Autonomy in relation to health among people with intellectual disability: a literature review

Wullink, M. Verboom-Jansen A.J.; Widdershoven, Guy; Valk, Henny van Schrojenstein Lantman-de; Metsemakers, Job; Dinant, Geert Jan

doi:10.1111/j.1365-2788.2009.01196.x

Cited by 45 publications

(35 citation statements)

References 51 publications

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“…Since intellectual disability populations face additional barriers to PA [70,71] and have fewer choices and less control of their health than individuals who do not have intellectual disabilities [72], supporting this group to change PA behaviour may be challenging. For example, a recent weight loss study for adults with intellectual disabilities [73] found that a lack of sufficient support from carers/relatives and poor communication among carers, were identified as being barriers to change.…”

Section: Discussionmentioning

confidence: 99%

Walk well: a randomised controlled trial of a walking intervention for adults with intellectual disabilities: study protocol

et al. 2013

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BackgroundWalking interventions have been shown to have a positive impact on physical activity (PA) levels, health and wellbeing for adult and older adult populations. There has been very little work carried out to explore the effectiveness of walking interventions for adults with intellectual disabilities. This paper will provide details of the Walk Well intervention, designed for adults with intellectual disabilities, and a randomised controlled trial (RCT) to test its effectiveness.Methods/designThis study will adopt a RCT design, with participants allocated to the walking intervention group or a waiting list control group. The intervention consists of three PA consultations (baseline, six weeks and 12 weeks) and an individualised 12 week walking programme.A range of measures will be completed by participants at baseline, post intervention (three months from baseline) and at follow up (three months post intervention and six months from baseline). All outcome measures will be collected by a researcher who will be blinded to the study groups. The primary outcome will be steps walked per day, measured using accelerometers. Secondary outcome measures will include time spent in PA per day (across various intensity levels), time spent in sedentary behaviour per day, quality of life, self-efficacy and anthropometric measures to monitor weight change.DiscussionSince there are currently no published RCTs of walking interventions for adults with intellectual disabilities, this RCT will examine if a walking intervention can successfully increase PA, health and wellbeing of adults with intellectual disabilities.Trial registrationISRCTN: ISRCTN50494254

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Section: Discussionmentioning

confidence: 99%

Walk well: a randomised controlled trial of a walking intervention for adults with intellectual disabilities: study protocol

et al. 2013

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“…There are also a number of ethical challenges in this intervention because people with ID are in need of professional care, but also have the basic right to autonomy and self-determination [41]. This will be dealt with in a separate qualitative study within this project.…”

Section: Discussionmentioning

confidence: 99%

Promoting a healthy diet and physical activity in adults with intellectual disabilities living in community residences: Design and evaluation of a cluster-randomized intervention

et al. 2010

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BackgroundMany adults with intellectual disabilities have poor dietary habits, low physical activity and weight disturbances. This study protocol describes the design and evaluation of a health intervention aiming to improve diet and physical activity in this target group. In Sweden, adults with intellectual disabilities often live in community residences where the staff has insufficient education regarding the special health needs of residents. No published lifestyle interventions have simultaneously targeted both residents and staff.Methods/DesignThe intervention is designed to suit the ordinary work routines of community residences. It is based on social cognitive theory and takes 12-15 months to complete. The intervention includes three components: 1) Ten health education sessions for residents in their homes; 2) the appointment of a health ambassador among the staff in each residence and formation of a network; and 3) a study circle for staff in each residence. The intervention is implemented by consultation with managers, training of health educators, and coaching of health ambassadors. Fidelity is assessed based on the participation of residents and staff in the intervention activities. The study design is a cluster-randomised trial with physical activity as primary outcome objectively assessed by pedometry. Secondary outcomes are dietary quality assessed by digital photography, measured weight, height and waist circumference, and quality of life assessed by a quality of life scale. Intermediate outcomes are changes in work routines in the residences assessed by a questionnaire to managers. Adults with mild to moderate intellectual disabilities living in community residences in Stockholm County are eligible for inclusion. Multilevel analysis is used to evaluate effects on primary and secondary outcomes. The impact of the intervention on work routines in community residences is analysed by ordinal regression analysis. Barriers and facilitators of implementation are identified in an explorative qualitative study through observations and semi-structured interviews.DiscussionDespite several challenges it is our hope that the results from this intervention will lead to new and improved health promotion programs to the benefit of the target group.Trial registration numberISRCTN33749876

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“…Normaliseringsprincipen (Nirje, 1969; är en betydande utgångspunkt för delaktighetsideologin och den moderna funktionshinderspolitiken, i både Sverige och övriga västvärlden (Kjellberg, 2002;Wullink et al, 2009). I denna princip specificeras rätten till till åldersadekvata erfarenheter i förhållande till att vara barn, ungdom, vuxen och äldre.…”

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Delaktig (även) på äldre dar : Åldrande och delaktighet bland personer med intellektuell funktionsnedsättning som bor i gruppbostad

Kåhlin¹

2015

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Autonomy in relation to health among people with intellectual disability: a literature review

Abstract: In spite of decades of promoting autonomy, the exercise of autonomy in relation to health has so far rarely been an issue in the literature.

Cited by 45 publications

References 51 publications

Walk well: a randomised controlled trial of a walking intervention for adults with intellectual disabilities: study protocol

Walk well: a randomised controlled trial of a walking intervention for adults with intellectual disabilities: study protocol

Promoting a healthy diet and physical activity in adults with intellectual disabilities living in community residences: Design and evaluation of a cluster-randomized intervention

Delaktig (även) på äldre dar : Åldrande och delaktighet bland personer med intellektuell funktionsnedsättning som bor i gruppbostad

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