Cancer prevention and health promotion for people with intellectual disabilities: an exploratory study of staff knowledge

Hanna, Lisa Maire; Taggart, Laurence; Cousins, Wendy

doi:10.1111/j.1365-2788.2010.01357.x

Cited by 42 publications

(85 citation statements)

References 42 publications

(88 reference statements)

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“…Unfortunately, lack of early identification is often attributed to poor knowledge about cancer and cancer screening in health and social care staff [58,78,81,83]. For example, 1 study [81] surveyed 324 social care staff, reporting that 89% had received little training in cancer care, whilst 83% noted their knowledge of the signs, symptoms, and risks of cancer was limited.…”

Section: Discussionmentioning

confidence: 99%

“…One of the biggest difficulties is that PWIDs often find it difficult to communicate their pain and unease, and often react with unusual and sometimes challenging behaviour [82], such as quietness or overactivity. Many caregivers, however, may not be aware of the cancer risk of adults with IDs, meaning significant symptoms may be neglected and consequently long delays can occur between the onset of symptoms and diagnosis [83]. For this reason, caregivers need to be vigilant about complaints and/or changes in behaviour, to avoid the diagnosis being made too late [84,85].…”

Section: Discussionmentioning

confidence: 99%

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Colorectal Cancer in People with Intellectual Disabilities

Willis

Samalin

Satge³

2018

Oncology

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People with intellectual disabilities (PWIDs) are now living longer; thus, the incidence of cancer within this population is increasing. Available data indicate an excess of digestive tract cancers in PWIDs, but colorectal cancer has rarely been specifically studied and has not been extensively reviewed. This is despite risk factors such as being overweight, obesity, and lack of exercise being more frequent in PWIDs. In this article, we examine the literature on the frequency, screening, and treatment of colorectal cancer in PWIDs by as sessing 4 databases, Medline, EBSCO-CINHL, ASSIA, and PsychLIT, from 1970 to February 2017. Findings indicate that the frequency trends slightly higher than that found in the general population. Screening presents a unique opportunity to discover early colorectal cancer, but is underused in PWIDs compared to the general population. Furthermore, the clinical presentation is frequently masked, particularly by challenging behaviours, and colorectal cancer is therefore often diagnosed late, making treatment difficult due to the advanced stage of these tumours. To improve the care of PWIDs, we need more resources to support them and their caregivers, and to increase awareness of the risk factors and signs and symptoms of colorectal cancer.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Colorectal Cancer in People with Intellectual Disabilities

Willis

Samalin

Satge³

2018

Oncology

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“…Women with ID are seldom targeted in health education, health promotion activities, and health screening (Hanna et al, 2011). In Taiwan, more than 80% of women with ID are diagnosed with severity more than mild.…”

Section: Discussionmentioning

confidence: 99%

“…Advancements in medicine have prolonged the life expectancies of women with ID; thus, the risk of breast cancer has also increased (Davies & Duff, 2001;Hanna, Taggart, & Cousins, 2011;Sullivan et al, 2003;. Approximately 50% of women with ID live up to 70 years; thus, the participants, aged 50-69 years, were in an age group subject to the highest risks of breast cancer (Sullivan et al, 2003;Taggart et al, 2011).…”

Section: Introductionmentioning

confidence: 97%

“…Because of cognitive impairment and communication difficulties among women with ID, discovering breast cancer symptoms early is a challenge for both caregivers and clinical personnel. Furthermore, women with ID must rely on caregivers' assistance during breast cancer screening (Hanna et al, 2011;Taggart et al, 2011). Women with ID do not understand why they need mammography and how it is performed; thus, they experience more fears and anxieties than women in the general population (Sullivan et al, 2003;Wilkinson, Deis, Bowen, & Bokhour, 2011).…”

Section: Introductionmentioning

confidence: 99%

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Factors influencing the mammography utilization among Taiwanese women with intellectual disabilities, a nationwide population-based study

Lai

Kung

Tsai

2014

Research in Developmental Disabilities

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Disparities in cancer‐related healthcare among people with intellectual disabilities: A population‐based cohort study with health insurance claims data

Cuypers¹,

Tobi²,

Huijsmans³

et al. 2020

Cancer Medicine

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Background Concerns have been raised about the accessibility and quality of cancer‐related care for people with intellectual disabilities (ID). However, there is limited insight into cancer incidence and the utilization of cancer care at the ID population level to inform targeted cancer control strategies. Therefore, we aimed to examine differences in the utilization of cancer‐related care between people with and without ID, identified through diagnostic codes on health insurance claims. Methods In a population‐based cohort study, Dutch individuals of all ages who received residential care through the Chronic Care Act due to an ID (n = 65 183) and an age and sex‐matched sample of persons without ID (1:2 ratio), who were cancer‐free at enrollment in 2013 were followed through 2015. Incidence rates (IRs) of newly started cancer care and IR ratios (IRRs) with 95% CIs were used to compare groups. Separate analyses were performed per cancer type. Results Individuals with ID received less cancer‐related care than individuals without (IRR = 0.64, 95% CI 0.62‐0.66). Differences increased with age and were larger for females than for males. Utilization of care for cancers within the national screening program (female breast, cervical, and colon cancer) was lower for people with ID compared to people without ID. Conclusion Cancer may be underdiagnosed and/or undertreated in people with ID, or cancer is truly less prevalent in this population. In particular, the differences detected between males and females with ID, and the potential underutilization of national screening programs, require urgent follow‐up investigations.

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Cancer prevention and health promotion for people with intellectual disabilities: an exploratory study of staff knowledge

Cited by 42 publications

References 42 publications

Colorectal Cancer in People with Intellectual Disabilities

Colorectal Cancer in People with Intellectual Disabilities

Factors influencing the mammography utilization among Taiwanese women with intellectual disabilities, a nationwide population-based study

Disparities in cancer‐related healthcare among people with intellectual disabilities: A population‐based cohort study with health insurance claims data

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