Burden of Care among Caregivers of Persons Living with HIV/AIDS in Rural Namibia: Correlates and Outcomes

Kalomo, Eveline Ndinelao; Liao, Minli

doi:10.1080/19371918.2017.1415180

Cited by 22 publications

(24 citation statements)

References 40 publications

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“…29 Moreover, other studies also stated that perceived stigma had a significant relationship with quality-of-life, where the higher the level of perceived stigma, the lower the quality-of-life for them. 30,31 Caregiver burdens in this study did not have a significant relation with quality-of-life of HIV children. This finding is not in accordance with previous studies, which found a significant relationship between caregiver burden and quality-of-life, where the higher the caregiver burden score, the lower the QoL value of HIV patients.…”

Section: Discussionmentioning

confidence: 51%

“…This finding is not in accordance with previous studies, which found a significant relationship between caregiver burden and quality-of-life, where the higher the caregiver burden score, the lower the QoL value of HIV patients. [31][32][33] The difference is possible because the caregiver keeps the health status of children with HIV confidential, 34 which is psychologically very helpful for the caregiver. 7 Their social life also does not experience problems despite many economic problems found in HIV cases.…”

Section: Discussionmentioning

confidence: 99%

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Quality-of-Life (QoL) of Indonesian Children Living with HIV: The Role of Caregiver Stigma, Burden of Care, and Coping

Putera¹,

Irwanto²,

Maramis³

2020

HIV

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Background: Treatment of children with HIV infection has increased rapidly by increasing the life span of HIV patients from baby to adult. Improving the quality-of-life (QoL) in children living with HIV is a priority of HIV management in children and caregivers of children living with HIV have important roles. Caregiver stigma, caregiver burden, and caregiver coping affect caregivers in treating children living with HIV. Objective: Analyzing the association of caregiver stigma, caregiver burden, and caregiver coping on QoL of Indonesian children living with HIV. Methods: Participants in this study were caregivers of Indonesian children living with HIV. Participants were measured for caregiver stigma, caregiver burden, caregiver coping, and QoL of Indonesian children living with HIV. The instrument used in measuring caregiver stigma was people living with HIV/AIDS and caregiver questionnaire, caregiver burden used Zarit Burden questionnaire, caregiver coping used F-COPES questionnaire, and QoL used PedsQL for children aged 2-18 years old. Measurement data were analyzed using logistic regression and independent t tests with P<0.05. Results: Indonesian children living with HIV in this study had an average age of 7.7±3.68 years and average participant age of 40.2±11.26 years. All participants stated that Indonesian children living with HIV tend to keep their health status confidential. Most QoL of Indonesian children living with HIV was good (71.7%), caregiver stigma value was 21.7±2.06, and caregiver burden level was moderate, of 50.9%. However, there was no significant association between caregiver stigma (β=0.064; P=0.548) and burden level (β=0.058; P=0.593) on QoL. On the other hand, caregiver coping value was 77.2±7.30, and there was a significant association of caregiver coping on QoL (β=−0.196; P=0.049). Conclusion: There is an association of caregiver coping on QoL of Indonesian children living with HIV, in which the higher the caregiver coping, the lower the QoL. Meanwhile, there is no significant association of caregiver stigma and burden on QoL of Indonesian children living with HIV.

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Section: Discussionmentioning

confidence: 51%

Section: Discussionmentioning

confidence: 99%

Quality-of-Life (QoL) of Indonesian Children Living with HIV: The Role of Caregiver Stigma, Burden of Care, and Coping

Putera¹,

Irwanto²,

Maramis³

2020

HIV

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“…Mereka harus menyisihkan waktu untuk membantu ODHA beraktivitas sehari-hari, perawatan medis (misal manajemen obat-obatan, mendampingi pasien ke rumah sakit atau puskesmas), dan memberikan dukungan secara emosional dan financial. Menjadi seorang caregiver ODHA membutuhkan penyesuaian lebih lanjut dalam keluarga, pekerjaan dan interaksi sosial (Kalomo & Liao, 2018).…”

