Effect of caregiver burden on anticipatory grief among caregivers of elderly cancer patients: Chain mediation role of family functioning and resilience

Li, Caiyue; Tang, Nan; Yang, Lili; Zeng, Qing; Yu, Tana; Pu, Xiaojin; Wang, Juan; Zhang, Hongchen

doi:10.3389/fpsyg.2022.1020517

Cited by 2 publications

(1 citation statement)

References 72 publications

(83 reference statements)

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“…16 Studies on the burden of family caregivers and family resilience have mainly employed small sample sizes 15 and have focused primarily on specific disease types, including cancer, 16 children 17 and older adults. 18 Most research on the burden of family caregivers and family resilience has been conducted within the cultural context of Western countries, and exploring factors affecting family caregivers' burden from the perspectives of patients and caregivers needs to be sufficiently comprehensive. 19 In China, research on stroke survivors is in its nascent stages.…”

Section: Strengths and Limitations Of This Studymentioning

confidence: 99%

Assessing the mediating role of family resilience between caregiver burden and caregiver capacity: a cross-sectional study among Chinese stroke survivors and family caregivers in a real-world setting

Xu,

Ge,

Shi

et al. 2024

BMJ Open

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ObjectivesTo investigate the relationships among caregiver burden, family resilience, and caregiver capacity in the care of stroke survivors. We hypothesised that family resilience would mediate the relationship between caregiver burden and caregiver capacity.DesignA cross-sectional study design was used.SettingThe study was conducted in a tertiary care setting in Ningbo City, Zhejiang Province, China.ParticipantsThe study involved 413 stroke survivors and their primary caregivers.Outcome measuresThe primary caregivers completed the Shortened Chinese Version of the Family Resilience Assessment Scale, Zarit Caregiver Burden Interview and Family Caregiver Task Inventor and provided their sociodemographic information. Stroke survivors were assessed for activities of daily living, and their sociodemographic information was provided. Data were analysed, controlling for sociodemographic variables and focusing on the mediating effect of family resilience.ResultsCaregiver burden was influenced by the activities of daily living of stroke survivors, caregiver age and caregiver health status (p<0.05). Higher caregiver burden was associated with lower family resilience (p<0.01). Lower caregiver capacity corresponded to heavier caregiver burden (p<0.01). Family resilience mediated the relationship between caregiver burden and caregiver capacity (b=0.1568; 95% CI: 0.1063 to 0.2385).ConclusionsEnhancing family resilience can reduce caregiver burden and improve caregiver capacity in stroke care. These findings underscore the importance of developing interventions focused on nursing skills and family resilience.

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Section: Strengths and Limitations Of This Studymentioning

confidence: 99%

Assessing the mediating role of family resilience between caregiver burden and caregiver capacity: a cross-sectional study among Chinese stroke survivors and family caregivers in a real-world setting

Xu,

Ge,

Shi

et al. 2024

BMJ Open

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Life beyond Loss: A Retrospective Analysis of the Impact of Meaning of Life Therapy on the Grieving Process of Cancer Patients’ Family Caregivers

Freitas,

Remondes-Costa,

Veiga

et al. 2024

Healthcare

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Oncological disease in the palliative stage is a huge challenge for patients and their family caregivers (FCs) due to the fact that it confronts them with death, as well as physical, psychological, and existential suffering. Meaning of Life Therapy (MLT) is a brief structured psycho-existential intervention aiming to help patients in a meaning-making life review process, promoting end-of-life adaptation. The Life Letter (LL) resulting from MLT is an element that facilitates communication between the patient and their caregivers. The goal of this study was to understand the impact of MLT on the grieving processes of eight FCs and to study their perceptions of the role of the LL on grief through semi-structured interviews. The results of our qualitative analysis indicate that MLT was perceived by the FCs as a positive experience despite the conspiracy of silence being identified as a drawback. The LL was interpreted as a communicational element, promoting emotional closeness with the cancer patients and serving as a valuable tool in the FCs’ adaptation to loss. Our research findings show that the needs of FCs, especially after experiencing the loss of their relative, are dynamic and specific. This is why it is urgent to develop interventions that consider the idiosyncrasies of end-of-life cancer patients and their FCs in order to avoid frustrated farewells, lonely deaths, and maladaptive grieving processes. This is the direction in which MLT should evolve.

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Effect of caregiver burden on anticipatory grief among caregivers of elderly cancer patients: Chain mediation role of family functioning and resilience

Cited by 2 publications

References 72 publications

Assessing the mediating role of family resilience between caregiver burden and caregiver capacity: a cross-sectional study among Chinese stroke survivors and family caregivers in a real-world setting

Assessing the mediating role of family resilience between caregiver burden and caregiver capacity: a cross-sectional study among Chinese stroke survivors and family caregivers in a real-world setting

Life beyond Loss: A Retrospective Analysis of the Impact of Meaning of Life Therapy on the Grieving Process of Cancer Patients’ Family Caregivers

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