Care Needs of Patients at the End of Life With a Noncancer Diagnosis Who Live at Home

Lee, Jiwon; Park, Younghye; Lim, Kyounjoo; Lee, Ari; Lee, Hanul; Lee, Jong-Eun

doi:10.1097/jnr.0000000000000277

Cited by 8 publications

(16 citation statements)

References 3 publications

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“…The involvement of the family caregivers is valuable and implies management of digestive problems, balance of fluid and food intake, nutritional status and care of bedsores. Needs such as: fall risks, self-care capacity, instrumental activities of daily living, dementia, fecal and urinary incontinence are difficult to solve [86]. Compared with cancer patients, the non-malignant patient's needs are more complex: moderate and severe neurological issues, psychiatric problems, needs for assistance with defecation and bladder function and moderate and severe deterioration of vigilance (somnolent and comatose) [87].…”

Section: Family Caregivers For Home Care Recipients With Advanced Non-cancer Diseasesmentioning

confidence: 99%

The Family as Recipient and Provider of Home Care: A Primary Care Perspective

Florea¹,

Puia²,

Pop³

2021

Suggestions for Addressing Clinical and Non-Clinical Issues in Palliative Care

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Advances in modern medicine, effective medication and high-technology interventions contribute to the growth of chronic comorbidities among older people, and many children with chronic diseases that reach adulthood require long-term care at home, provided by formal and informal caregivers and coordinated by primary healthcare professionals. Home caring, performed under different conditions from those of hospital care, requires the involvement of the family that is recipient and provider of home care. This chapter discusses the contribution of family caregivers to personalized home care of dependent children and elderly recipients, coordinated by primary health professionals. Children and youth with special healthcare needs and children abused and neglected require special involvement of family caregivers. The use of digital healthcare for recipients with medical complexity is a modern way to connect home care patients to specialized care, reducing the costs of the hospital care system. However, the burden in home care should be recognized by the general practitioner. Specific interventions are addressed to the unsupportive families and real hidden patients to help maintain their health and functionality. Future family doctors’ interprofessional communication skills and resourcefulness should meet the societal changes, and the burden of home care in the modern family is approached from the perspective of academic medicine.

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Section: Family Caregivers For Home Care Recipients With Advanced Non-cancer Diseasesmentioning

confidence: 99%

The Family as Recipient and Provider of Home Care: A Primary Care Perspective

Florea¹,

Puia²,

Pop³

2021

Suggestions for Addressing Clinical and Non-Clinical Issues in Palliative Care

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“…28,29 Loss of self, through losing personal relations, memories, or possessions were also present for care home residents. 37 Anxiety and depression were symptoms commonly rated as moderate or severe in one paper. 43 A specialist palliative care service found anxiety was evident in all populations, however those with multimorbidity reported anxiety less frequently.…”

Section: Qualitative Interviews 9 (9)mentioning

confidence: 99%

Addressing inequity in palliative care provision for older people living with multimorbidity. Perspectives of community-dwelling older people on their palliative care needs: A scoping review

et al. 2022

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Background: Older people living with multimorbidity are projected to become the main recipients of palliative care in the coming decades, yet there is limited evidence regarding their expressed palliative care needs to inform person-centred care. Aim: To understand the palliative care needs of community-dwelling people aged ⩾60 living with multimorbidity in the last 2 years of life. Design: A scoping review following Arksey and O’Malley. Data sources: Three international electronic databases (CINAHL, Ovid Medline, PsycINFO) were searched from March 2018 to December 2021. Reference lists were hand searched. Eligible papers were those reporting empirical data on older people’s needs. Results: From 985 potential papers, 28 studies were included, published between 2002 and 2020; sixteen quantitative, nine qualitative and three mixed methods. Data were extracted and presented under the holistic palliative care domains of need: physical, psychological, social, spiritual, and additionally practical needs. Different measurement tools ( n = 29) were used, of which 20 were multidimensional. Primacy in reporting was given to physical needs, most commonly pain and function. Social and practical needs were often prioritised by older people themselves, including maintaining social connections and accessing and receiving individualised care. Conclusion: Identifying the palliative care needs that matter most to older people with multimorbidity requires the recognition of their concerns, as well as their symptoms, across a continuum of living and dying. Available evidence is superficial. Supporting end of life provision for this growing and underserved population necessitates a shift to tailored multidimensional tools and community focussed integrated care services.

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“…It has been reported that when patients and their caregivers have multiple chronic conditions (Webbkamigad et al, 2020) and complex needs (Spckalingam et al, 2020), they require care for longer periods of time (Palmer et al, 2018;Zhao et al, 2019) and that those need to be provided by multi-dimensional support services (DeGraaf et al, 2020;Lee et al, 2019;Peters et al, 2018). Such patients would benefit from early needs assessments and easy access to low-threshold services (Spitzer et al, 2015).…”

Section: Integrating Competencies Between and Within Professionsmentioning

confidence: 99%

“…These include factors relating to the individual, their family and the society and environment they live in (Stanhope et al, 2015). This has led to complicated health and well-being needs, which professionals from just one sector have not been able to address (DeGraaf et al, 2020;Lee et al, 2019;Spitzer & Davidson, 2013). The result has been that patients and clients have received services that have been delivered by highly educated, but separate, professionals with different competencies, working in a complex, fragmented system.…”

Section: Introductionmentioning

confidence: 99%

The value that social workers’ competencies add to health care: An integrative review

Kangasniemi

Karki

Voutilainen

et al. 2021

Health Social Care Comm

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Health and social care professionals' competencies have traditionally been separated because of the different aims of the two professions. These competencies need to be integrated, to make sure that seamless services are provided that meet the often complex needs of patients and clients in a coordinated and timely way. The aim of this integrative review was to identify, describe and synthetise previous studies on integrated competencies in health and social care. Electronic literature searches were carried out on the CINAHL, ProQuest, PsycInfo, PubMed, Scopus and SocIndex databases for peer-reviewed scientific papers that were published in English between 1 January 2007 and 31 December 2019. This identified 3,231 papers, after duplicates were removed, and 18 focused on the integration of social workers' competencies with health care. Other types of integration were not found. The value added by integrating social workers' competencies with health care focused on engaging working orientation, improving communication with family members, increasing understanding of service resources and mastering successful discharge procedures so that they met comprehensive, complex health and well-being needs. Social workers added value when they worked with multi-professional teams, but there were challenges to integrating competencies and these were related to professional collaboration and fragmented leadership. In future, more attention needs to be paid to diversifying and optimising the integration of professional health and social care competencies that meet clients' and patients' care and service needs. It is also vital to focus on developing the professional and leadership strategies that are needed to combine those competencies.

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Care Needs of Patients at the End of Life With a Noncancer Diagnosis Who Live at Home

Cited by 8 publications

References 3 publications

The Family as Recipient and Provider of Home Care: A Primary Care Perspective

The Family as Recipient and Provider of Home Care: A Primary Care Perspective

Addressing inequity in palliative care provision for older people living with multimorbidity. Perspectives of community-dwelling older people on their palliative care needs: A scoping review

The value that social workers’ competencies add to health care: An integrative review

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