Caregiver Burden and Satisfaction in Families of Individuals With Schizophrenia

Hsiao, Chiu‐Yueh; Tsai, Yun‐Fang

doi:10.1097/nnr.0000000000000047

Cited by 46 publications

(55 citation statements)

References 23 publications

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“…Although numerous studies have yielded equivocal results regarding the association between family burden and age [14, 25, 26], gender [27–29], and kinship [21, 30] of patients and caregivers, a growing body of research congruously indicated that family burden decreases with increasing socioeconomic status [14, 31, 32]. …”

Section: Introductionmentioning

confidence: 99%

Reported family burden of schizophrenia patients in rural China

Liu

Tang

et al. 2017

PLoS ONE

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We aim to assess the level of family burden of schizophrenia patients and identify its predicting factors in a rural community sample of China. A sample of 327 primary caregivers was recruited through a one-stage cluster sampling in Ningxiang County of Hunan province, China. Family burden was assessed using the Family Burden Interview Schedule (FBIS) of Pai and Kapur. Our results showed that the mean score of FBIS was 23.62±9.76 (range, 0–48), with over half (52%) caregivers reported their family burden being moderate and severe. Among the six domains of family burden, financial burden (76%) was the commonest burden, while disruption of family interactions (37%) was the least mentioned. A multivariate analysis of family burden revealed that patient being admitted for over 3 times, caregiver being female, having a middle school education, and with additional dependents, as well as higher care network function were positive predictors of family burden, while higher patient function and family function, and increasing patient age were negative predictors of family burden.Intervention to decrease family burden may be best served by improving family function and exploring alternative care model instead of hospitalization.

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Section: Introductionmentioning

confidence: 99%

Reported family burden of schizophrenia patients in rural China

Liu

Tang

et al. 2017

PLoS ONE

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“…Third, given our study parameters focusing on subjective burden, we were not able to include other positive aspects of caregiving. However, we recognize that caring for a family member with schizophrenia can be rewarding, as reported in various studies (Bauer, Koepke, Sterzinger, & Spiessl, 2012; Heru, 2000; Hsiao & Tsai, 2014; Veltman, Cameron, & Stewart, 2002; Zauszniewski, Bekhet, & Suresky, 2010). Consequently, further research examining caregiving should consider incorporating a multidimensional perspective that allows for different components of the caregiving experience, including benefits and strengths.…”

Section: Discussionmentioning

confidence: 89%

Perceptions of Subjective Burden Among Latino Families Caring for a Loved One with Schizophrenia

Hernández

Barrio

2015

Community Ment Health J

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The purpose of this study was to explore perceptions of subjective burden among Latino family members providing care for a loved one with schizophrenia. Data were collected from outpatient community mental health centers and featured 64 Latino family members who were primarily Spanish speaking and of Mexican origin. We used qualitative methods to examine subjective burden based on an open section of the Family Burden Interview Schedule. Five salient themes emerged capturing family members’ subjective burden experience: (a) interpersonal family relationships, (b) emotional and physical health, (c) loss of role expectations, (d) religion and spirituality, and (e) stigma. Overall, findings illustrated that families perceived numerous challenges in their caregiving. Implications for research and practice among Latino family members are discussed.

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“…The CASI is a 30-item scale measuring satisfaction of caregivers in three domains: satisfaction with the persons they are caring for (10 items), satisfaction with being a caregiver (12 items), and satisfaction with the interpersonal dynamics between caregivers and the persons they are caring for (eight items). Hsiao and Tsai (2014) reported a coefficient alpha of .94, which is likely to be interpreted by readers as indicating that the summed item scores of caregivers' satisfaction are "reliable. "…”

Section: Fa Reliability Coefficientsmentioning

confidence: 97%

“…It would have been interesting if Hsiao and Tsai (2014) would have taken an FA approach in their study. They could have investigated whether the items meet the assumptions underlying coefficient alpha.…”

Section: Fa Reliability Coefficientsmentioning

confidence: 99%

“…In the articles we reviewed in Nursing Research, these latent variables included depression, negative emotionality, fatigue, quality of care, parenting style, sibling relationships, caregiver satisfaction, internal-external control, and organizational commitment. Let us consider in greater depth the Carers' Assessment of Satisfaction Index (CASI; Nolan, Grant, & Keady, 1996), which was used in a study investigating caregivers' burdens and satisfaction in families of individuals with schizophrenia (Hsiao & Tsai, 2014). The CASI is a 30-item scale measuring satisfaction of caregivers in three domains: satisfaction with the persons they are caring for (10 items), satisfaction with being a caregiver (12 items), and satisfaction with the interpersonal dynamics between caregivers and the persons they are caring for (eight items).…”

Section: Fa Reliability Coefficientsmentioning

confidence: 99%

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Further Discussion on Reliability

Yang

Green

2015

Nursing Research

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Sijtsma and van der Ark (2015) focused in their lead article on three frameworks for reliability estimation in nursing research: classical test theory (CTT), factor analysis (FA), and generalizability theory. We extend their presentation with particular attention to CTT and FA methods. We first consider the potential of yielding an overly negative or an overly positive assessment of reliability based on coefficient alpha. Next, we discuss other CTT methods for estimating reliability and how the choice of methods affects the interpretation of the reliability coefficient. Finally, we describe FA methods, which not only permit an understanding of a measure's underlying structure but also yield a variety of reliability coefficients with different interpretations. On a more general note, we discourage reporting reliability as a two-choice outcome--unsatisfactory or satisfactory; rather, we recommend that nursing researchers make a conceptual and empirical argument about when a measure might be more or less reliable, depending on its use.

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Caregiver Burden and Satisfaction in Families of Individuals With Schizophrenia

Cited by 46 publications

References 23 publications

Reported family burden of schizophrenia patients in rural China

Reported family burden of schizophrenia patients in rural China

Perceptions of Subjective Burden Among Latino Families Caring for a Loved One with Schizophrenia

Further Discussion on Reliability

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