Care Coordination for Children With Complex Special Health Care Needs: The Value of the Advanced Practice Nurse's Enhanced Scope of Knowledge and Practice

Abstract

Efficiency and effectiveness of care coordination depends on a match between the needs of the population and the skills, scope of practice, and intensity of services provided by the care coordinator. There is limited existing literature that addresses the relevance of the APN role as a fit for coordination of care for children with SHCN. The objective of this paper is to describe the value of the advanced practice nurse’s (APN’s) enhanced scope of knowledge and practice for relationship-based care coordination in healthcare homes that serve children with complex special health care needs (SHCN). The TeleFamilies project is provided as an example of the integration of an APN care coordinator in a healthcare home for children with SHCN.

Criança dependente de tecnologia e a demanda de cuidado medicamentoso

“…This results in a significantly higher economic impact in terms of days absent from work. Medical expenses are also much higher -two or three times the expenses of a child without special needs (19) . A study to describe and analyze the experience of socially vulnerable families of children with cerebral palsy identified "Living with Financial Difficulties" to be a recurring theme, showing that limited financial resources result in feelings of anxiety by making it harder to continue or maintain treatment (20) .…”

A Vivência Da Familia No Cuidado Domiciliar À Criança Com Necessidades Especiais De Saúde

“…Um estudo realizado por Looman et al demonstra que as condições de saúde das CRIANES aumentam as despesas médicas aproximadamente duas a três vezes mais do que quando comparadas de crianças sem limitações funcionais. Com isso, as demandas são significativamente maiores sobre o tempo e as finanças de suas famílias (22). Estudos mostram que muitas vezes as mães assumem a responsabilidade pela adequação das suas atividades com as necessidades de seus filhos, cabendo à elas a desistência do emprego para melhor atender às demandas da criança doente.…”

Strategies to Maximize Data Collection Response Rates in a Randomized Control Trial Focused on Children with Medical Complexity

“…11 TeleFamilies was a three-armed RCT testing the effectiveness of advanced practice registered nurse (APRN) care coordination for children with medical complexity. 12 The study was based in a large, urban, general pediatrics primarycare clinic affiliated with a nonprofit children's hospital.…”