Avaliação da qualidade de vida em pacientes com hanseníase: uso do Medical Outcomes Study 36

Neto, David Lopes; Araújo, Rogério Olmedija de; Meneghini, Mayara Elisa Freire; Tsuzuki, Lucila Midori

doi:10.21722/rbps.v17i1.12454

Cited by 2 publications

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“…En general, entre las profesiones más mencionadas por los entrevistados se encuentran: criadas, compañeros de albañilería y agricultores. Por lo tanto, asociado a varios otros componentes, es difícil cambiar la actividad profesional y la reubicación en el mercado laboral (15,18) .…”

Section: Discussionunclassified

“…El DLQI se compone de 10 preguntas de opción múltiple, divididas en seis campos: trabajo, ocio, relaciones personales, tratamiento, síntomas y sentimientos, que evaluan al individuo desde el punto de vista dermatológico y se pueden utilizar para medir o comparar la calidad de la vida entre diferentes enfermedades de la piel. La puntuación del instrumento varía de 0-30, cuando 0 se atribuye al mejor resultado y 30 al peor, siendo: sin deterioro de la calidad de vida (0-1), con deterioro leve (2-5), moderado (6-10), grave (11)(12)(13)(14)(15)(16)(17)(18)(19)(20) o muy grave (21)(22)(23)(24)(25)(26)(27)(28)(29)(30). El estudio de selección aportará información relevante sobre el estigma de la enfermedad de Hansen, atendiendo a los objetivos de la investigación.…”

Section: Materials Y Métodounclassified

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Qualidade de vida de pessoas com hanseníase atendidas em um hospital de referência, Paraíba-Brasil

Fortunato¹,

Silva²,

Mendes³

et al. 2019

Enf Global

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Objective: Evaluate the degree of impairment of the quality of life of people with Hansen’s disease, according to social demographic and clinical variablesMethod: Descriptive, transversal, quantitative study, involving 45 patients from a reference hospital located in João Pessoa, Paraíba, Brazil. For obtaining data, interviews were performed based on a semi-structured questionnaire, including social demographic and clinic variables of the participants; to evaluate their life quality the instrument Dermatology Life Quality Index, was used, after approval in the Committee of Ethics in Research of the Federal University of Paraíba. In the data analysis, the non-parametric Test of the Chi-square of Pearson was used with level of significance of 5% (p<0,05), being used the Yates correction continuity, when necessary.Results: It is highlighted a prevalence of male, brown, single, aged 18 to 40 individuals, with family income lower than three minimum salaries and low schooling. From this total, 88,9% presented the clinical multibacillary form of the Hansen’s disease and 60% of them, with level of impairment of quality of life varying between moderate and very serious, according to scores of the instrument used.Conclusion: It is reassured the important impact of the Hansen’s disease in the quality of life of their carriers, as indicated by the high scores obtained in the application of the DLQI. Objetivo: Evaluar el grado de deterioro de la calidad de vida de las personas con enfermedad de Hansen, de acuerdo con las variables sociodemográficas y clínicasMétodo: Estudio descriptivo, transversal, cuantitativo, que involucró a 45 pacientes de un hospital de referencia en João Pessoa, Paraíba, Brasil. Para la obtención de datos, las entrevistas se realizaron a partir de un cuestionario semiestructurado que incluyó las variables sociodemográficas y clínicas de los participantes; para evaluar su calidad de vida se utilizó el instrumento Dermatology Life Quality Index, luego de su aprobación en el Comité de Ética en Investigación de la Universidad Federal de Paraíba. En el análisis de los datos, se utilizó la Prueba no paramétrica del Qui-cuadrado de Pearson con un nivel de significación del 5% (p <0,05), usándose la continuidad de corrección de Yates, cuando fue necesario.Resultados: Se destaca la prevalencia de individuos varones, pardos, solteros, de entre 18 y 40 años, con ingresos familiares inferiores a tres salarios mínimos y baja escolaridad. De este total, el 88,9% presentó la forma clínica multibacilar de la enfermedad de Hansen y el 60% de ellos, con un nivel de deterioro de la calidad de vida que varía entre moderado y muy grave, según los puntajes del instrumento utilizado.Conclusión: Se confirma el importante impacto de la enfermedad de Hansen en la calidad de vida de sus portadores, como lo indican los altos puntajes obtenidos en la aplicación del DLQI. Objetivo: Avaliar o grau de comprometimento da qualidade de vida de pessoas com hanseníase, segundo variáveis sociodemográficas e clínicas. Método: Estudo descritivo, transversal, quantitativo, envolvendo 45 pacientes de um hospital de referência, localizado em João Pessoa, Paraíba, Brasil. Para obtenção dos dados, realizou-se entrevistas a partir de questionário semiestruturado, contemplando variáveis sociodemográficas e clínicas dos participantes; para avaliar sua qualidade de vida foi utilizado o instrumento Dermatology Life Quality Index, após aprovação do Comitê de Ética em Pesquisa da Universidade Federal da Paraíba. Na análise dos dados, utilizou-se o Teste não-paramétrico do Qui-quadrado de Pearson com nível de significância de 5% (p<0,05), sendo utilizado a Correção de Continuidade de Yates, quando necessário.Resultados: Evidencia-se uma prevalência dos indivíduos do sexo masculino, pardos, solteiros, com idade entre 18 e 40 anos, com renda familiar inferior a três salários mínimos e baixa escolaridade. Desse total, 88,9% apresentavam a forma clínica multibacilar da hanseníase e 60% deles, com grau de comprometimento da qualidade de vida vaiando de moderado a muito grave, segundo escores do instrumento utilizado.Conclusão: Reafirma-se o importante impacto da hanseníase na qualidade de vida de seus portadores, tal como indicado pelos altos escores obtidos na aplicação do DLQI.

