Bringing epilepsy out of the shadows

Kale, Rajendra

doi:10.1136/bmj.315.7099.2

Cited by 124 publications

(55 citation statements)

References 4 publications

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“…sition of AEDs from private pharmacies or data regarding patients who obtain good control with subdoses or those who need higher doses or use more than one drug nor those who use antiepileptic medication to treat other diseases such as carbamazepine to treat chronic pain and mood disorders or even the fact that the public health system covers only 70% of the population in the two cities. Nonetheless, it is universally accepted [13][14][15] as a method for measuring the treatment gap and providing an estimate of how much should be invested in epidemiological studies on epilepsy, its control and the distribution of drugs.…”

Section: Discussionmentioning

confidence: 99%

Assessment of the epilepsy treatment gap in two cities of south-east of Brazil

Noronha

Marques

Borges

et al. 2004

Arq. Neuro-Psiquiatr.

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-Objective: To assess the epilepsy treatment gap in Campinas and São José do Rio Preto, two cities in the State of São Paulo, Brazil. Method: The treatment gap was estimated using the formula n1-n2/n1x100, where n1 was calculated using 1.86% prevalence and represented the number of individuals with epilepsy, while n2 represented the number of people who could be treated with an adult standard dose for a year utilizing the antiepileptic drugs supplied by the public health system. Results: Our estimates revealed that in 2001, approximately 50% of the population with epilepsy was treated with the recommended antiepileptic medication. Conclusion: These results suggest that a relevant percentage of patients with epilepsy are not untreated. Further epidemiological studies are needed to investigate the reasons for this treatment gap so that interventions can reduce this gap and improve the quality of life of patients with epilepsy.KEY WORDS: epilepsy, treatment, treatment gap, antiepileptic drugs, stigma.A lacuna de tratamento em epilepsia em duas cidades do sudeste do Brasil RESUMO -Objetivo: Estimar a lacuna de tratamento em epilepsia nas cidades de Campinas e São José do Rio Preto, interior do Estado de São Paulo. Método: Estimamos a lacuna de tratamento através da fór-mula n1-n2/n1x100, onde se utiliza o número de pessoas com epilepsia, calculado pela prevalência (n1), e a quantidade de pessoas que podem ser tratadas com a dose padrão para adultos das DAEs, distribuídas no período de um ano na localidade (n2). Usamos a prevalência estimada de 1,86% e consumo de medicação antiepiléptica fornecida pela rede básica de saúde nestas duas cidades. Resultados: Nossas estimativas mostram que somente em torno de metade da população com epilepsia foi tratada em 2001 usando doses preconizadas de medicação antiepiléptica. Conclusão: A nossa estimativa aponta que uma parcela importante dos pacientes com epilepsia não está sendo tratada no nosso meio. Estudos epidemiológicos futuros devem explorar os motivos desta lacuna de tratamento para que intervenções sejam realizadas para melhorar a qualidade de vida dos pacientes com epilepsia. PALAVRAS-CHAVE: epilepsia, tratamento, lacuna de tratamento, drogas antiepilépticas, estigma.

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Section: Discussionmentioning

confidence: 99%

Assessment of the epilepsy treatment gap in two cities of south-east of Brazil

Noronha

Marques

Borges

et al. 2004

Arq. Neuro-Psiquiatr.

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“…Na China, 31% das pessoas pesquisadas recentemente consideraram que pessoas com epilepsia não deveriam ser empregadas. [29][30] Este estigma imposto sobre pessoas com epilepsia afeta as suas famílias, vida social, emprego, perspectivas conjugais e auto-estima. A conseqüência é que as pessoas com epilepsia comumente escondem o seu problema e podem deixar de procurar tratamento médico e aderir corretamente a este, contribuindo de maneira significativa para a lacuna de tratamento.…”

Section: Depressão E Epilepsiaunclassified

Aspectos epidemiológicos e relevância dos transtornos mentais associados à epilepsia

Neto

Marchetti

2005

Rev. Bras. Psiquiatr.

