Barriers to early identification of autism in Brazil

Ribeiro, Sabrina Helena Bandini; Paula, Cristiane Silvestre de; Bordini, Daniela; Mari, Jair J.; Caetano, Sheila C.

doi:10.1590/1516-4446-2016-2141

Cited by 48 publications

(70 citation statements)

References 14 publications

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“…Factors associated with age at ASD diagnosis. Of the 56 studies, 10 did not report any influencing factors on age at diagnosis (Cawthorpe, 2018;Garrido et al, 2018;Hausman-Kedem et al, 2018;Lo et al, 2017;Martinez et al, 2018;Masri et al, 2013;May et al, 2017;Mpaka et al, 2016;Nadeem et al, 2019;Ribeiro et al, 2017). However, 46 studies reported many possible influencing factors on age at ASD diagnosis, including type of ASD diagnosis, additional diagnoses and gender among the most frequently reported (Supplemental Material 2).…”

Section: Additional Analysesmentioning

confidence: 99%

Age at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019

Hof

Tisseur²,

Berckelear-Onnes

et al. 2020

Autism

254

109

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Between 1990 and 2012, the global mean age at diagnosis of autism spectrum disorder ranged from 38 to 120 months. Measures have since been introduced to reduce the age at autism spectrum disorder diagnosis, but the current global mean age is unknown. This review and meta-analysis report the average age at diagnosis from studies published between 2012 and 2019. We initially identified 1150 articles, including 56 studies that reported the mean or median age at diagnosis across 40 countries (n = 120,540 individuals with autism spectrum disorder). Meta-analysis results (on 35 studies, including 55 cohorts from 35 countries, n = 66,966 individuals with autism spectrum disorder) found a current mean age at diagnosis of 60.48 months (range: 30.90–234.57 months). The subgroup analysis for studies that only included children aged ⩽10 years (nine studies, including 26 cohorts from 23 countries, n = 18,134 children with autism spectrum disorder) showed a mean age at diagnosis of 43.18 months (range: 30.90–74.70 months). Numerous factors may influence age at diagnosis and were reported by 46 studies, often with conflicting or inconclusive findings. Our study is the first to ascertain the global average age at autism spectrum disorder diagnosis from a meta-analysis. Continued efforts to lower the average age at autism spectrum disorder diagnosis are needed. Lay abstract We currently assume that the global mean age at diagnosis of autism spectrum disorder ranges from 38 to 120 months. However, this range is based on studies from 1991 to 2012 and measures have since been introduced to reduce the age at autism spectrum disorder diagnosis. We performed a systematic review and meta-analysis (statistical analysis that combines the results of multiple scientific studies) for studies published between 2012 and 2019 to evaluate the current age at autism spectrum disorder diagnosis. We included 56 studies that reported the age at diagnosis for 40 countries (containing 120,540 individuals with autism spectrum disorder). Results showed the current mean age at diagnosis to be 60.48 months (range: 30.90–234.57 months) and 43.18 months (range: 30.90–74.70 months) for studies that only included children aged ⩽10 years. Numerous factors that may influence age at diagnosis (e.g. type of autism spectrum disorder diagnosis, additional diagnoses and gender) were reported by 46 studies, often with conflicting or inconclusive results. Our study is the first to determine the global average age at autism spectrum disorder diagnosis from a meta-analysis. Although progress is being made in the earlier detection of autism spectrum disorder, it requires our constant attention.

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Section: Additional Analysesmentioning

confidence: 99%

Age at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019

Hof

Tisseur²,

Berckelear-Onnes

et al. 2020

Autism

254

109

View full text Add to dashboard Cite

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“…Because of various barriers, children with ASD often do not receive a confirmatory diagnosis until preschool age, especially in LMICs. In a Brazilian survey, Ribeiro et al 67 found that most mothers sought help within 3 months of first suspicion and mentioned their concerns to pediatricians, but only one-third of such children were referred for further evaluation of ASD. The authors reported that in many instances, mothers were told by their pediatricians that "children should not be compared to each other" and that "boys have a slower development rate or are more agitated than girls."…”

Section: Figurementioning

confidence: 99%

Prevalence of Autism Spectrum Disorder in Preterm Infants: A Meta-analysis

et al. 2018

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“…The questions related to the environment had the least positive answers. These data reflect the families' concern in the financial resources to guarantee the child's access to health care, education, and leisure services; which can further intensify parental stress (10)(11)(12)(13)(14)(15) .…”

Section: Discussionmentioning

confidence: 77%

Interferência do meio comunicativo da criança com transtorno do espectro do autismo na qualidade de vida de suas mães

Moretto

Ishihara

Ribeiro

et al. 2020

CoDAS

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RESUMO Objetivo A Organização Mundial de Saúde define a qualidade de vida como a percepção que o indivíduo tem de sua posição na vida dentro do contexto cultural e do sistema de valores nos quais ele está inserido. Ela está intrinsicamente relacionada aos objetivos, expectativas, padrões e preocupações deste indivíduo. Sabe-se que, quando um membro da família é acometido por alguma doença, a qualidade de vida de todos ao seu redor sofre forte impacto. Uma das grandes preocupações das famílias em relação ao desenvolvimento da criança com Transtorno do Espectro do Autismo (TEA) é a ausência da fala. Sendo assim, o objetivo deste estudo foi analisar a interferência do meio comunicativo da criança com TEA na qualidade de vida de suas mães. Método Trata-se de um estudo transversal. A amostra foi constituída por 41 mães de crianças diagnosticadas, por equipe multidisciplinar, com TEA que foram divididas em dois grupos: 20 mães de crianças não verbais - GTEA-NV e 21 mães de crianças verbais - GTEA. Para a análise da qualidade de vida das mães, aplicou-se o questionário WHOQOL-Bref. Resultados Não houve diferença significante na percepção materna acerca dos domínios que refletem a qualidade de vida na comparação entre os grupos de mães. Em ambos os grupos, observamos índices elevados de insatisfação. Conclusão Verificamos que a qualidade de vida das mães das crianças com TEA esteve afetada independentemente do meio comunicativo utilizado pela criança.

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Barriers to early identification of autism in Brazil

Cited by 48 publications

References 14 publications

Age at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019

Age at autism spectrum disorder diagnosis: A systematic review and meta-analysis from 2012 to 2019

Prevalence of Autism Spectrum Disorder in Preterm Infants: A Meta-analysis

Interferência do meio comunicativo da criança com transtorno do espectro do autismo na qualidade de vida de suas mães

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