“…Feeling disempowered and/or neglected by professionals may add to parental distress, resulting in relatively minor additional stressors producing conflict (Nezu et al . ), e.g.‘But the social worker, she was only part time and we always had to go to the hospital to see her, and several times she just didn't even turn up when it was a pre‐arranged date and time’, ‘… she never ever came here to see us which you know was difficult getting to the Hospital when Daisy wasn't walking because it needed two people to drop her off outside. I did have words with her about it though.’ (Lisa‐LI)…”
Disclaimer UWE has obtained warranties from all depositors as to their title in the material deposited and as to their right to deposit such material. UWE makes no representation or warranties of commercial utility, title, or fitness for a particular purpose or any other warranty, express or implied in respect of any material deposited.UWE makes no representation that the use of the materials will not infringe any patent, copyright, trademark or other property or proprietary rights. UWE accepts no liability for any infringement of intellectual property rights in any material deposited but will remove such material from public view pending investigation in the event of an allegation of any such infringement.
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THE EXPERIENCE OF MOTHERS CARING FOR A CHILD WITH A BRAIN TUMOUR
ABSTRACTBackground: Brain tumours are the second most common form of childhood cancer, accounting for over 20% of all cases in European children. Understanding the impact of diagnosis and treatment of a brain tumour on the family is an essential pre-requisite to identifying ways to provide effective support.
“…Feeling disempowered and/or neglected by professionals may add to parental distress, resulting in relatively minor additional stressors producing conflict (Nezu et al . ), e.g.‘But the social worker, she was only part time and we always had to go to the hospital to see her, and several times she just didn't even turn up when it was a pre‐arranged date and time’, ‘… she never ever came here to see us which you know was difficult getting to the Hospital when Daisy wasn't walking because it needed two people to drop her off outside. I did have words with her about it though.’ (Lisa‐LI)…”
Disclaimer UWE has obtained warranties from all depositors as to their title in the material deposited and as to their right to deposit such material. UWE makes no representation or warranties of commercial utility, title, or fitness for a particular purpose or any other warranty, express or implied in respect of any material deposited.UWE makes no representation that the use of the materials will not infringe any patent, copyright, trademark or other property or proprietary rights. UWE accepts no liability for any infringement of intellectual property rights in any material deposited but will remove such material from public view pending investigation in the event of an allegation of any such infringement.
PLEASE SCROLL DOWN FOR TEXT.
1
THE EXPERIENCE OF MOTHERS CARING FOR A CHILD WITH A BRAIN TUMOUR
ABSTRACTBackground: Brain tumours are the second most common form of childhood cancer, accounting for over 20% of all cases in European children. Understanding the impact of diagnosis and treatment of a brain tumour on the family is an essential pre-requisite to identifying ways to provide effective support.
An increasing awareness of the significant emotional, interpersonal, family, vocational, and functional problems experienced by cancer patients, and how such problems impact on their health quality of life and health outcome, has led to the creation of the field of psychosocial oncology. The purpose of this chapter is to provide an overview of this area beginning with a brief description of cancer itself (cancer prevalence, cancer staging, cancer treatment). We continue with overviews of research findings regarding: (1) behavioral risk factors for developing cancer (smoking, alcohol, diet, sun exposure, socioeconomic status, personality), (2) psychosocial effects of cancer (depression, anxiety, suicide, delirium, body image problems, sexual functioning difficulties, issues among terminal patients, psychological responses to specific cancer treatments), (3) psychosocial factors influencing the impact of cancer (coping, social support), (4) psychosocial interventions for adult cancer patients (educational interventions, cognitive‐behavioral interventions, group therapy approaches, telephone counseling, effects of psychosocial interventions on health outcomes, effects of psychosocial interventions on immune functioning, prevention issues), and (5) family and caregiver issues (impact of cancer on caregivers, psychosocial interventions for caregivers). We conclude with a detailed discussion of what future researchers need to focus on in order to impact significantly on the growth of this relatively nascent field of inquiry.
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