Characterization of functioning in multiple sclerosis using the ICF

Holper, Lisa; Coenen, Michaela; Weise, Andrea; Stucki, Gerold; Cieza, Alarcos; Kesselring, Jürg

doi:10.1007/s00415-009-5282-4

Cited by 110 publications

(87 citation statements)

References 34 publications

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“…The SCQ determines if the co-morbidity limits activities and whether treatment is received. The SCQ has previously been used in a study of people with MS [32]. In our study, two arthritic co-morbidities were combined into one.…”

Section: Co-morbiditiesmentioning

confidence: 99%

Lifestyle factors, demographics and medications associated with depression risk in an international sample of people with multiple sclerosis

et al. 2014

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Background: Depression is the most common co-morbidity for people with Multiple Sclerosis (MS); irrespective of disease severity, depression has the greatest impact on quality of life. An emerging paradigm in the treatment of depression is lifestyle medicine. There is significant potential to prevent and treat depression through modification of lifestyle risk factors for people with MS. This study sought to understand the association between lifestyle risk factors, medication and depression risk through the analysis of self-reported data from a large international sample of people with MS. Methods: This cross-sectional analysis recruited a total of 2459 participants via Web 2.0 platforms. Survey data included socio-demographics; a range of lifestyle risk factors; medication; disease variables and depression risk using the Patient Health Questionnaire-2 (PHQ-2). Results: In total approximately one fifth (19.3%) of our sample screened positive for depression (PHQ-2 score ≥3). Several demographic factors were significantly associated with this depression risk in bivariate analysis. Regression analyses showed that poor diet, low levels of exercise, obesity, smoking, marked social isolation and taking interferon were associated with greater depression risk. Participants who supplemented with omega 3s, particularly flaxseed oil, had frequent fish consumption, supplemented with vitamin D, meditated, and had moderate alcohol consumption had significantly reduced depression risk. Conclusions: This study demonstrates a significant association between modifiable lifestyle factors and depression risk. Planned longitudinal follow up may clarify causality. Clinicians and people with MS should be aware of the wide range of modifiable lifestyle factors that may reduce depression risk as part of a comprehensive secondary and tertiary preventive medical approach to managing MS.

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Section: Co-morbiditiesmentioning

confidence: 99%

Lifestyle factors, demographics and medications associated with depression risk in an international sample of people with multiple sclerosis

et al. 2014

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“…All these components are affected by interactions between health conditions and contextual factors, including personal and environmental influences. 31 Linking MS to ICF describes the whole health experience of MS patients and provides a uniform language and framework to describe MS-related health. 31 As such, patient activation in MS should include structured exercise to improve patient's activity/capacity as well as a behavioural change to improve patient's participation in daily life.…”

Section: Patient Activation In Self-management: the Opportunities Of mentioning

confidence: 99%

The importance of a multi-disciplinary perspective and patient activation programmes in MS management

et al. 2016

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Background: Multiple sclerosis (MS) is a progressive disease associated with a large variety of symptoms and changing patients' needs during the disease course. In order to provide appropriate care in every disease stage and let patients live their lives to the full, a multi-disciplinary approach and patient activation is needed. Objective: To summarise the multi-disciplinary perspective of MS, with focus on the organisation of a multi-disciplinary care team and possibilities to support patient activation. Methods: This review reflects the content of the presentations, audience polling results and discussions on the multi-disciplinary perspective of MS during the second Pan-European MS Multi-stakeholder Colloquium. Results: In many countries, the neurologist with or without the support of an MS nurse is responsible for the long-term care of MS patients. When needed, they should refer to other (non-)medical specialists. However, the patient should be empowered as well to manage his/her disease and to implement a physically active lifestyle in order to improve treatment outcomes and quality of life. Conclusion: To create equal access to care for MS patients across Europe, evidence-based standards of care, symptom self-monitoring tools and educational programmes for patients and healthcare professionals including non-medical treatment strategies should be developed at the European level.

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“…(2) The patient perspective was explored through a qualitative focus group study performed with 27 individuals with MS [20]. (3) The expert perspective was captured with an internet-based expert survey including 173 health professionals from 46 countries with at least 5 years of expertise in the treatment or rehabilitation of people with MS. (4) The clinical perspective was explored by a multicentre empirical study in Germany and Switzerland by applying ICF categories in 205 people with MS [21]. Based on the empirical study, 139 second-level categories were identified as candidate categories.…”

Section: Preparatory Studiesmentioning

confidence: 99%

The development of ICF Core Sets for multiple sclerosis: results of the International Consensus Conference

et al. 2011

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To report on the results of an evidence-based International Consensus Conference to develop the Comprehensive and Brief ICF Core Set for MS. A formal and iterative decision-making and consensus process was undertaken, involving the integration of evidence from preparatory studies (expert survey, systematic literature review, qualitative study, empirical cross-sectional study) and expert opinion. The decision-making and consensus process included discussions and voting in working groups and plenary sessions involving selected international experts from different health professions. Twenty-one experts from 16 countries selected 138 ICF categories for the Comprehensive ICF Core for MS (40 Body functions, 7 Body structures, 53 Activities and Participation categories and 38 Environmental factors) and 19 categories for the Brief ICF Core Set for MS (8 Body functions, 2 Body structures, 5 Activities and Participation categories, 4 Environmental factors). An evidence-based and formal decision-making consensus process led to the approval of ICF Core Sets for MS which should be further validated.

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Characterization of functioning in multiple sclerosis using the ICF

Cited by 110 publications

References 34 publications

Lifestyle factors, demographics and medications associated with depression risk in an international sample of people with multiple sclerosis

Lifestyle factors, demographics and medications associated with depression risk in an international sample of people with multiple sclerosis

The importance of a multi-disciplinary perspective and patient activation programmes in MS management

The development of ICF Core Sets for multiple sclerosis: results of the International Consensus Conference

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