2021
DOI: 10.1002/cncr.34030
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Cancer‐related mortality among people with intellectual disabilities: A nationwide population‐based cohort study

Abstract: BACKGROUND:Concerns have been raised about access to cancer screening and the timely receipt of cancer care for people with an intellectual disability (ID). However, knowledge about cancer mortality as a potential consequence of these disparities is still limited. This study, therefore, compared cancer-related mortality patterns between people with and without ID. METHODS: A historical cohort study (2015-2019) linked the Dutch adult population (approximately 12 million people with an ID prevalence of 1.45%) an… Show more

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Cited by 30 publications
(41 citation statements)
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References 47 publications
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“…(61,63) This finding suggests that differences in frequency of appropriate treatment appear to explain the higher cancer-specific mortality for this vulnerable population, with higher mortality likely due to loss of chance and unequal clinical care. People with disabilities were also more likely to face diagnosis and treatment delays (22,45,46,55,56,71) -but not when access to screening was optimal, (38) underlining the importance of good screening access. People with disabilities were also less likely to receive curative-intent transplants for blood cancers (19,65), and more likely to receive inappropriate radical mastectomy instead of guideline-consistent minimally invasive procedures for breast cancer.…”
Section: Outcome Resultsmentioning
confidence: 99%
See 1 more Smart Citation
“…(61,63) This finding suggests that differences in frequency of appropriate treatment appear to explain the higher cancer-specific mortality for this vulnerable population, with higher mortality likely due to loss of chance and unequal clinical care. People with disabilities were also more likely to face diagnosis and treatment delays (22,45,46,55,56,71) -but not when access to screening was optimal, (38) underlining the importance of good screening access. People with disabilities were also less likely to receive curative-intent transplants for blood cancers (19,65), and more likely to receive inappropriate radical mastectomy instead of guideline-consistent minimally invasive procedures for breast cancer.…”
Section: Outcome Resultsmentioning
confidence: 99%
“…Over a third of the eligible studies focused on people with psychosocial disability (42%, n=13) defined as a previous diagnosis of psychiatric or mental health issues. (38,39,41,(44)(45)(46)(47)(48)(49)(50)(51)(52)(53) Nine studies (29%, n=9) focused on intellectual, learning disabilities, cognitive impairment or dementia (40,42,(54)(55)(56)(57)(58)(59)(60). Nine other studies (29%, n=9) considered all disability in general or grouped into subcategories (e.g.…”
Section: Types Of Disabilitiesmentioning
confidence: 99%
“…For instance, a study regarding Medicare beneficiaries in the United States concluded that disabled beneficiaries diagnosed with breast cancer and CRC had higher overall and cancer-specific mortality. A study of the Dutch adult population also found that cancer-related mortality was more common in individuals with intellectual disability [ 10 ]. Likewise, a previous study in Korea reported that cancer patients with disabilities had higher long-term all-cause mortality, and that such propensities also tended to persist in 5-year cancer survivors, suggesting the need for further collaborative efforts to improve the survival of cancer patients and survivors [ 23 ].…”
Section: Discussionmentioning
confidence: 99%
“…The number of people with disabilities has also increased in Korea from approximately 2.1 million in 2005 to 2.7 million in 2017 [ 8 ]. Investigating mortality in cancer patients with disability is important because cancer is usually detected at a later stage in such populations and patients show poorer survival [ 9 , 10 ]. Individuals with disabilities are known to experience various barriers, including physical and communicational constraints, in accessing and utilizing healthcare [ 11 , 12 , 13 ].…”
Section: Introductionmentioning
confidence: 99%
“…This method has been applied to other studies related to health and intellectual disability before, including investigation of mortality. 16 , 30 All individuals without indicators of intellectual disability were analysed as members of the general population.…”
Section: Methodsmentioning
confidence: 99%