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Aspectos epidemiológicos e relevância dos transtornos mentais associados à epilepsia Epidemiologic aspects and relevance of mental disorders associated with epilepsyResumo Epilepsia é o mais freqüente transtorno neurológico sério, atingindo 50 milhões de pessoas no mundo, 40 milhões delas em países em desenvolvimento. Embora seja um problema predominantemente tratável, nestes países a maioria dos pacientes permanece sem tratamento. Provavelmente, uma das principais causas para isto seja o estigma que atinge as pessoas com epilepsia. Tal fato se agrava ainda mais quando à epilepsia se associam os transtornos mentais, que ocorrem com prevalência aumentada. Os pacientes com epilepsia e transtornos mentais sofrem o que chamamos de "duplo estigma", que freqüentemente os deixa sem tratamento. É provável, particularmente em países em desenvolvimento, que psiquiatras se defrontem com pacientes com epilepsia nos diferentes locais de atendimento. O presente estudo tem como objetivo revisar a epidemiologia dos transtornos mentais associados à epilepsia, determinando a lacuna de tratamento e o impacto destes transtornos na qualidade de vida dos pacientes.Descritores: Epilepsia/epidemiologia; Transtornos mentais/epidemiologia; Saúde pública; Efeitos psicossociais da doença; Qualidade de vida A b s t r a c t Epilepsy is the most common serious neurological disorder. Worldwide, around 50 million people have epilepsy, 40 million of which in developing countries. Though epilepsy is predominantly treatable, most patients in these countries remain without treatment. It is likely that one of the main reasons is the stigma associated with epilepsy. This problem increases when mental disorders are associated with epilepsy, a fairly frequent occurrence. Patients with epilepsy and mental disorders are exposed to a "double stigma", which frequently leads to complete absence of treatment. It is probable that, particularly in developing countries, psychiatrists will be involved with the treatment of people with epilepsy. Our purpose was to review the epidemiology of mental disorders associated with epilepsy, its treatment gap and impact upon quality of life of the patients.

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“…In Europe, there are approximately 6 million people having epilepsy and around 100,000 children and adolescents are newly diagnosed every year [1] . Epilepsy is accompanied by significant stigmatization and according to the famous Indian neurologist Rajendra Kale "The History of Epilepsy can be summarized as 4,000 years of Ignorance, Superstition and Stigma, followed by 100 years of Knowledge, Superstition and Stigma" [2] . Despite some improvement in recent decades, about 50 % of people with epilepsy still feel stigmatized [3] and in many cases the stigma associated with epilepsy is harder to live with than the condition itself [4] .…”

Section: Introductionmentioning

confidence: 99%

Specifics of Children With Epilepsy in School Environment

Brabcová

Kohout

2015

International Journal of Neurology Research

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Our editorial focuses on specifics of children with epilepsy in school environment. Epilepsy and its common co-morbidities (learning disabilities, intellectual disability etc.) are introduced as a highlyrisk factor for school-life and academic achievement of the affected children. Attention is devoted to policy relevance of this topic and to important documents addressing it in this context. The state-ofart of three important aspects of the topic (the academic achievement and academic self-concept of children with epilepsy, the knowledge of, familiarity with and attitudes towards epilepsy among teachers and the role of classmates and parents of children with epilepsy) is thoroughly discussed in this editorial. Finally, a complex approach to this topic based on conceptual and structural modelling is promoted and any recommendations for a further research in this field are briefly outlined.

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Bringing epilepsy out of the shadows

Cited by 124 publications

References 4 publications

Assessment of the epilepsy treatment gap in two cities of south-east of Brazil

Assessment of the epilepsy treatment gap in two cities of south-east of Brazil

Aspectos epidemiológicos e relevância dos transtornos mentais associados à epilepsia

Specifics of Children With Epilepsy in School Environment

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