Section: Konflik Peranunclassified

Beban Keluarga sebagai Caregiver Orang dengan HIV/AIDS

Barus

Simamora

Pardede

et al. 2020

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The role of the family as a caregiver of people living with HIV/AIDS can cause a lot of stress. The purpose of this study was to explore the family burden as a caregiver of people living with HIV/AIDS. This research is qualitative research with a descriptive phenomenology approach. This research was conducted at RSUP H. Adam Malik in Medan City. Participants in this study were 4 family members who care for family members infected with HIV who were taken by purposive sampling technique. Participants' inclusion criteria were ≥17 years of age who were able to speak Indonesian and were able to tell about the burdens experienced while caring for people living with HIV/AIDS. The themes found included psychological burdens, social burdens, family problems, and role conflicts. The research conclusions illustrate that families who are caregivers in carrying out their roles are not easy because they cause psychological burdens, social burdens, economic burdens, family problems, and role conflicts. Nurses can provide nursing interventions to increase caregiver coping to reduce the burden they experience.

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“…This literature does link experiences such as symptoms of depression to experiences of interpersonal and domestic violence (Kalomo et al, 2020), depression and HIV-related stigma (Kalomo, 2018), anxiety and HIV (Besthorn et al, 2018), depression among Namibian adolescents experiencing orphanhood (Ruiz-Casares et al, 2009), and general distress among adolescents living with HIV (Gentz et al, 2017, 2018). Critically, this body of literature centers contextual factors in understanding mental health across groups in Namibia by illuminating relationships between HIV and mental health (Gentz et al, 2017, 2018), experiences like gender-based violence (Kalomo et al, 2020), and caregiver involvement in health care (Kalomo & Liao, 2018). Absent and outside of the scope of these valuable studies, however, is attention to explanatory models of mental illness within Namibian cultural groups.…”

Section: Mental Illness and Psychological Services In Namibiamentioning

confidence: 99%

“…Family values and beliefs are also viewed as crucial aspects in informing what an individual may believe about treatment (Bartholomew, 2018). Further, related empirical efforts in Namibia have incorporated family members and caregivers (e.g., Kalomo & Liao, 2018) and others have drawn attention to close familial relationships among the Aawambo (e.g., Brown, 2011). Taken together with family roles in mental illness and treatment seeking (Bartholomew, 2018; Bartholomew & Gentz, 2019) and similar efforts in health research (Kalomo & Liao, 2018), inclusion of family members in these cases will help further illuminate the experience of omunanamwengu .…”

Section: Current Studymentioning

confidence: 99%

Omunanamwengu(The Mad One): A Multiple Case Study of Individual and Familial Experiences of Madness Among the Northern Namibian Aawambo

Bartholomew

2020

Journal of Cross-Cultural Psychology

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To understand mental illness in cultural contexts, research should focus on locally informed concepts of illness and the lived experiences of such conditions. Understanding mental illness, its prevalence, and its influence on people’s lives in Namibia represents one such context where attention to the lived experience of mental illness remains understudied. The purpose of the current study was to build upon ethnographic findings about mental illness as madness ( eemwengu) among the Namibian Aawambo. To that end, a multiple case study design was used to explore the lived experience of being omunanamwengu (the mad one). Data were collected from four cases that were bound by the experience of mental illness. Within each case, the individual experiencing illness ( omunanamwengu), family members, and both omunanamwengu and family members were interviewed formally (via a semi-structured interview protocol) or informally due to participants’ preferences for not being recorded. Using Stake’s suggested approach to multiple-case study cross-case analysis, each individual case is described and cross-case themes (Development and Symptoms of Mental Illness; Marginalization and Omunanamwengu; Family Roles in the Lives of the Distressed and Eemwengu; Belief in Treatment) were identified. Findings are discussed in light of the role of beliefs in treatment as well as family involvement, the potential influence of discrimination on mental illness, and implications for practice and cross-cultural psychology.

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Burden of Care among Caregivers of Persons Living with HIV/AIDS in Rural Namibia: Correlates and Outcomes

Cited by 22 publications

References 40 publications

<p>Quality-of-Life (QoL) of Indonesian Children Living with HIV: The Role of Caregiver Stigma, Burden of Care, and Coping</p>

<p>Quality-of-Life (QoL) of Indonesian Children Living with HIV: The Role of Caregiver Stigma, Burden of Care, and Coping</p>

Beban Keluarga sebagai Caregiver Orang dengan HIV/AIDS

Omunanamwengu(The Mad One): A Multiple Case Study of Individual and Familial Experiences of Madness Among the Northern Namibian Aawambo

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