Awareness: A Personal Memoir on the Declining Quality of Life in Alzheimer’s

Goal-oriented cognitive rehabilitation in early-stage dementia: study protocol for a multi-centre single-blind randomised controlled trial (GREAT)

“…CR is also becoming acknowledged internationally; for example, it has recently been authorised for insurance reimbursement in Belgium, and has been conducted with the aid of trained volunteers in Canada. People with dementia have themselves begun to advocate for a rehabilitation approach [79]. The trial will provide the necessary evidence base to extend these developments, if the findings demonstrate that CR is indeed both clinically beneficial and cost-effective.…”

Suffering from dementia – the patient's perspective: a review of the literature

“…"There is nothing left when you lose your mind." The loss of self and self-esteem has an effect on people's personality (Harman and Clare, 2006;MacQuarrie, 2005), their feelings of respect and human dignity (Friedell, 2002;Harris and Sterin, 1999), but also influences meaningful roles in relationships with others (Harris and Sterin, 1999). .…”

“…While for some having dementia brings confusion, shock, sorrow or anxiety (Gillies, 2000;Holst and Hallberg, 2003;Howorth and Saper, 2003;MacQuarrie, 2005;Ostwald et al, 2002;Werezak and Stewart, 2002), others experience strong feelings of discontent like annoyance, anger, distress or frustration Beattie et al, 2004;Cotrell and Schulz, 1993;Gillies, 2000;Gilmour et al, 2003;Harris and Sterin, 1999;Holst and Hallberg, 2003;Howorth and Saper, 2003;MacQuarrie, 2005;Ostwald et al, 2002;Sabat et al, 1999). In a few available studies Dröes et al, 2006;Friedell, 2002;Katsuno, 2005;Smith et al, 2005) people with dementia express that general well-being, cognitive functioning and being able to take part in activities, along with friendships, feelings of belonging or attachment, are important aspects of their quality of life. Many express uncertainty about what the decline involves, how to evaluate changes, and what the future holds: "I wonder if this is moving the thing forward a stage or whether it is one of those one-off things."…”

Subjective experiences of younger people with dementia and their families: implications for UK research, policy and practice

“…[17][18][19][20][21][22][23][24][25][26][27] Three of the remaining 10 studies were 4,31-36 research or service-summary 31 All other studies discussed limitations, but only one of these discussed both limitations to the study, and also that team discussions were used to enhance the rigour of the data analysis. [17][18][19][20][21][22][23][24][25][26][27] Three of the remaining 10 studies were 4,31-36 research or service-summary 31 All other studies discussed limitations, but only one of these discussed both limitations to the study, and also that team discussions were used to enhance the rigour of the data analysis.…”