Book Reviews / Compte Rendus: Pathways to Inclusion: Building a New Story with People and Communities

LordJohn,; HutchisonPeggy,; SylvestreJohn,

doi:10.7870/cjcmh-2008-0010

Cited by 9 publications

(12 citation statements)

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“…Why is it that researchers with good intentions are exclusive and use language that is hurtful to those who have disabilities? Why is it that there is a lack of research that includes disability issues in major international development journals and reports on poverty (Yeo and Moore 2003) even though poverty is one of the key issues for disabled people (Bach 2003;Dunn 2006;Elwan 1999;Lord and Hutchison 2007;Prince 2009)? Perhaps the reason is that their voices have not been heard enough.…”

Section: Introductionmentioning

confidence: 98%

We did it together: a participatory action research study on poverty and disability

Buettgen

Richardson²,

Beckham³

et al. 2012

Disability & Society

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This article presents the perspective of both non-disabled and developmentally disabled people working together in a research project on poverty and disability. Our study used a participatory action research approach that challenges the norm of exclusion in the research process. Control of the research agenda has been inclusive and shared to varying degrees in accordance with the needs and desires of the members of an advisory committee of developmentally disabled people living with low income. We reflect on our process of working together according to four principles of participatory action research with disabled people. We discuss our successes and challenges enacting these principles in the hopes that future researchers can build upon our experience to be more inclusive of developmentally disabled people in their work. Points of interest• This article presents the perspective of both non-disabled and developmentally disabled people working together in a research project on poverty and disability. • Our study aimed to help raise the voices of developmentally disabled people living with low income and support the development of poverty-reduction strategies to meet their needs and priorities. • In this paper we discuss how we worked together to develop the research project, conduct focus groups, analyze results and use what we have learned to raise awareness and help make change in relation to poverty and disability issues. • We reflect on our process of working together according to four principles of participatory action research with disabled people to describe our successes and challenges.

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Section: Introductionmentioning

confidence: 98%

We did it together: a participatory action research study on poverty and disability

Buettgen

Richardson²,

Beckham³

et al. 2012

Disability & Society

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“…Significantly, disability studies is forging ahead supported by persons with disabilities and the disability community, evident by the support of grassroots organizations (Lord & Hutchison, 2011;Park, Monteiro, & Kappel, 2003). The Disability Studies Program at the University of Windsor will be enhanced by the further development of a community advisory board.…”

Section: Support From Persons With Disabilities and Community Organizmentioning

confidence: 99%

Creation of a Canadian Disability Studies Program: A Convergence of Multiple Pathways

Carter

Leslie

Angell

et al. 2012

CJDS

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This paper reports on the beginnings of the Disability Studies Program, University of Windsor (2011a), by describing the converging pathways of several events. Influential collaborative processes that occurred between major disability organizations and academics with the courage to promote change proceeded program development in disability studies. Choosing a philosophical approach, based on the social model of disability assured a critical approach to studying disability, enabling the program to address the desire to confront existing oppression and to produce graduates with expertise in many areas relevant to this goal. Most importantly, supportive individuals and organizations from the community made the Disability Studies Program, at the University of Windsor, a reality. The authors summarize the developments that preceded and followed the inauguration of the Disability Studies Program and make suggestions about further improvements.

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“…While government restructuring and fiscal pressures on charitable service providers reflects the neo-liberal narrative "paradoxically, however, this policy has also articulated some of the grassroots pressures for change" (Barnes and Walker, 1996: 2). Transformation reflects the success of the social movement pressures by family advocates and end-users to end state-sponsored segregation and institutionalization of people with disabilities (Borbasi et al, 2008;Lord and Hutchison, 2007). State-run institutions were seen as part of a broader set of public policies which systematically discriminated against people with disabilities.…”

Section: End-users As Industrial Relations Actorsmentioning

confidence: 99%

End-users, Public Services, and Industrial Relations: The Restructuring of Social Services in Ontario

Hickey

2012

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Résumé de l'article RésuméDans la foulée de la crise financière et économique, le gouvernement de l'Ontario s'est engagé à réduire les dépenses publiques. Sur la base d'une étude détaillée, cet article illustre comment, dans ce contexte, les usagers s'imposent comme des acteurs-clés des transformations qui touchent le secteur des services d'aide et de support aux personnes souffrant d'un handicap. L'étude permet ainsi de mieux saisir le rôle important, mais complexe, joué par les usagers dans les transformations qui ont lieu dans les formes de prestations des services et de régulation du travail. Les usagers ont un impact significatif à au moins trois niveaux du système des relations industrielles (Bellemare, 2000). Au niveau stratégique, ils sont des acteurs de la gouvernance des réseaux d'élaboration des politiques publiques sans pour autant délaisser les activités traditionnelles de lobbying. Les organisations représentant les usagers ont, par exemple, joué un rôle central dans la fermeture des établissements publics de traitement des personnes avec des déficiences intellectuelles en faveur de l'insertion dans la communauté. Au niveau organisationnel ensuite, les usagers occupent de plus en plus le rôle d'employeur. Cela peut prendre la forme d'un régime de cogestion des services avec, en plus, l'inscription des droits des usagers dans les conventions collectives de travail ou encore celui d'employeur à part entière et ainsi se substituer aux agences gouvernementales. Enfin, les usagers participent à la transformation du procès de travail lorsque, par exemple, ils redéfinissent la finalité du rôle d'intervenant social pour y inclure des objectifs complexes de développement de la personne et d'inclusion sociale. Bref, le cas du secteur des services aux personnes handicapées illustre que les réponses à la crise financière sont façonnées par l'action des usagers qui doivent être considérés comme des acteurs du système des relations industrielles.

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Book Reviews / Compte Rendus: Pathways to Inclusion: Building a New Story with People and Communities

Cited by 9 publications

References 0 publications

We did it together: a participatory action research study on poverty and disability

We did it together: a participatory action research study on poverty and disability

Creation of a Canadian Disability Studies Program: A Convergence of Multiple Pathways

End-users, Public Services, and Industrial Relations: The Restructuring of Social Services in Ontario

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