Cancer Patients’ Views and Experiences of Participation in Care and Decision Making

The Meaning of Patient Participation for Patients and Nurses at a Nurse-Led Clinic for Chronic Heart Failure

“…It has been found that to experience participation, patients with cancer thought that courage and reasonable good health as well as an active attitude were required. Access to information and good interactive relationships with nurses and physicians were also found to promote participation [32]. This observation is consistent with the findings in this study, in which the patients experienced the personal activity of being responsible and the interpersonal act of accepting responsibility.…”

Arthritis patients’ motives for (not) wanting to be involved in medical decision-making and the factors that hinder or promote patient involvement

“…Unawareness of having a choice is a known barrier for patient participation [22][23][24][25], and previous studies have shown that patients are more motivated for SDM after being informed about the possibilities and benefits of it [26,[34][35][36][37]. Therefore, we recommend initiatives to inform and educate patients about SDM to be more specifically aimed at increasing patients' awareness of having a choice.…”

Challenges in achieving patient participation: A review of how patient participation is addressed in empirical studies

“…They also identified a tendency for professionals to dominate the situation (Kendall, 1993;Mitcheson and Cowley, 2003;Sahlsten, 2005;Sahlsten et al, 2005;Tutton, 2003Tutton, , 2005, along with a tendency to overlook the patient's own perception of the situation (Eldh, 2008;Eldh et al, 2006;Helgesen et al, 2010;Henderson, 1997Henderson, , 2002Latimer et al, 2013;Schoot et al, 2005). The patient's health situation and confidence also influence the balance of power in the relationship (Helgesen et al, 2010;Kvangarsnes et al, 2012;Latimer et al, 2013;Latvala et al, 2000;Sainio et al, 2001;Schoot et al, 2005). Thus, establishing the patient-nurse relationship and balancing the power embedded in the relationship was challenging.…”

“…The patient's situation was important to the patient's degree of participation (Haidet, 2006;Sainio et al, 2001) and influenced the assistance the nurses provided (Larsson et al, 2007;Latvala et al, 2000;Tutton, 2003Tutton, , 2005. In patients who had a good basis for being able to participate, the nurse also made it possible for the patient to participate (Almborg et al, 2009).…”