Biographical disruption associated with multiple sclerosis: Using propensity scoring to assess the impact

Green, Gill; Todd, Jennie; Pevalin, David J.

doi:10.1016/j.socscimed.2007.03.007

Cited by 51 publications

(38 citation statements)

References 36 publications

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“…These include bracketing off illness, and doing things such as going to work, doing household tasks and participating in the social activities that they had done prior to diagnosis to achieve normalisation and maintain a pre-diagnosis sense of self. Thus, cancer is not dissimilar to other illnesses, which have been found to represent biographical disruption including stroke (Faircloth et al, 2004) and multiple sclerosis (Green, Todd, and Pevalin, 2007). The study also adds weight to the body of evidence suggesting that biographical disruption is context specific (Faircloth et al, 2004;Pound et al, 1998;Sinding and Wiernikowski, 2008;Williams, 2000).…”

Section: The Importance Of Contextmentioning

confidence: 58%

Disrupted lives and threats to identity: The experiences of people with colorectal cancer within the first year following diagnosis

Hubbard¹,

Kidd²,

Kearney³

2010

Health (London)

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Fax: +44(0)1786 460060 Word count 7853Dr Gill Hubbard is a senior research fellow who leads the 'Cancer as a long-term condition' research programme at CCRC. She has a background in sociology and social policy.Dr Lisa Kidd is a research fellow at CCRC. She has a background in nursing and has recently been awarded a Doctor of Philosophy for a study of perceived control and involvement in self care for people with cancer.Professor Nora Kearney is Director of CCRC. She has a background in nursing and an extensive track record in cancer care research, in particular, in symptom improvement and patient experiences. 1 Disrupted lives and threats to identity: The experiences of people with colorectal cancer within the first year following diagnosis AbstractIn this paper we focus on the experiences of 18 people with colorectal cancer, involved in a large longitudinal qualitative study to explore people's experiences of cancer within the first year following diagnosis. Three depth interviews over the course of the year were carried out.During analysis, we drew on biographically informed approaches of understanding chronic illness, particularly the work of Bury (1982;2001;1991) and Charmaz (1994;1983;1995;2002) to explore the extent to which people within the first year following diagnosis experience cancer as biographically disruptive. We explore the biographical work that individuals carry out in the context of an assault on their identity and discuss the relevance of the concept biographical disruption for people who experience cancer as an acute, chronic and/or life-threatening condition. We also discuss the concept's relevance for people who have lived a hard life and, hence, may anticipate these types of disruptions in their lives and experience their impact differently. We conclude that universal application of the concept biographical disruption to the experience of cancer within the first year of diagnosis is not appropriate. This study has implications for cancer services, in particular, the findings call for the development of interventions to support those people who experience cancer as an assault on their identity.

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Section: The Importance Of Contextmentioning

confidence: 58%

Disrupted lives and threats to identity: The experiences of people with colorectal cancer within the first year following diagnosis

Hubbard¹,

Kidd²,

Kearney³

2010

Health (London)

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“…According to the widely used classification based on the BDI score 81 patients (39.5%) have no depression (0-8), 77 patients (37.6%) have slightly to mild depressive symptoms (9)(10)(11)(12)(13)(14)(15)(16)(17)(18)(19) and 47 patients (22.9%) have severe to extremely severe depression (20-63). The SCQ revealed back pain in 57 patients (28%), mood related or depressive symptoms in 54 patients (26%), high blood pressure in 27 patients (13%), respiratory disorders in 15 patients (7%) and joint disorders in 12 patients (6%).…”

Section: Patient Datamentioning

confidence: 99%

“…Several disease-specific instruments to assess selected aspects of functioning and disability associated with MS are described in literature, e.g. social status [9,10], quality of life [19], health policy and management [21], prevalence of cognitive dysfunction and effects on daily living activities [1], impact of mood disorders and fatigue [19], psychosocial functioning with chronic pain [23], perceived physical and psychological impact [14] and economic questions like resource consumption, work capacity, health outcome and cost-of-illness (for review see [8]). Besides, being heterogeneous regarding the concepts included and the precision with which these concepts were defined, these instruments were developed to measure disease consequences and not to assess functioning and health in relation to the disease process, nor to assess the importance of environmental factors.…”

