Can’t they like me as I am? Psychological interventions for children and young people with congenital visible disfigurement

Hearst, Daniela

doi:10.1080/17518420701263146

Cited by 17 publications

(18 citation statements)

References 23 publications

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“…The higher‐than‐expected levels of distress identified in the current sample were consistent with previous studies that have found elevated depression and anxiety symptoms among parents of children with other types of chronic conditions . This finding also reflects the results of qualitative studies that have highlighted parental distress in CFA populations, indicating that mothers of children with CFAs may be at a significantly higher risk of experiencing symptoms of depression and anxiety than mothers of healthy children.…”

Section: Discussionsupporting

confidence: 90%

Craniofacial anomalies and mothers’ psychological functioning: The mediating role of social support

Case

Anderson

Walsh

2017

J Paediatrics Child Health

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Mothers of children with CFAs may experience increased psychological distress in comparison with the general population. Increased social support may reduce the risk of psychological distress, thus enhancing quality of life among such mothers. The majority of mothers of children with CFAs in Australia may not be routinely offered psychological support services in spite of their elevated psychological risk.

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Section: Discussionsupporting

confidence: 90%

Craniofacial anomalies and mothers’ psychological functioning: The mediating role of social support

Case

Anderson

Walsh

2017

J Paediatrics Child Health

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“…Following a diagnosis of CL/P in their child, parents often express feelings of guilt, grief, and concern over their child's future (Nelson et al, 2012). For the child, looking and/or sounding different to their peers may interfere with social interaction and invite some degree of teasing or bullying (Hearst, 2007). Difficulties surrounding emancipation from the family unit and the initiation of intimate relationships may also be problematic (Noar et al, 1991;Danino et al, 2005).…”

Section: Impacts Of Cleftmentioning

confidence: 99%

Opportunities and Challenges in Establishing a Cohort Study: An Example from Cleft Lip/Palate Research in the United Kingdom

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Humphries

Pourcain

et al. 2016

The Cleft Palate Craniofacial Journal

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Background: Cleft lip and/or palate (CL/P) is one of the most common birth conditions in the world, but little is known about its causes. Professional opinion remains divided as to which treatments may be the most beneficial for patients with CL/P, and the factors that contribute to psychological adjustment are poorly understood. The use of different methodological approaches and tools plays a key role in hampering efforts to address discrepancies within the evidence base. A new UK-wide program of research, The Cleft Collective, was established to combat many of these methodological challenges and to address some of the key research questions important to all CL/P stakeholders.Objective: To describe the establishment of CL/P cohort studies in the United Kingdom and to consider the many opportunities this resource will generate.Results: To date, protocols have been developed and implemented within most UK cleft teams. Biological samples, environmental information, and data pertaining to parental psychological well-being and child development are being collected successfully. Recruitment is currently on track to meet the ambitious target of approximately 9800 individuals from just more than 3000 families.Conclusions: The Cleft Collective cohort studies represent a significant step forward for research in the field of CL/P. The data collected will form a comprehensive resource of information about individuals with CL/P and their families. This resource will provide the basis for many future projects and collaborations, both in the United Kingdom and around the world.

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“…Cumulative research evidence suggests that a child with a disfigurement is at increased risk of disturbed attachments to primary caregivers, being the subject of staring, intrusive questioning, ridicule, hostility in public, avoidance, decreased popularity and teasing from peers, impaired social adjustment, social anxiety and behavior problems (Hearst 2007). Patients and parents found the discussion of conflicts regarding brace-wearing were significant since peer pressure to conform exists and patients face parental pressure to wear a brace which in fact makes them stand out (Donnelly et al 2004).…”

Section: Discussionmentioning

confidence: 99%

Changes in Scoliosis Patient and Parental Assessment of Mental Health in the Course of Cheneau Brace Treatment Based on the Strengths and Difficulties Questionnaire

et al. 2012

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In the presented study we aimed to investigate the influence of bracing time on perception of mental health by both parents and children with Adolescent Idiopathic Scoliosis (AIS) longitudinally, in relation to socio-demographic and scoliosis-related data. The study design was comprised of three questionnaire assessments, with the second and the third evaluation taking place 6 and 12 months after the beginning of the study, respectively. Thirty-six AIS females treated conservatively and their parents completed the Polish versions of The Strengths and Difficulties Questionnaire-25 (SDQ-25). The results indicated psychiatric disorder was unlikely, but concern all SDQ-25 parent and patient domains and general results. Patient results do not differ significantly in regards to the total score and the particular domains of the SDQ-25. Parents SDQ-25 results differ significantly in regards to the emotional symptoms domain only (p = .023, after Bonferroni correction, the difference is insignificant). The study groups differ significantly within the 2nd evaluation in regards to hyperactivity/inattention domain (p = .026) and within the last evaluation in regards to emotional symptoms domain (p = .009). After Bonferroni correction the differences are insignificant. In general, parents and their children with AIS perceived patients’ mental health in a similar way. Patient and parent assessment of mental health was unchanged after a 12-month brace treatment period. Poor psychological outcome was associated with more severe spinal deformity, brace-wearing duration and age of patient.

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Can’t they like me as I am? Psychological interventions for children and young people with congenital visible disfigurement

Cited by 17 publications

References 23 publications

Craniofacial anomalies and mothers’ psychological functioning: The mediating role of social support

Craniofacial anomalies and mothers’ psychological functioning: The mediating role of social support

Opportunities and Challenges in Establishing a Cohort Study: An Example from Cleft Lip/Palate Research in the United Kingdom

Changes in Scoliosis Patient and Parental Assessment of Mental Health in the Course of Cheneau Brace Treatment Based on the Strengths and Difficulties Questionnaire

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