Cancer Prevention Knowledge of People with Profound Hearing Loss

Zazove, Philip; Meador, Helen E.; Reed, Barbara D.; Sen, Ananda; Gorenflo, Daniel W.

doi:10.1007/s11606-008-0895-3

Cited by 42 publications

(34 citation statements)

References 28 publications

(43 reference statements)

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“…Although no standards exist for implementing a bilingual approach, there also is no evidence that adapting existing video material developed for a hearing audience by embedding a window with a video of an interpreter signing the information with closed captioning (picture in picture) is an effective way to implement a bilingual approach (2). Rather, this study adds to the growing evidence that ASL-users’ knowledge and satisfaction increases when materials are developed with Deaf community input, ASL discourse is the main point of reference, first-language users sign the material, and supplemental captioning and graphics are included (3-8).…”

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

“…One subpopulation in need of appropriate cancer health communications is the US Deaf community (2), for whom American Sign Language (ASL) is the primary language. General information about some cancers exists for this community (2-8). However, up to 10% of cancers occur due to a genetic alteration in a high risk gene, which increases the chance of developing cancer and can affect medical management(9) in ways that could lead to cancer screening (10-12) and prevention (13, 14).…”

Section: Introductionmentioning

confidence: 99%

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Bilingual approach to online cancer genetics education for Deaf American Sign Language users produces greater knowledge and confidence than English text only: A randomized study

Palmer

Boudreault

Berman

et al. 2017

Disability and Health Journal

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Introduction Deaf American Sign Language-users (ASL) have limited access to cancer genetics information they can readily understand, increasing risk for health disparities. We compared effectiveness of online cancer genetics information presented using a bilingual approach (ASL with English closed captioning) and a monolingual approach (English text). Hypothesis Bilingual modality would increase cancer genetics knowledge and confidence to create a family tree; education would interact with modality. Methods We used a block 2:1 randomized pre-post study design stratified on education. 150 Deaf ASL-users ≥18 years old with computer and internet access participated online; 100 (70 high, 30 low education) and 50 (35 high, 15 low education) were randomized to the bilingual and monolingual modalities. Modalities provide virtually identical content on creating a family tree, using the family tree to identify inherited cancer risk factors, understanding how cancer predisposition can be inherited, and the role of genetic counseling and testing for prevention or treatment. 25 True/False items assessed knowledge; a Likert scale item assessed confidence. Data were collected within 2 weeks before and after viewing the information. Results Significant interaction of language modality, education, and change in knowledge scores was observed (p=.01). High education group increased knowledge regardless of modality (Bilingual: p<.001; d=.56; Monolingual: p<.001; d=1.08). Low education group increased knowledge with bilingual (p<.001; d=.85), but not monolingual (p=.79; d=.08) modality. Bilingual modality yielded greater confidence creating a family tree (p=.03). Conclusions Bilingual approach provides a better opportunity for lower educated Deaf ASL-users to access cancer genetics information than a monolingual approach.

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Bilingual approach to online cancer genetics education for Deaf American Sign Language users produces greater knowledge and confidence than English text only: A randomized study

Palmer

Boudreault

Berman

et al. 2017

Disability and Health Journal

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“…This likely results in a lower general health knowledge (Heuttel & Rothstein, 2001; Peinkofer, 1994; Tamaskar et al, 2000; Wollin & Elder, 2003; Woodroffe, Gorenflo, Meador, & Zazove, 1998; Zazove, 2009), along with existing health disparities (Barnett, 1999; Barnett, Klein, et al, 2011; McKee, Barnett, et al, 2011) in the Deaf population. Deaf ASL users rely on a visual language that does not have a written form.…”

mentioning

confidence: 99%

Assessing Health Literacy in Deaf American Sign Language Users

McKee

Paasche‐Orlow

Winters

et al. 2015

Journal of Health Communication

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155

112

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Communication and language barriers isolate Deaf American Sign Language (ASL) users from mass media, healthcare messages, and health care communication, which when coupled with social marginalization, places them at a high risk for inadequate health literacy. Our objectives were to translate, adapt, and develop an accessible health literacy instrument in ASL and to assess the prevalence and correlates of inadequate health literacy among Deaf ASL users and hearing English speakers using a cross-sectional design. A total of 405 participants (166 Deaf and 239 hearing) were enrolled in the study. The Newest Vital Sign was adapted, translated, and developed into an ASL version of the NVS (ASL-NVS). Forty-eight percent of Deaf participants had inadequate health literacy, and Deaf individuals were 6.9 times more likely than hearing participants to have inadequate health literacy. The new ASL-NVS, available on a self-administered computer platform, demonstrated good correlation with reading literacy. The prevalence of Deaf ASL users with inadequate health literacy is substantial, warranting further interventions and research.

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“…One example is their exclusion from preventive campaigns affecting health measures. It has already been reported that the deaf population lack a proper communication with medical doctors, are less knowledgeable about health risks, and, are less informed about sexual health and sexuality issues (Peinkofer, 1994;Harmer, 1999;Tamaskar et al, 2000;Heuttel and Rothstein, 2001;Steinberg et al, 2002;Bisol et al, 2008;Alquati Bisol et al, 2008;Zazove et al, 2009;Fernandes et al, 2009;Touko et al, 2010;Pereira and Fortes, 2010;Hoang et al, 2011;Jurberg et al, 2013).…”

Section: Introductionmentioning

confidence: 99%

Access and comprehension of information by profound deaf youngsters in Brazil

Almeida¹,

Schiaffino²,

Rumjanek³

2014

J. Media Commun. Stud.

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The deaf community is less well informed compared to hearing groups and this communication difficulty hampers not only the acquisition of accurate general information but also puts the deaf community at a health risk. When profound deaf students were asked about their sources of information, a younger group mentioned friends and family, and an older group answered newspapers, television, and internet as their first sources of information. However, when this second group, aged between 17-36 years old, were evaluated in relation to their capacity of reading and understanding a short piece of news it became clear in many occasions that they ignored the meaning of more than 30% of the words. This older group of students could, however, discuss certain issues that had been extensively covered by the different media. This limited access to accurate information is a problem in issues involving sexual topics. Using the school system to cover this gap, it became clear that there was a lack of knowledge related to anatomy and basic physiologic concepts, as well as sexually transmitted diseases. The questions of virginity, homosexuality, pregnancy and drug abuse were also important discussion points. The need to overcome some of these problems led to the production of DVDs and illustrated magazines with the help of the young deaf community. The deaf community deserves being better informed and different approaches should be considered to overcome this problem.

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Cancer Prevention Knowledge of People with Profound Hearing Loss

Cited by 42 publications

References 28 publications

Bilingual approach to online cancer genetics education for Deaf American Sign Language users produces greater knowledge and confidence than English text only: A randomized study

Bilingual approach to online cancer genetics education for Deaf American Sign Language users produces greater knowledge and confidence than English text only: A randomized study

Assessing Health Literacy in Deaf American Sign Language Users

Access and comprehension of information by profound deaf youngsters in Brazil

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