Section: Introductionmentioning

confidence: 99%

Characterization of functioning in multiple sclerosis using the ICF

Coenen²,

et al. 2009

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The objective of this study was to explore whether it is possible to describe based on the International Classification of Functioning, Disability and Health (ICF) relevant aspects of functioning and disability affected in multiple sclerosis (MS) as well as environmental factors relevant to persons with MS. The specific aim was to identify most relevant 'Body functions', 'Body structures', 'Activities and participation', as well as 'Environmental factors' in patients with MS using the ICF. Additionally, different MS forms were compared with respect to the identified problems. A multi-centre study was conducted in an empirical cross-sectional design. Data from 205 individuals with MS were collected in rehabilitation centres: disease related data, socio-demographic data, single interviews based on the Extended ICF Checklist and a patient questionnaire including ratings on general health and functioning status, Beck Depression Inventory II (BDI-II) and Comorbidity Questionnaire (SCQ). The 129 ICF categories identified represent a comprehensive classification of functioning in MS from the clinical perspective. Differences between MS forms were observed for several ICF categories, EDSS, general health and functioning status, but not for BDI and SCQ. The study showed that it is possible to describe based on the ICF the spectrum in functioning and disability affected in MS as well as environmental factors relevant to persons with MS.

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“…Bury (1982) articulated six features of the experience of rheumatoid arthritis that combined to disrupt normal life. Biographical disruption has since been investigated in relation to a range of disease and illness states (Green, Todd, & Prevalin, 2007;Hopkins, 2004;Rajaram, Hill, Rave, & Crabtree, 1997;Richardson, Ong, & Sim, 2006), and in some research the concept has been contested and modified (Carricarburu & Pierret, 1995;Faircloth, Boylstein, Rittman, Young, & Gubrium, 2004).…”

Section: Experiencing Cancer In Oldmentioning

confidence: 99%

Experiencing Cancer in Old Age: A Qualitative Systematic Review

2009

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Our purpose in this study was to find, report, and interpret the results of qualitative studies which investigated the experiences of older people living with cancer. We conducted systematic literature searches, identified and extracted the findings from 11 studies, and analyzed them systematically. We interpreted the findings to suggest that living with cancer in old age is to live in a perpetual state of ambiguity. The experience is characterized by a sense of disintegration, diminished identity, suffering, and social retraction. These experiences are balanced by sources of comfort and strength found within the self and among diverse relationships. The results of our study illuminate the complex, multidimensional character of living with cancer in old age. They show that older people living with cancer are resilient as well as vulnerable. We argue for changes in attitudes and behavior that will enable health care professionals to foster older peoples' resilience. In this article we report the purpose, design, conduct, and findings of a systematic search and review of qualitative research literature that investigated older peoples' experiences of living with cancer.Cancer has its highest incidence in older populations. There is extensive literature reporting the incidence and prevalence of cancers in older age groups, along with approaches to treatment and the effects and management of comorbidity (Bennahum, Forman, Vellas, & Albarede, 1997;Extermann, Overcash, Lyman, Parr, & Balducci, 1998;Satariano & Silliman, 2003). However, the subjective perceptions of older individuals undergoing the experience of cancer remain largely unknown. This review provides a basis for developing clinical health services that are based on older peoples' perceived and expressed needs.To make the most effective use of research findings, approaches to synthesizing the results of many studies on the same topic have increasingly found favor and, in quantitative research, sophisticated methods of meta-analysis have been developed which aim to produce a definitive set of findings from a wide range of work. In qualitative research, also, such an approach is deemed to be an essential part of increasing the usefulness and relevance of findings (Sandelowski, Docherty, & Emden, 1997), though the methodology is at an earlier stage of development (Dixon-Woods, Booth, & Sutton, 2007;Popay & Roën, 2003) and there has been debate about whether the approach is epistemologically appropriate (Campbell et al., 2003;McDermott, Graham, & Hamilton, 2004;Sandelowski et al., 1997). This approach is termed variously "metastudy," "metasynthesis," and "research integration." It is an approach to the literature that is more than a critical review: it is an attempt to integrate findings across studies to arrive at new understandings.Our reading of methodological literature in the field of qualitative reviewing and synthesis (Barbour, 2001;Booth, 2001;Britten et al., 2002;Campbell et al., 2003;Noblit & Hare, 1988;Paterson, Thorne, Canam, & Jillings, 2001...

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Biographical disruption associated with multiple sclerosis: Using propensity scoring to assess the impact

Cited by 51 publications

References 36 publications

Disrupted lives and threats to identity: The experiences of people with colorectal cancer within the first year following diagnosis

Disrupted lives and threats to identity: The experiences of people with colorectal cancer within the first year following diagnosis

Characterization of functioning in multiple sclerosis using the ICF

Experiencing Cancer in Old Age: A Qualitative Systematic Review

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