Being adults with cerebral palsy: results of a multicenter Italian study on quality of life and participation

Pagliano, Emanuela; Casalino, Tiziana; Mazzanti, Sara; Bianchi, Elisa; Fazzi, Elisa; Picciolini, Odoardo; Frigerio, Andrea; Rossi, Andrea; Gallino, Francesca; Villani, Ambra; Landi, Nerina; Roberti, Luisa; Militerni, Roberto; Brina, Carlo Di; Tornetta, L.; Martielli, Michela; Brizio, Margherita; Rodocanachi, Marina; Tessarollo, Valeria; Galli, Jessica; Dusi, Elvira; Meschini, Leonora; Malinconico, Elena; Baranello, Giovanni; Anderloni, A.; Fedrizzi, Ermellina

doi:10.1007/s10072-021-05063-y

Cited by 8 publications

(6 citation statements)

References 24 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…28,33,34,37,[40][41][42]44,49,69,[71][72][73][74][75][76][77][78] The prevalence of epilepsy among ambulatory adults was 30.0%; among nonambulatory adults, it was 25.6%. 37,79 The prevalence of epilepsy among adults without intellectual disability was 21.8% and 33.0%; among adults with intellectual disability, it was 52.9%. 37,79 The prevalence of migraine was 16.2%.…”

Section: Diseases Of the Nervous Systemmentioning

confidence: 99%

“…37,79 The prevalence of epilepsy among adults without intellectual disability was 21.8% and 33.0%; among adults with intellectual disability, it was 52.9%. 37,79 The prevalence of migraine was 16.2%. 44 T A B L E 3 Incidence of chronic conditions among adults with cerebral palsy and comparison to adults without cerebral palsy.…”

Section: Diseases Of the Nervous Systemmentioning

confidence: 99%

See 1 more Smart Citation

Prevalence and incidence of chronic conditions among adults with cerebral palsy: A systematic review and meta‐analysis

2023

Develop Med Child Neuro

View full text Add to dashboard Cite

Data from several countries indicate that most children with cerebral palsy (CP) survive well into adulthood. [1][2][3] Despite this, CP was historically considered a childhood condition with most research on the topic of CP focusing on children. In 2009, the importance of addressing the health needs of adults with CP was discussed in a special issue of Developmental Medicine & Child Neurology. At the time, authors identified that there was little research examining the risk of secondary conditions among adults with CP. [4][5][6][7] Encouragingly, as awareness and acknowledgement of the ongoing health needs of adults with CP increased, since 2009 the volume of research examining the health of adults with CP also rapidly increased.In 2021, a review exploring the risk of neurological conditions among adults with CP identified that adults with CP experience increased risk of conditions such as stroke and myelopathy, decline in mobility, chronic fatigue, and pain. 8 A meta-analysis published in 2020 indicated that approximately 23% of adults with CP were obese, 28% had epilepsy and asthma, 21% had hypertension, and 65% had pain. 9 In 2018, a review examined the burden of cardiovascular disease, cancer, chronic respiratory disease, and diabetes

show abstract

Section: Diseases Of the Nervous Systemmentioning

confidence: 99%

Section: Diseases Of the Nervous Systemmentioning

confidence: 99%

Prevalence and incidence of chronic conditions among adults with cerebral palsy: A systematic review and meta‐analysis

2023

Develop Med Child Neuro

View full text Add to dashboard Cite

show abstract

“…Little is known about the specifics of psychological morbidities among individuals living with Cerebral Palsy (CP), but cerebral palsy has been linked to decreased quality of life. Pagliano et al [4] reported that the more severe the CP, the more that patients reported intense challenges to mobility, autonomy, and self-care. On a positive note, there were gradual improvements in several qualityof-life aspects over the years, for example improvements in areas of academic attainment and employment.…”

Section: Quality Of Life In Cerebral Palsymentioning

confidence: 99%

“…Some of the subjects did not report these issues when filling out questionnaires but divulged this information in face-toface interviews. Overall, Pagliano et al [4] suggested a need to avoid an exclusive focus on motor function goals, and rather to promote strategies that facilitate communication, participation, autonomy, and social relations [4]. With time, individuals living with cerebral palsy are at heightened risk for several chronic health conditions such as secondary comorbidities; these may develop due to or be influenced by the disability, the presence of impairment, and/or the process of aging [4].…”

Section: Quality Of Life In Cerebral Palsymentioning

confidence: 99%

See 1 more Smart Citation

Brief Review: Psychological Health and Life Quality of Cerebral Palsy

Gentile

2022

AJBSR

View full text Add to dashboard Cite

Cerebral palsy continues to be the most common cause of disability developing in infancy. How such a complex disorder affects adult life raises important questions on the critical issues of consideration and the most appropriate care pathway beginning in early childhood. Persons with cerebral palsy have multiple challenges beyond performing motor skills and achieving physical capabilities. Most individuals also report various psychosocial stressors, primarily those which are lifelong. Furthermore, mental health issues occur more commonly in this patient subset, as do struggles with employment and education. Often the severity of challenges correlates to the magnitude of the cerebral palsy. The prognosis of individuals with cerebral palsy has improved over the last three decades and Cerebral palsy should therefore be considered as a lifelong condition. To promote healthy aging across their lifespan, intervention programs should be considered to improve physical well-being, and care should be taken to maintain their positive mental health.

show abstract

Does exercise affect quality of life and participation of adolescents and adults with cerebral palsy: a systematic review

Czencz

Shields

Wallen

et al. 2022

Disability and Rehabilitation

View full text Add to dashboard Cite

Being adults with cerebral palsy: results of a multicenter Italian study on quality of life and participation

Cited by 8 publications

References 24 publications

Prevalence and incidence of chronic conditions among adults with cerebral palsy: A systematic review and meta‐analysis

Prevalence and incidence of chronic conditions among adults with cerebral palsy: A systematic review and meta‐analysis

Brief Review: Psychological Health and Life Quality of Cerebral Palsy

Does exercise affect quality of life and participation of adolescents and adults with cerebral palsy: a systematic review

Contact Info

Product

Resources

About