Caregiver burden in older Indian patients with cancer- Experience from a tertiary care center

Menon, Nandini; Patil, Vijay; Ramaswamy, Anant; Gattani, Shreya; Castelino, Renita Lorina; Dhekale, Ratan; Gota, Vikram; Sekar, Anbarasan; Deodhar, Jayita; Mahajan, Sarika; Daptardar, Anuradha; Prabhash, Kumar; Banavali, Shripad; Badwe, Rajendra; Noronha, Vanita

doi:10.1016/j.jgo.2022.05.008

Cited by 5 publications

(4 citation statements)

References 33 publications

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“…Caregivers of elderly cancer patients in this study showed a moderate level of caregiver burden, which is higher than that reported by Menon et al (2022) . Their study was conducted in India, and most of the participants were caregivers for elderly patients with lung carcinoma and gastrointestinal cancers.…”

Section: Discussioncontrasting

confidence: 77%

Effect of caregiver burden on anticipatory grief among caregivers of elderly cancer patients: Chain mediation role of family functioning and resilience

Tang

Yang

et al. 2023

Front. Psychol.

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This study aimed to explore the relationship between caregiver burden and anticipatory grief among caregivers of elderly cancer patients, and to examine the chain mediation effects of family functioning and resilience. A total of 624 valid questionnaires were collected. The Structural Equation Model was established to test the mediating effects of family functioning and resilience. Results showed that caregiver burden has a direct positive effect on anticipatory grief, both family functioning and resilience have negative effects on caregiver burden and anticipatory grief, and that resilience moderates the mediating effect of family functioning. Our findings suggest that reducing the caregiver burden among caregivers of elderly cancer patients, improving family functioning, and enhancing resilience have important effects in alleviating the anticipatory grief of caregivers. Our findings provide some references for further research. Medical staff should better understand the grief experience of caregivers and implement interventions to enable caregivers to better cope with anticipatory grief and psychological stress, so as to promote the quality of care for elderly cancer patients.

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Section: Discussioncontrasting

confidence: 77%

Effect of caregiver burden on anticipatory grief among caregivers of elderly cancer patients: Chain mediation role of family functioning and resilience

Tang

Yang

et al. 2023

Front. Psychol.

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“…Women report high caregiver “burden” and make up the largest proportion of caregivers (Kumar and Gupta, 2014; Mandowara et al, 2020; Madavanakadu et al, 2021). Additionally, caregivers who are socially isolated (Jagannathan et al, 2014; Mathias et al, 2019; Bapat and Shankar, 2021), under financial strain (Bapat and Shankar, 2021; Madavanakadu et al, 2021), or less educated (Jagannathan et al, 2014; Mandowara et al, 2020; Bapat and Shankar, 2021; Menon et al, 2022) are more vulnerable to adverse mental health. A further challenge is that access to quality affordable primary health care in India is limited, especially rurally (Patel et al, 2015).…”

Section: Introductionmentioning

confidence: 99%

Scaling a group intervention to promote caregiver mental health in Uttarakhand, India: A mixed-methods implementation study

Agarwal,

Bailie,

Rana

et al. 2023

Camb. prisms Glob. ment. health

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Caregivers are integral to health and social care systems in South Asian countries yet are themselves at higher risk of mental illness. Interventions to support caregiver mental health developed in high-income contexts may be contextually inappropriate in the Global South. In this mixed-methods study, we evaluated the implementation and scaling of a locally developed mental health group intervention for caregivers and others in Uttarakhand, India. We describe factors influencing implementation using the updated Consolidated Framework for Implementation Research, and selected implementation outcomes. Key influencing factors we found in common with other programs included: an intervention that was relevant and adaptable; family support and stigma operating in the outer setting; training and support for lay health worker providers, shared goals, and relationships with the community and the process of engaging with organisational leaders and service users within the inner setting. We identified further factors including the group delivery format, competing responsibilities for caregivers and opportunities associated with the partnership delivery model as influencing outcomes. Implementation successfully reached target communities however attrition of 20% of participants highlights the potential for improving outcomes by harnessing enablers and addressing barriers. Findings will inform others implementing group mental health and caregiver interventions in South Asia.