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Section: Discussionunclassified

Section: Materials Y Métodounclassified

Qualidade de vida de pessoas com hanseníase atendidas em um hospital de referência, Paraíba-Brasil

Fortunato¹,

Silva²,

Mendes³

et al. 2019

Enf Global

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“…The findings of this study showed that physical domainwhich mainly covers the assessment of pain and discomfort, dependence on medication or treatment, energy and fatigue, sleep and rest, mobility, daily activities and work capacityoften had lower scores in the QoL assessment in studies with leprosy patients (10,(15)(16)(17)(18)(19)(20)(21)(22)(23)44,(56)(57)(58)(59)(60)(61)(63)(64)(65) . However, it is highlighted that the change in people's lives, based on the symptoms and signs of the disease, the reactions and the development of disabilities, can lead to social isolation, work losses, difficulty in accepting the disease process and self-care; therefore, reaching not only the physical component, but also the emotional, social, and environmental component, as demonstrated in some studies (7,24,(34)(35)(36)(37)(38)(39)(40)(41)(42)(43)45,72) .…”

Section: Main Findingsmentioning

confidence: 84%

“…Other studies, in their turn, show that early diagnosis and treatment (2,5,25,39,47,70,(76)(77) , the multidisciplinary approach to the patient (10,12,15,33,41,59,65,73,(81)(82)86) , the fight against social stigma (15,25,40,63,82,86) , the development of actions aimed at the prevention and appropriate management of disabilities (5)(6)8,28,64,71,85) , health education for patients affected by leprosy (39,54,77) , and adequate follow-up in the post-discharge period (22,38,70) are critical to improve the QoL of these individuals. The study has its limitations because the evidence from observational research identified in the review shall be interpreted taking into account the possible biases inherent to the methodological design, which in itself weakens the analysis of results.…”

Section: Main Findingsmentioning

confidence: 99%

Leprosy patients quality of life: a scoping review

Barcelos

Sousa

Almeida

et al. 2021

Rev. esc. enferm. USP

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Objective: To explore the scientific evidence regarding the leprosy patients quality of life. Method: Scoping review according to the Joanna Briggs Institute methodology, with articles indexed in PubMed, Cochrane, LILACS, Embase, CINAHL, Scopus, Web of Science, PsyINFO, INFOLEP, and Google Scholar databases, published in full in Portuguese, English, or Spanish. Results: Seventy-four studies were identified, with 71 of quantitative approach and 3 with a mixed method. There was a predominance of studies published in Brazil (58.1%), with an adult population, (97.3%) and recruited in reference centers for the treatment of leprosy (52.7%). There was greater use of the WHOQOL-bref (50%) and SF-36 (18.9%) instruments to assess quality of life. The study showed that the greatest impairment in quality of life was related to the delay in the diagnosis of the disease, to leprosy reactions, physical disabilities, neuropathic pain, and stigma. Conclusion: Most studies were developed in endemic countries, with adults, and based on observational studies, and the worst scores obtained were associated with physical domain impairment.

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Avaliação da qualidade de vida em pacientes com hanseníase: uso do Medical Outcomes Study 36

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Cited by 2 publications

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Qualidade de vida de pessoas com hanseníase atendidas em um hospital de referência, Paraíba-Brasil

Qualidade de vida de pessoas com hanseníase atendidas em um hospital de referência, Paraíba-Brasil

Leprosy patients quality of life: a scoping review

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