All-cause and cause-specific mortality among people with and without intellectual disabilities during the COVID-19 pandemic in the Netherlands: a population-based cohort study

Cuypers, Maarten; Koks-Leensen, M.; Schalk, Bianca; Gijssel, E.J. Bakker-van; Leusink, Geraline L; Naaldenberg, Jenneken

doi:10.1016/s2468-2667(23)00062-2

Cited by 12 publications

(4 citation statements)

References 36 publications

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“…Previous research has demonstrated that people with ID encounter 2.5 times more health problems than people without ID and that chronic illnesses and comorbidities are more prevalent among this group [ 10 ]. Furthermore, people with ID were disproportionately affected during the COVID-19 pandemic in terms of mortality, further highlighting the vulnerability of this population [ 11 ]. Given their vulnerable health conditions and unacknowledged health needs, this group is hypothetically at greater risk for infections and AMR.…”

Section: Introductionmentioning

confidence: 99%

Mind the gap: knowledge, attitudes and perceptions on antimicrobial resistance, antimicrobial stewardship and infection prevention and control in long-term care facilities for people with disabilities in the Netherlands

Hidad,

de Greeff,

Haenen

et al. 2024

Antimicrob Resist Infect Control

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Background Antimicrobial resistance (AMR) has become one of the major public health threats worldwide, emphasizing the necessity of preventing the development and transmission of drug resistant microorganisms. This is particularly important for people with vulnerable health conditions, such as people with intellectual disabilities (ID) and long-term care residents. This study aimed to assess the current status of AMR, antimicrobial stewardship (AMS) and infection prevention and control (IPC) in Dutch long-term care facilities for people with intellectual disabilities (ID-LTCFs). Methods A web-based cross-sectional survey distributed between July and November 2023, targeting (both nonmedically and medically trained) healthcare professionals working in ID-LTCFs in The Netherlands, to study knowledge, attitudes and perceptions regarding AMR, AMS and IPC. Results In total, 109 participants working in 37 long-term care organizations for people with intellectual disabilities throughout the Netherlands completed the questionnaire. The knowledge levels of AMR and IPC among nonmedically trained professionals (e.g., social care professionals) were lower than those among medically trained professionals (p = 0.026). In particular regarding the perceived protective value of glove use, insufficient knowledge levels were found. Furthermore, there was a lack of easy-read resources and useful information regarding IPC and AMR, for both healthcare professionals as well as people with disabilities. The majority of the participants (> 90%) reported that AMR and IPC need more attention within the disability care sector, but paradoxically, only 38.5% mentioned that they would like to receive additional information and training about IPC, and 72.5% would like to receive additional information and training about AMR. Conclusion Although the importance of AMR and IPC is acknowledged by professionals working in ID-LTCFs, there is room for improvement in regards to appropriate glove use and setting-specific IPC and hygiene policies. As nonmedically trained professionals comprise most of the workforce within ID-LTCFs, it is also important to evaluate their needs. This can have a substantial impact on developing and implementing AMR, AMS and/or IPC guidelines and policies in ID-LTCFs.

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Section: Introductionmentioning

confidence: 99%

Mind the gap: knowledge, attitudes and perceptions on antimicrobial resistance, antimicrobial stewardship and infection prevention and control in long-term care facilities for people with disabilities in the Netherlands

Hidad,

de Greeff,

Haenen

et al. 2024

Antimicrob Resist Infect Control

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“…Even though 187 countries or states have ratified this Convention (United Nations, n.d.), healthcare disparities for people with intellectual and developmental disabilities (IDD) in comparison to the general population exist, resulting in higher rates of avoidable deaths in people with IDD (Glover et al, 2017; Heslop et al, 2014). The COVID‐19 pandemic has shed a light on these disparities by revealing disproportionate COVID‐19 disease burden and mortality disparities among people with IDD compared to the general population (Cuypers et al, 2023; Koks‐Leensen et al, 2023) and differences in access to healthcare during the COVID‐19 pandemic (Maulana et al, 2021; Rosencrans et al, 2021).…”

Section: Introductionmentioning

confidence: 99%

Synthesis: International perspectives on healthcare for people with intellectual and developmental disabilities

