Caregivers as Managers of Subjective Wellbeing: A Homeostatic Perspective

Cummins, Robert A.

doi:10.1111/j.1468-3148.2005.00267.x

Cited by 40 publications

(25 citation statements)

References 61 publications

(68 reference statements)

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“…The distribution found in emotional well-being is also characterized by negative skewness. These results are similar to those found in other studies on quality of life (Cummins, 1995(Cummins, , 2003Felce, 2006;Hensel et al, 2002), about which the homeostatic theory of subjective quality of life (Cummins, 2003(Cummins, , 2005Cummins & Nistico, 2002) can offer an explanation. 4.…”

Section: Discussionsupporting

confidence: 93%

Love and Emotional Well-being in People with Intellectual Disabilities

2009

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Love has been a recurrent topic throughout history, and especially, literature. Moreover, there is generalized agreement about its relevance for health emotional well-being, and quality of life. This study was carried out with a sample of 376 persons with ID. The goals of the work were to analyze a theoretical model of love in people with intellectual disabilities by means of the methodology of structural equations, and to analyze their perception of love and of amorous relations with regard to other aspects such as amorous satisfaction, perceived satisfaction, absence of family interference, self-determination, and emotional well-being. The results revealed that (a) the construct under study has three factors: Commitment, stability, and idealization, Passion and physiological excitement, and Intimacy and romanticism; (b) the perception of love in this collective is, in general, idealized and affected by the context; and (c) self-determination and the lack of family interference are relevant variables to explain both love and emotional well-being.El amor ha sido un tema de estudio recurrente a través de la historia y, especialmente, en la literatura. Además, existe un acuerdo generalizado sobre su relevancia para la salud, el bienestar emocional y la calidad de vida. Este estudio se llevó a cabo con una muestra de 376 personas con discapacidad intelectual. Los objetivos del trabajo fueron analizar un modelo teórico del amor en personas con discapacidad intelectual por medio de la metodología de ecuaciones estructurales, y analizar su percepción del amor y de las relaciones amorosas en relación con otros aspectos tales como la satisfacción amorosa, la satisfacción percibida, la ausencia de intromisión familiar, la autodeterminación y el bienestar emocional. Los resultados pusieron de manifiesto que (a) el constructo estudiado comprende tres factores: Compromiso, estabilidad e idealización, Pasión y excitación fisiológica e Intimidad y romanticismo; (b) la percepción del amor en este colectivo está, en general, idealizado e influenciado por el contexto, y (c) la autodeterminación y la falta de intromisión familiar son variables relevantes para explicar tanto el amor como el bienestar emocional. Palabras clave: amor, personas con discapacidad intelectual, bienestar emocional, modelos de ecuaciones estructurales

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Section: Discussionsupporting

confidence: 93%

Love and Emotional Well-being in People with Intellectual Disabilities

2009

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“…Instead, there has been a focus on service evaluations involving objective (e.g. [15]) or subjective [8,29] measures of residents' quality of life. The care relationship through which support is provided has been of importance only to the extent to which it impacts on the quality of life outcomes for residents.…”

Section: Th October 2005mentioning

confidence: 99%

Substitute Decision-Making for Adults with Intellectual Disabilities Living in Residential Care: Learning Through Experience

2007

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In the UK, current policies and services for people with mental disorders, including those with intellectual disabilities (ID), presume that these men and women can, do, and should, make decisions for themselves. The new Mental Capacity Act (England and Wales) 2005 (MCA) sets this presumption into statute, and codifies how decisions relating to health and welfare should be made for those adults judged unable to make one or more such decisions autonomously. The MCA uses a procedural checklist to guide this process of substitute decision-making. The personal experiences of providing direct support to seven men and women with ID living in residential care, however, showed that substitute decision-making took two forms, depending on the type of decision to be made. The first process, 'strategic substitute decision-making', paralleled the MCA's legal and ethical framework, whilst the second process, 'relational substitute decisionmaking', was markedly different from these statutory procedures. In this setting, 'relational substitute decision-making' underpinned everyday personal and social interventions connected with residents' daily living, and was situated within a framework of interpersonal and interdependent care relationships. The implications of these findings for residential services and the implementation of the MCA are discussed.

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“…Although interactions with a stressful environment that feels inaccessible may partially explain these difficulties, the relatively impoverished social relationships that people with disabilities experience also contribute to the problem. Furthermore, if an insecure attachment forms with the primary caregiver, then this relationship and subsequent insecure attachments may not serve as a social buffer against the persistent problems that often accompany the disability (Cummins, 2005;Janssen, Schuengel, & Stolk, 2002). Common problems include challenging behavior, low levels of activity and exploratory behavior, social isolation, mental health problems including depression, and strong physiological reactions in response to everyday stressors.…”

Section: Long-term Consequences Of Insecure Attachmentsmentioning

confidence: 97%

An Ecological Approach to Reducing the Social Isolation of People With an Intellectual Disability

Bell

Clegg

2012

Ecological Psychology

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An ecological approach to understanding insecure attachments and social isolation among people with an intellectual disability is constructed using Gibson's (1979Gibson's ( /1986 affordance-based theory. Although environmental affordances and individual limitations interact to limit the development of social competence, we believe that by focusing on the immediate environment, community-based approaches to helping people with an intellectual disability are often ignored, which increases the burden on individual caregivers. A more comprehensive strategy, which extends Gibson's theory of affordances, allows us to consider how higher level social systems influence the immediate environment and provides the context for understanding why successful change occurs when a multifaceted, holistic approach that works on several levels is adopted. Examining these systems within an ecological framework fundamentally redefines our thinking by shifting the focus from a person's disability to a more nuanced understanding of a person's abilities within the context of appropriate environmental supports in which the person's disability becomes less salient.

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Caregivers as Managers of Subjective Wellbeing: A Homeostatic Perspective

Cited by 40 publications

References 61 publications

Love and Emotional Well-being in People with Intellectual Disabilities

Love and Emotional Well-being in People with Intellectual Disabilities

Substitute Decision-Making for Adults with Intellectual Disabilities Living in Residential Care: Learning Through Experience

An Ecological Approach to Reducing the Social Isolation of People With an Intellectual Disability

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