Strategies to Maximize Data Collection Response Rates in a Randomized Control Trial Focused on Children with Medical Complexity

Finkelstein, Stanley M.; Celebrezze, Margaret; Cady, Rhonda; Lunos, Scott; Looman, Wendy S.

doi:10.1089/tmj.2015.0069

Cited by 8 publications

(4 citation statements)

References 22 publications

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“…We suggest that the high noncompletion rate in this study was partly because of the timing of the research-data collection occurred around the Christmas period. Avoiding holiday times [78], using behavioral prompts [79], and reducing the number of outcome measures to reduce respondent burden [80] could improve data completion rates in future studies assessing the feasibility and practicality of digital cancer self-management programs.…”

Section: Principal Findingsmentioning

confidence: 99%

Help to Overcome Problems Effectively for Cancer Survivors: Development and Evaluation of a Digital Self-Management Program

et al. 2020

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Background People living with cancer face numerous psychosocial challenges, including cancer-related fatigue, fear of recurrence, and depression. There is a lack of digital interventions tailored to the needs of people living with all types of cancer. We developed a 6-week, digital, peer-delivered, self-management program: iHOPE (Help to Overcome Problems Effectively; where ‘i’ indicates the digital version of the program). The program is underpinned by positive psychology and cognitive behavioral therapy to meet these psychosocial challenges. Objective This study aimed to assess the feasibility of the iHOPE program among people living with cancer. Program adherence and satisfaction along with changes in psychological distress and positive well-being were measured. Methods A pre-post, acceptability, and feasibility design was used. People living with cancer (N=114) were recruited via a national cancer charity in the United Kingdom and were given access to the iHOPE program. Demographic and other participant characteristics were recorded. Participants completed digital measures at baseline and the end of the 6-week program for depression, anxiety, cancer-related fatigue, cancer worry or fear of cancer recurrence, positive mental well-being, hope, gratitude, and health status. The website’s system recorded data on the usage of the program. Satisfaction with the program was also measured. Results A total of 114 participants completed the baseline questionnaires. Of these, 70 people (61.4%) participated in all 6 sessions. The mean number of sessions undertaken was 5.0 (SD 1.5). Moreover, 44.7% (51/114) of participants completed at least three sessions and end-of-program outcome measures. A total of 59 participants completed the satisfaction questionnaire, where ≥90% (54/58) of participants reported that the program was easy to navigate and was well managed by the peer facilitators, and that they found the social networking tools useful. Preliminary efficacy testing among the 51 participants who completed baseline and postprogram outcome measures showed that postprogram scores decreased for depression, anxiety, cancer-related fatigue, and fear of recurrence (all P<.001) and increased for positive mental well-being (P<.001), hope (both P<.001), and gratitude (P=.02). Conclusions The feasibility evidence is promising, showing that the peer-delivered digital iHOPE program is acceptable and practical. Implementation of the iHOPE program on a wider scale will incorporate further research and development to maximize the completion rates of the measures. Initial effectiveness data suggest positive impacts on important cancer-related quality of life and mental well-being outcomes. A randomized controlled trial design with a longer follow-up is needed to confirm the potential of the iHOPE program for improving mental and physical health outcomes for cancer survivors.

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Section: Principal Findingsmentioning

confidence: 99%

Help to Overcome Problems Effectively for Cancer Survivors: Development and Evaluation of a Digital Self-Management Program

et al. 2020

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“…The video group had a 94% response rate, the telephone group had an 88% response rate, and the control group had an 84% response rate (Finkelstein et al, 2015). The higher response rate for the video group could in part be contributing to the higher number of planned visits compared to the other groups.…”

Section: Discussionmentioning

confidence: 99%

“…Most caregivers still elect to bring the child to additional therapy visits to support the family in caring for the child at home or the child’s ability to participate in community activities (Benedict, 2006), and these therapy visits are included in the HCSU tool. The HCSU tool was collected using multiple flexible methods—mail, e-mail, telephone, and in person at the clinic—to maximize the response rate (Finkelstein, Celebrezze, Cady, Lunos, & Looman, 2015). When data collection using these methods was unsuccessful, the electronic medical record (EMR) was reviewed for documented visits within the health care system.…”

