Avaliação da sobrecarga do cuidador de crianças com paralisia cerebral através da escala Burden Interview

Abstract

OBJETIVOS: avaliar fatores que influenciam na sobrecarga dos cuidadores de crianças com paralisia cerebral. MÉTODOS: foram entrevistados 56 cuidadores de crianças com paralisia cerebral com idade entre um e 15 anos. Para avaliar a sobrecarga dos cuidadores foi utilizada a escala Burden Interview e foram coletados dados sobre nível socioeconômico da família, gravidade do comprometimento motor, diagnóstico topográfico e idade das crianças com paralisia cerebral. Para análise dos dados foram utilizados os testes Mann-Whitney e Kruskal-Wallis. RESULTADOS: um menor nível socioeconômico da família (p=0,03) e uma menor gravidade do comprometimento motor (p=0,05) das crianças com paralisia cerebral foram associados com maior sobrecarga do cuidador. Não houve diferença significativa em relação ao diagnóstico topográfico (p=0,71) e à idade das crianças com paralisia cerebral (p=0,35). CONCLUSÕES: o conhecimento de fatores que influenciam a sobrecarga dos cuidadores de crianças com paralisia cerebral é mais um dado a ser agregado no planejamento de atenção e intervenção a esse público específico.

Sobrecarga e qualidade de vida de cuidadores de criança e adolescentes com câncer em tratamento quimioterápico

“…As to the sociodemographic variables and morbidities that affect timely and significant statistics, different domains of caregiver burden were: poor or very poor support from the partner, having health problems, greater numbers of children, unemployment, low education level, black skin color, and not receiving help to care for the child / adolescent patient. Numerous studies conducted with caregivers of patients with various chronic diseases (6,7,9,12,16) in different countries, and with a variety of instruments that measure the burden, demonstrated similar findings, that is, caregivers often experience similar situations that cause burden.…”

“…Sociodemographic variables and morbidities that showed significant correlations with the total score of the CBS were: partner support poor or very poor, having health problems, increased number of children, being unemployed or a home maker, being illiterate or having incomplete elementary education, to be black, and not receiving help to care for the child / adolescent patient. Other studies conducted with parents of children with chronic diseases such as cerebral palsy and epilepsy also highlighted similar variables as responsible for the increased caregiver burden and for changing the daily activities of parents (6,7) . The main objective of this study was to evaluate caregiver burden experienced by caregivers of children with cancer undergoing chemotherapy treatment and their QOL, and thus to know the variables that affect this burden.…”

“…Most caregivers in this study had a low educational level, and 60% had only completed primary education. A recent study in the northeast regions of Brazil, assessed the caregiver burden of children with cerebral palsy by means of the Burden Interview, and showed a negative and significant correlation between a low educational, social and economic level and the burden experienced by caregivers (6) . Among caregivers, 19.3% reported some health problem and hypertension was the most common disease; 15% were taking medication; and 31.2% required a medical consultation two or more times in the last year.…”

“…(4,5) Although caregivers recognize the importance of participation during treatment, they may exhibit caregiver burden as a consequence of the care provided consistently to children / adolescents, which is still poorly studied and understood. The impact experienced by caregivers of children with other chronic diseases has been investigated, and some studies have related the existence of caregiver burden to the impairment of quality of life (QOL) of caregivers, (6)(7)(8) because the requirements deriving from the care may lead parents to neglect their own health. (9) In our country, there are few studies using validated instruments adapted for assessment of quality of life (QOL) of parents of children / adolescents in cancer treatment, compared with other chronic diseases.…”

“…(9) In our country, there are few studies using validated instruments adapted for assessment of quality of life (QOL) of parents of children / adolescents in cancer treatment, compared with other chronic diseases. (6,7) Based on these data and the necessity to clarify the reality of caregivers of children / adolescents with cancer during chemotherapy treatment, the objective of this study was to evaluate caregiver burden and quality of life (QOL) of caregivers of children / adolescents with cancer during chemotherapy treatment, and relate them to each other and to sociodemographic variables and morbidities.…”