Caregiver burden and prevalence of depression, anxiety and sleep disturbances in <scp>A</scp>lzheimer's disease caregivers in <scp>C</scp>hina

Liu, Shuai; Li, Chonghui; Shi, Zhihong; Wang, Xiaodan; Zhou, Yuying; Liu, Shilin; Liu, Jing; Yu, Tao; Ji, Yong

doi:10.1111/jocn.13601

Cited by 205 publications

(189 citation statements)

References 58 publications

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“…Sleep disturbances increased such that nearly one-third of the families were facing this symptom at the third year of follow-up. We note that Liu et al 30 reported that sleep disturbances were a common physical problem for AD caregivers.…”

Section: Discussionmentioning

confidence: 71%

The influence of the individual neuropsychiatric symptoms of people with Alzheimer disease on family caregiver distress—A longitudinal ALSOVA study

Hallikainen

Koivisto

Välimäki

2018

Int J Geriat Psychiatry

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Section: Discussionmentioning

confidence: 71%

The influence of the individual neuropsychiatric symptoms of people with Alzheimer disease on family caregiver distress—A longitudinal ALSOVA study

Hallikainen

Koivisto

Välimäki

2018

Int J Geriat Psychiatry

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“…Among the problems, psychological disorders suffered by caregivers include anxiety and depression. 18,19 The health they perceive is very low, and most report being dissatisfied or very dissatisfied with their health in general 20 affecting the quality of life 21 even in those caregivers who begin to take care of minor stages of the disease. 22 In addition, the psychological symptomatology is a crucial factor in the onset of discomfort and overload experienced by family caregivers of Alzheimer.…”

Section: Caregivers Of Patients With Alzheimer's Disease Suffer Greatermentioning

confidence: 99%

“…Among the problems, psychological disorders suffered by caregivers include anxiety and depression . The health they perceive is very low, and most report being dissatisfied or very dissatisfied with their health in general affecting the quality of life even in those caregivers who begin to take care of minor stages of the disease …”

Section: Introductionmentioning

confidence: 99%

Evaluation of the perceived health of caregivers of patients in mild-to-moderate stage Alzheimer's disease

Fernández¹,

Galán

2018

Perspect Psychiatr Care

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“…These mental illnesses include anxiety [6-8], depression [6,9-15], poor sleep quality [7,8], and substance abuse or dependence [16]. Caregiving also affects the work force, with caregivers displaying greater absenteeism [6,7], higher rates of poor physical health [17-19], and higher mortality [20,21].…”

Section: Introductionmentioning

confidence: 99%

Comparing Crowdsourcing and Friendsourcing: A Social Media-Based Feasibility Study to Support Alzheimer Disease Caregivers

Bateman¹,

Brady²,

Wilkerson³

et al. 2017

JMIR Res Protoc

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BackgroundIn the United States, over 15 million informal caregivers provide unpaid care to people with Alzheimer disease (AD). Compared with others in their age group, AD caregivers have higher rates of stress, and medical and psychiatric illnesses. Psychosocial interventions improve the health of caregivers. However, constraints of time, distance, and availability inhibit the use of these services. Newer online technologies, such as social media, online groups, friendsourcing, and crowdsourcing, present alternative methods of delivering support. However, limited work has been done in this area with caregivers.ObjectiveThe primary aims of this study were to determine (1) the feasibility of innovating peer support group work delivered through social media with friendsourcing, (2) whether the intervention provides an acceptable method for AD caregivers to obtain support, and (3) whether caregiver outcomes were affected by the intervention. A Facebook app provided support to AD caregivers through collecting friendsourced answers to caregiver questions from participants’ social networks. The study’s secondary aim was to descriptively compare friendsourced answers versus crowdsourced answers.MethodsWe recruited AD caregivers online to participate in a 6-week-long asynchronous, online, closed group on Facebook, where caregivers received support through moderator prompts, group member interactions, and friendsourced answers to caregiver questions. We surveyed and interviewed participants before and after the online group to assess their needs, views on technology, and experience with the intervention. Caregiver questions were pushed automatically to the participants’ Facebook News Feed, allowing participants’ Facebook friends to see and post answers to the caregiver questions (Friendsourced answers). Of these caregiver questions, 2 were pushed to crowdsource workers through the Amazon Mechanical Turk platform. We descriptively compared characteristics of these crowdsourced answers with the friendsourced answers.ResultsIn total, 6 AD caregivers completed the initial online survey and semistructured telephone interview. Of these, 4 AD caregivers agreed to participate in the online Facebook closed group activity portion of the study. Friendsourcing and crowdsourcing answers to caregiver questions had similar rates of acceptability as rated by content experts: 90% (27/30) and 100% (45/45), respectively. Rates of emotional support and informational support for both groups of answers appeared to trend with the type of support emphasized in the caregiver question (emotional vs informational support question). Friendsourced answers included more shared experiences (20/30, 67%) than did crowdsourced answers (4/45, 9%).ConclusionsWe found an asynchronous, online, closed group on Facebook to be generally acceptable as a means to deliver support to caregivers of people with AD. This pilot is too small to make judgments on effectiveness; however, results trended toward an improvement in caregivers’ self-efficacy, sense of support, a...

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Caregiver burden and prevalence of depression, anxiety and sleep disturbances in Alzheimer's disease caregivers in China

Cited by 205 publications

References 58 publications

The influence of the individual neuropsychiatric symptoms of people with Alzheimer disease on family caregiver distress—A longitudinal ALSOVA study

The influence of the individual neuropsychiatric symptoms of people with Alzheimer disease on family caregiver distress—A longitudinal ALSOVA study

Evaluation of the perceived health of caregivers of patients in mild-to-moderate stage Alzheimer's disease

Comparing Crowdsourcing and Friendsourcing: A Social Media-Based Feasibility Study to Support Alzheimer Disease Caregivers

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