Caregiver Marital Satisfaction when a Spouse has Multiple Sclerosis

Perrone, Kristin M.; Gordon, Phyllis A.; Tschopp, Molly K.

doi:10.1891/0047-2220.37.2.26

Cited by 23 publications

(21 citation statements)

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“…The spouse studies examined the following areas: immune response (32); experience of care giving (33)(34)(35)(36)(37); psychological outcomes and QOL, including marital satisfaction (38)(39)(40)(41)(42)(43). Both qualitative (n = 6) and quantitative (n = 6) approaches were utilized, and together, they provide insight regarding the spousal dimension of care-giving and suggest that spouse carers have particular needs.…”

Section: Spouse Studiesmentioning

confidence: 99%

The needs of carers of people with multiple sclerosis: a literature review

Corry

While

2009

Scandinavian Caring Sciences

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People with multiple sclerosis depend heavily upon their families and other informal carers as they receive limited support from health-care professionals or health-care services. Adopting the carer role results in a life-changing experience, which may bring rewards and challenges to the carer. This paper reviews the research addressing the experiences of carers of people with multiple sclerosis published between 2002 and 2007 building upon an earlier review. The literature suggests that carers have needs across various domains and that spouses/partners have particular needs. Much of the evidence has limited generalizibility although the geographical spread of the evidence indicates considerable consistency of need. The review describes ongoing carer needs which require supportive care and provides the basis for the development and testing of carer interventions for use by health-care professionals.

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Section: Spouse Studiesmentioning

confidence: 99%

The needs of carers of people with multiple sclerosis: a literature review

Corry

While

2009

Scandinavian Caring Sciences

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“…Onset of the disease in early adulthood, right at the time of formation and maintenance of intimate relationships, marriage, childbearing and job status exacerbates its effect on components of interpersonal relationships (Beshears, 2010;McCabe, 2002), so that, research findings show that MS is associated with a significant reduction in the probability of marriage for single people and a sixfold increase in the risk of divorce in married women (Buchanan et al, 2010;Glantz et al, 2009). It can cause sexual dysfunction (Sevène et al, 2009) and can also reduce marital satisfaction, communication and physical intimacy in the couples (Perrone, Gordon, & Tschopp, 2006).…”

Section: Introductionmentioning

confidence: 99%

‘I want to be with you, but I have MS’: Challenges of interpersonal relationships from the MS patients’ point of view

Sharifi

Doost

Shayegannejad

2020

Health Soc Care Community

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Interpersonal relationships play an important role in adjustment to disease, coping and improving life quality after onset of Multiple sclerosis (MS). However, considering its specific nature, MS has a considerable effect on interpersonal relationships. Thus, this study was conducted to identify and describe effects of disease on interpersonal relationships through investigating lived experiences of patients. In this research, a total of 24 MS patients were selected through purposive sampling from individuals referred to the MS Clinic of Kashani Hospital in Isfahan, Iran, during 2016–2017, and then in‐depth interviews were done with participants. After analysing interviews by Giorgi Descriptive Phenomenological Psychological Method, five main themes were obtained including ‘Who is guilty?’, ‘The need for informed care’, ‘living with a secret’, ‘Change in relationships’ and ‘The Reality slap’. Content of experience for some of these themes was more influenced by nature of the disease, whereas some other themes were influenced more by patient's cultural context.

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“…[18][19][20]23 Furthermore, a variety of studies have also shown that caregiver burden may have a negative effect on people with MS (reciprocal effect) and the relationship between people with MS and their caregivers. 19,[21][22][23] Therefore, screening caregivers for early recognition of burden and how this might affect their health and well-being can help tailor interventions to improve caregiver health outcomes and work productivity and potentially mitigate the reciprocal caregiver burden effect. As described previously herein, caring for people with MS has a negative effect on employment status and work productivity among caregivers, and this has also been reported in previous studies.…”

Section: Discussionmentioning

confidence: 99%

“…with MS (reciprocal effect) and the relationship between people with MS and their caregivers. 19,[21][22][23] Furthermore, caregiver burden has a negative effect on the work productivity of MS caregivers (ie, indirect work productivity loss). 24,25 Therefore, identifying potential factors that may contribute to reducing informal care requirements in MS, and targeting those that are modifiable, is important not only for people with MS and their caregivers but also from a societal perspective to reduce the societal costs associated with direct and indirect work productivity loss in MS.…”

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confidence: 99%

Association of Unemployment and Informal Care with Stigma in Multiple Sclerosis

Hategeka¹,

Traboulsee²,

McMullen³

et al. 2019

International Journal of MS Care

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Background: Multiple sclerosis (MS) typically affects young adults during their primary productive years. We assessed the magnitude of, and factors associated with, employment status and informal care in people with MS in Canada. Methods: Data were compiled from the nationally representative cross-sectional Survey on Living with Neurological Conditions in Canada (SLNCC), which included adolescents and adults (age ≥15 years). Employment status was categorized as currently working or not working. The frequency of informal care that people with MS received was categorized as none, less than daily, or daily. Logistic regression analyses were undertaken to identify factors associated with employment status and informal care requirements in people with MS. Results: Of 4409 SLNCC respondents, 631 had MS, of whom 530 were included in the analysis. Of 358 respondents aged 18 to 65 years, 47.8% were not working because of MS; 44.0% reported receiving informal care, with more than half requiring daily care. For caregivers' employment, 15.5% reduced work and 8.2% stopped working because of caregiving. Greater feelings of stigmatization were associated with not working (adjusted odds ratio, 7.42 [95% CI, 2.59–21.28]) and greater informal care (adjusted odds ratio, 3.83 [95% CI, 1.84–7.96]), adjusting for sex, age, education, health-related quality of life, time since MS diagnosis, and comorbidity. Conclusions: People who feel stigmatized because of their MS are more likely to be unemployed and to require more informal care. Further research is needed to understand the temporal nature of the association between stigma and employment, productivity loss, and informal care.

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Caregiver Marital Satisfaction when a Spouse has Multiple Sclerosis

Cited by 23 publications

References 0 publications

The needs of carers of people with multiple sclerosis: a literature review

The needs of carers of people with multiple sclerosis: a literature review

‘I want to be with you, but I have MS’: Challenges of interpersonal relationships from the MS patients’ point of view

Association of Unemployment and Informal Care with Stigma in Multiple Sclerosis

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