac.uk) of the LSE Research Online website. This document is the author's submitted version of the journal article, before the peer review process. There may be differences between this version and the published version. You are advised to consult the publisher's version if you wish to cite from it. For more research by LSE authors go to LSE Divergences of Perspective Between People With Aphasia and their Family CaregiversBackground: Studies of the relation between family caregivers and care-receivers have identified large divergences between their perspectives. It has been suggested that these divergences may adversely affect the care relationship. However, there has been little research examining the source of these divergences. Aims:The reported mixed-method study aimed to examine the relationship between people with aphasia and their family caregivers in order to identify the sources of observed divergences of perspective. Methods & Procedures:Twenty people with aphasia and their main family caregivers, living in the UK, completed an adapted version of the Interpersonal Perception Method questionnaire, which yielded both rating data and qualitative data. Participants rated themselves, each other, and how they thought the other would rate them, on issues regarding communication ability and identity. Outcomes & Results:As expected on the basis of existing research, divergences clustered around the provision of communication support and issues of confidence, independence, embarrassment and overprotection. A qualitative analysis of the participants' talk during the rating task suggested that a source of these discrepancies is in the conflicting demands which characterise the care relationship, specifically, caregivers' desire to support independence on the one hand but feeling compelled to be protective on the other hand. In response to these demands, caregivers try to create the impression that the disability has less impact than it has and that they are more in control than they feel they are. Conclusions:We conclude by suggesting that some divergences of perspective may not be adverse overall, but rather, may be a result of caregivers' creative adaptations to seemingly irreconcilable demands.Keywords: Aphasia, UK, family care, role, identity, disagreement, misunderstanding 2 AcknowledgementsThe authors would like to acknowledge the support of a research grant from the Economic and Social Research Council, UK (RES-000-22-2473). 3 Divergences of Perspective Between People ...

show abstract

Section: Discussion and Emergent Questionssupporting

confidence: 78%

Divergences of perspective between people with aphasia and their family caregivers

2010

View full text Add to dashboard Cite

show abstract

“…Since links between family members in Russia are usually strong, it is a tradition that several generations live in the same house where the youngest and healthiest take care of old and disabled relatives (Tchernina and Tchernin, 2002). This may result in family members 'helping' to maintain the patient's sense of dysfunction, and one reason for this attitude may be unwillingness, bitterness against the patient and the caring role (Thompson et al, 2002).…”

Section: Introductionmentioning

confidence: 99%

Activities of daily living among St Petersburg women after mild stroke

Johansson

Mishina

Иванов

et al. 2007

Occupation Therapy Intl

View full text Add to dashboard Cite

show abstract

“…For example, they may differ about how medications should be administered. The care that the healthier partner provides may be experienced as overprotective (Thompson, Galbraith, Thomas, Swan, & Vrungos, 2002) or underprotective by the other. They may differ about what to do with their time together now that there is so little time and now that the sick person is losing capacities.…”

mentioning

confidence: 95%