Breuer,

Pelle,

Leusink

et al. 2024

Policy Practice Intel Disabi

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BackgroundThe organization of healthcare for people with intellectual and developmental disabilities (IDD) varies across countries. Each country has developed unique practices embedded in their historical and organizational context. Understanding and sharing these practices across borders facilitates mutual understanding about healthcare needs of people with IDD and facilitates the adoption of effective strategies in other countries.AimTo provide a synthesis across the country‐specific papers in the JPPID special edition and thereby identify underlying trends, challenges, and best practices in healthcare for people with IDD.MethodsThe papers in this special edition, which describe the organization of healthcare for people with IDD in 13 countries, were qualitatively analyzed using thematic content analysis, focusing on general characteristics, history, and context, organization of healthcare for people with IDD, challenges, and best practices.ResultsEach paper described a specific national history of evolution of healthcare for people with IDD, but our analysis showed that countries face similar challenges in healthcare for people with IDD. These challenges cover (1) access to healthcare, (2) quality of healthcare, (3) implementation, and (4) visibility of people with IDD. Consequently, people with IDD continue to face significant health disparities. Several best practices have been developed, ranging from making mainstream healthcare more accessible and suitable to providing specialized services, and advocating and raising awareness.ConclusionsThis synthesis is the first paper to include perspectives on healthcare for people with IDD across 13 countries. We identified that, despite differences in context, countries face similar challenges in improving healthcare for people with IDD. International collaboration and networking can provide essential tools in reducing health disparities that people with IDD face, starting with the challenges identified in this synthesis. This will require effort to especially include low‐ and middle‐income countries.

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“… 1 3 Mortality from COVID-19 was significantly higher in the population with developmental disabilities than in the general population. 6 7 Persons with disabilities endured higher rates of depression, anxiety and stress. 8 Furthermore, due to the pandemic, persons with disabilities experienced higher exclusion from social protection mechanisms and poverty than non-disabled peers.…”

Section: Introductionmentioning

confidence: 99%

Did high frequency phone surveys during the COVID-19 pandemic include disability questions? An assessment of COVID-19 surveys from March 2020 to December 2022

Nascimento Dial,

Vicente,

Mitra

et al. 2024

BMJ Open

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ObjectivesIn the midst of the pandemic, face-to-face data collection for national censuses and surveys was suspended due to limitations on mobility and social distancing, limiting the collection of already scarce disability data. Responses to these constraints were met with a surge of high-frequency phone surveys (HFPSs) that aimed to provide timely data for understanding the socioeconomic impacts of and responses to the pandemic. This paper provides an assessment of HFPS datasets and their inclusion of disability questions to evaluate the visibility of persons with disabilities during the COVID-19 pandemic.DesignWe collected HFPS questionnaires conducted globally from the onset of the pandemic emergency in March 2020 until December 2022 from various online survey repositories. Each HFPS questionnaire was searched using a set of keywords for inclusion of different types of disability questions. Results were recorded in an Excel review log, which was manually reviewed by two researchers.MethodsThe review of HFPS datasets involved two stages: (1) a main review of 294 HFPS dataset-waves and (2) a semiautomated review of the same dataset-waves using a search engine-powered questionnaire review tool developed by our team. The results from the main review were compared with those of a sensitivity analysis using and testing the tool as an alternative to manual search.ResultsRoughly half of HFPS datasets reviewed and 60% of the countries included in this study had some type of question on disability. While disability questions were not widely absent from HFPS datasets, only 3% of HFPS datasets included functional difficulty questions that meet international standards. The search engine-powered questionnaire review tool proved to be able to streamline the search process for future research on inclusive data.ConclusionsThe dearth of functional difficulty questions and the Washington-Group Short Set in particular in HFPS has contributed to the relative invisibility of persons with disabilities during the pandemic emergency, the lingering effects of which could impede policy-making, monitoring and advocacy on behalf of persons with disabilities.

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All-cause and cause-specific mortality among people with and without intellectual disabilities during the COVID-19 pandemic in the Netherlands: a population-based cohort study

Cited by 12 publications

References 36 publications

Mind the gap: knowledge, attitudes and perceptions on antimicrobial resistance, antimicrobial stewardship and infection prevention and control in long-term care facilities for people with disabilities in the Netherlands

Mind the gap: knowledge, attitudes and perceptions on antimicrobial resistance, antimicrobial stewardship and infection prevention and control in long-term care facilities for people with disabilities in the Netherlands

Synthesis: International perspectives on healthcare for people with intellectual and developmental disabilities

Did high frequency phone surveys during the COVID-19 pandemic include disability questions? An assessment of COVID-19 surveys from March 2020 to December 2022

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