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“…Caregiver ‘burden’ and associated mental health impacts in India have been described in those caring for people diagnosed with stroke (Mandowara et al, 2020 ), cancer (Menon et al, 2022 ), cirrhosis (Hareendran et al, 2020 ), psychosocial disability (Brinda et al, 2014 ; Stanley et al, 2017 ; Singh et al, 2021 ) and dementia (Pattanayak et al, 2010 ; Srivastava et al, 2016 ). However, a large proportion of those with disability who receive care do not have a formal diagnosis (Chakrabarti, 2016 ).…”

Section: Introductionmentioning

confidence: 99%

“…However, a large proportion of those with disability who receive care do not have a formal diagnosis (Chakrabarti, 2016 ). Across different disabilities, commonly identified predictors of higher caregiver ‘burden’ or poorer mental health in these studies include female gender (Kumar and Gupta, 2014 ; Mandowara et al, 2020 ; Madavanakadu et al, 2022 ), social isolation (Jagannathan et al, 2014 ; Bapat and Shankar, 2021 ), economic disadvantage (Bapat and Shankar, 2021 ; Madavanakadu et al, 2022 ), fewer years of education (Jagannathan et al, 2014 ; Mandowara et al, 2020 ; Bapat and Shankar, 2021 ; Menon et al, 2022 ) and higher care-needs (Brinda et al, 2014 ; Mandowara et al, 2020 ). Finally, societal stigma operates towards caregivers of people with particular disabilities such as epilepsy (Bapat and Shankar, 2021 ) and psychosocial disability (Mathias et al, 2015a ; Singh et al, 2016 ; Mathias et al, 2019 ; Dijkxhoorn et al, 2022 ), as well as towards the people they provide care for.…”

Section: Introductionmentioning

confidence: 99%

Does the Nae Umeed group intervention improve mental health and social participation? A pre–post study in Uttarakhand, India

Bailie¹,

Pillai²,

Singh³

et al. 2023

Camb. prisms Glob. ment. health

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There are few evidence-based interventions to support caregiver mental health developed for low-and middle-income countries. Nae Umeed is a community-based group intervention developed with collaboratively with local community health workers in Uttarakhand, India primarily to promote mental wellbeing for caregivers and others. This pre-post study aimed to evaluate whether Nae Umeed improved mental health and social participation for people with mental distress, including caregivers. The intervention consisted of 14 structured group sessions facilitated by community health workers. Among 115 adult participants, 20% were caregivers and 80% were people with disability and other vulnerable community members; 62% had no formal education and 92% were female. Substantial and statistically significant improvements occurred in validated psychometric measures for mental health (12-Item General Health Questionnaire, Patient Health Questionnaire-9) and social participation (Participation Scale). Improvements occurred regardless of caregiver status. This intervention addressed mental health and social participation for marginalised groups that are typically without access to formal mental health care and findings suggest Nae Umeed improved mental health and social participation; however, a controlled community trial would be required to prove causation. Community-based group interventions are a promising approach to improving the mental health of vulnerable groups in South Asia.

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Caregiver burden in older Indian patients with cancer- Experience from a tertiary care center

Cited by 5 publications

References 33 publications

Effect of caregiver burden on anticipatory grief among caregivers of elderly cancer patients: Chain mediation role of family functioning and resilience

Effect of caregiver burden on anticipatory grief among caregivers of elderly cancer patients: Chain mediation role of family functioning and resilience

Scaling a group intervention to promote caregiver mental health in Uttarakhand, India: A mixed-methods implementation study

Does the Nae Umeed group intervention improve mental health and social participation? A pre–post study in Uttarakhand, India

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