The Meaning of Patient Participation for Patients and Nurses at a Nurse-Led Clinic for Chronic Heart Failure

Eldh, Ann Catrine; Ehnfors, Margareta; Ekman, Inger

doi:10.1016/j.ejcnurse.2005.06.002

Cited by 98 publications

(173 citation statements)

References 35 publications

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“…Participants included both chronically ill adults and their family members [53,63] . In two of the studies, the participants comprised both chronically ill adults and nursing staff [64,65] , whereas in other studies, the nursing staff were the sole participants [66][67][68][69] . One study involved adults with chronic illness, their family members and nursing staff [70] .…”

Section: General Description Of Studiesmentioning

confidence: 99%

“…They also needed counseling that fitted in with their daily lives [52,55,58,[62][63][64] . Although knowledge about the progression of the disease was important to adults with chronic illness [44,59,61] , they rarely discussed the future and the end of life with staff [46,61,65,70] .…”

Section: The Counseling Needs Of Adults With Chronic Illnessmentioning

confidence: 99%

“…Counseling was based on chronically ill adults' individual needs [40,43,56,[65][66][67] and goals [43,68,69) . However, there were also examples of counseling in which the needs of chronically ill adults were not taken into account [66] , or in which the nursing staff identified needs but did not discuss them with the chronically ill adults [56] .…”

Section: The Implementation Of Counselingmentioning

confidence: 99%

“…Authoritarian counseling was implemented based on the needs and activity of nursing staff [43,57,[65][66][67]69] . However, staff often paid attention to the language and style of counseling [44,67,69] .…”

Section: The Implementation Of Counselingmentioning

confidence: 99%

“…However, staff often paid attention to the language and style of counseling [44,67,69] . Interaction in counseling rarely involved a two-way discussion with the chronically ill adult [43,57,65,67] , even when staff were interested in the chronically ill adults' accounts of their experience [44,52,56,70] or staff believed that direct discussion of positive and negative aspects of their care would be beneficial for chronically ill adults [70] . However, sometimes the staff used two-way methods such as hypothetical questions and peer talk [70] .…”

Section: The Implementation Of Counselingmentioning

confidence: 99%

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Counseling chronically ill adults in the healthcare setting: An integrative literature review

Kaakinen¹,

Leena²,

Kääriäinen³

et al. 2012

JNEP

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Background: Chronic diseases among the adult population have increased rapidly worldwide. Chronically ill adults use health services more frequently; they are hospitalized more often and for a longer time than the average. Although counseling is an essential part of the care of chronically ill adults, there is no clear conception of counseling elements in healthcare settings. The aim of this integrative review is to describe the key elements of counseling of adults with chronic diseases. Methods:This integrative literature review describes elements of the counseling of chronically ill adults. The study was conducted by means of a systematic search of CINAHL (1981 to April 2010), Medline (1973 to March 2010 and Medic (1978 to April 2010) databases. Three reviewers selected the studies and two reviewers independently assessed the quality of studies. 31 studies were included in the data extraction and narrative synthesis. Results:The review identifies the following typical elements in the counseling of adults with chronic disease: the counseling needs of chronically ill adults; the implementation of counseling; and the impact of counseling. The counseling needs of chronically ill adults included 1) gaining an understanding of the disease and treatment in relation to everyday life, 2) handling of emotions, 3) social support. The implementation of counseling concerned 1) need-based and goal-oriented counseling, 2) the content of counseling, 3) the nature of interaction and atmosphere of counseling, 4) counseling time, 5) counseling methods and materials, and 6) challenges of implementation. The impact of counseling included increased 1) compliance with medication, 2) ability to cope with feelings, 3) understanding of the disease, and 4) quality of life. Conclusions:This study found that effective counseling should be based on the individual needs of chronically ill adults and it should include more knowledge about social services and provide support in handling emotions. The study also revealed it is important to plan counseling and to set goals in conjunction with chronically ill adults. The results of this review are useful for the development of counseling of chronically ill adults in a variety of healthcare settings.

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Section: General Description Of Studiesmentioning

confidence: 99%

Section: The Counseling Needs Of Adults With Chronic Illnessmentioning

confidence: 99%

Section: The Implementation Of Counselingmentioning

confidence: 99%

Section: The Implementation Of Counselingmentioning

confidence: 99%

Section: The Implementation Of Counselingmentioning

confidence: 99%

See 3 more Smart Citations

Counseling chronically ill adults in the healthcare setting: An integrative literature review

Kaakinen¹,

Leena²,

Kääriäinen³

et al. 2012

JNEP

View full text Add to dashboard Cite

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Consumers’ and health providers’ views and perceptions of partnering to improve health services design, delivery and evaluation: a co-produced qualitative evidence synthesis

Merner

Schonfeld

Virgona

et al. 2023

Cochrane Database of Systematic Reviews

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Patient involvement for improved patient safety: A qualitative study of nurses’ perceptions and experiences

Skagerström

Ericsson²,

Nilsen

et al. 2017

Nursing Open

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AimTo explore nurses’ perceptions and experiences of patient involvement relevant to patient safety.DesignQualitative design using individual semi‐structured interviews.MethodsInterviews with registered nurses (n = 11) and nurse assistants (n = 8) were conducted in 2015–2016. Nurses were recruited from five different healthcare units in Sweden. The material was analysed using conventional content analysis.ResultsThe analysis resulted in four categories: healthcare professionals’ ways of influencing patient involvement for safer care; patients’ ways of influencing patient involvement for safer care; barriers to patient involvement for safer care; and relevance of patient involvement for safer care. The nurses expressed that patient involvement is a shared responsibility. They also emphasized that healthcare provider has a responsibility to create opportunities for the patient to participate. According to the nurses, involvement can be hindered by factors related to the patient, the healthcare provider and the healthcare system. However, respondents expressed that patient involvement can lead to safer care and benefits for individual patients.

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The Meaning of Patient Participation for Patients and Nurses at a Nurse-Led Clinic for Chronic Heart Failure

Cited by 98 publications

References 35 publications

Counseling chronically ill adults in the healthcare setting: An integrative literature review

Counseling chronically ill adults in the healthcare setting: An integrative literature review

Consumers’ and health providers’ views and perceptions of partnering to improve health services design, delivery and evaluation: a co-produced qualitative evidence synthesis

Patient involvement for improved patient safety: A qualitative study of nurses’ perceptions and experiences

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