Section: Methodsmentioning

confidence: 99%

The Impact of Telehealth and Care Coordination on the Number and Type of Clinical Visits for Children With Medical Complexity

McKissick¹,

Cady²,

Looman³

et al. 2017

Journal of Pediatric Health Care

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Introduction The purpose of this analysis was to evaluate the effects of an advanced practice nurse-delivered telehealth intervention on health care utilization by children with medical complexity (CMC). Because CMC account for a large share of health care utilization costs, finding effective ways to care for them is an important challenge requiring exploration. Method This was a secondary analysis of data from a randomized clinical trial with a control group and two intervention groups. The focus of the analysis was planned and unplanned clinical and therapy visits by CMC over a 30-month data collection period. Non-parametric tests were used to compare visit counts between and within the three groups. Results The number of unplanned visits decreased over time across all groups, with the greatest decrease in the video telehealth intervention group. Planned visits were higher in the video telehealth group across all time periods. Discussion APRN-delivered telehealth care coordination may support a shift from unplanned to planned health care service use among CMC.

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“…The tools used in telemedicine with surgical [6][7] and complex [8][9] patients were in particular video telephony (to obtain interim results and history), wearable devices (tablets), remote videotaping of clinical data, and post-visit survey (for satisfaction index), demonstrating that post-hospital follow-up by telematics in pediatric surgery provides a cost-effective alternative that saves time for patients and improves the quality of service and hospital care. 10 Telerobotics then represents a well-established reality, which allows for reducing postoperative complications and improving the quality of patient recovery, 11 , as well as telemedicine applied to home hospitalizations, which can improve the quality, efficiency, and effectiveness of care.…”

Section: Applied Telemedicine (I): the Complex Management Of The Surg...mentioning

confidence: 99%

The The applications of the Telemedicine in Neonatology and Pediatrics. A narrative revision.

Perrotta

2024

Acta Pediatr Mex

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BACKGROUND: "Telemedicine" was born from the combination of new communication technologies with traditional personal medical examination modalities, thus configuring a new service. METODOLOGY: All clinical trials, meta-analyses, and randomized controlled trials on PubMed were selected through March 30, 2023, for a useful total of 62 studies, for the purpose of narrative revision. RESULTS: In neonatology and pediatrics, there has been an increase in the last decade, especially in Italy, of remote telemedicine consultation activities (via messaging, televisiting, telemonitoring, coaching, and telehealth), especially in terms of follow-up; however, these the advantages come up against a number of limitations: a) the lack of technical knowledge of the tools used for applied telemedicine; b) the costs of supporting, operating and maintaining the material instrumental network; c) the subjective cognitive distortions of the user and/or his or her family, related to the complication or uselessness of the new technologies compared to traditional methods of health care consultation and delivery; d) the non-applicability of the new technological measures related to telemedicine in the case of medical visits that require physical contact; e) a good part of the published studies have structural errors in the construction phase of the research design, effectively vitiating the final result, as happens in the hypotheses of reduced or insufficient population sample with respect to representativeness, conflict of interest with respect to the hypotheses of publicity of the specific IT tool devised and used by the research team, and satisfaction questionnaires of dubious statistical usefulness. CONCLUSIONS: Significant evidence emerges concerning the importance of using new information technology in the service of medicine, albeit with several practical criticalities, to ensure efficiency, effectiveness, and quality of health service, both concerning social and economic contexts, for Neonatology and Pediatrics departments.

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Strategies to Maximize Data Collection Response Rates in a Randomized Control Trial Focused on Children with Medical Complexity

Cited by 8 publications

References 22 publications

Help to Overcome Problems Effectively for Cancer Survivors: Development and Evaluation of a Digital Self-Management Program

Help to Overcome Problems Effectively for Cancer Survivors: Development and Evaluation of a Digital Self-Management Program

The Impact of Telehealth and Care Coordination on the Number and Type of Clinical Visits for Children With Medical Complexity

The The applications of the Telemedicine in Neonatology and Pediatrics. A narrative revision.

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