Attitudes toward prenatal diagnosis and termination of pregnancy for genetic disorders among healthcare workers in a selected setting in Sri Lanka

Silva, Deepthi C. de; Jayawardana, Pushpa; Hapangama, A.; Suraweera, E. G. D. N.; Ranjani, D.; Fernando, S.; Karunasena, C.; Jinadasa, S.

doi:10.1002/pd.2021

Cited by 9 publications

(11 citation statements)

References 17 publications

(32 reference statements)

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“…Carrier detection and prenatal genetic testing with associated counselling are crucial components of family planning for PWH . While many Asia‐Pacific countries struggle with suboptimal factor concentrate consumption, the facility for genetic diagnosis is available or can be more easily developed in many countries However, attitudes towards genetic testing are strongly influenced by cultural and religious beliefs . In India, where arranged marriages are common, some families are unwilling to determine carrier status for fear that carriers will be stigmatized socially .…”

Section: Principle 12: Recognition Of Socio‐economic and Cultural DIVmentioning

confidence: 99%

“…In India, where arranged marriages are common, some families are unwilling to determine carrier status for fear that carriers will be stigmatized socially . While the majority of PWH and their families in Sri Lanka accept prenatal diagnosis, only 38% were willing to terminate pregnancy due to religious reasons. These are very sensitive and personal issues, which need to be handled with great care.…”

Section: Principle 12: Recognition Of Socio‐economic and Cultural DIVmentioning

confidence: 99%

“…76 While many Asia-Pacific countries struggle with suboptimal factor concentrate consumption, the facility for genetic diagnosis is available or can be more easily developed in many countries 77,78 However, attitudes towards genetic testing are strongly influenced by cultural and religious beliefs. 79 In India, where arranged marriages are common, some families are unwilling to determine carrier status for fear that carriers will be stigmatized socially. 80 While the majority of PWH and their families in Sri Lanka accept prenatal diagnosis, only 38% were willing to terminate pregnancy 79 due to religious reasons.…”

Section: Cultural and Religious Attitudes And Impact On Haemophiliamentioning

confidence: 99%

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Principles of haemophilia care: The Asia‐Pacific perspective

et al. 2018

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Optimal haemophilia care is best established and implemented through a well-coordinated plan guided by clearly defined principles and priorities. A document which enunciates those details is therefore important. A successful example of this approach is the definition of principles of haemophilia care (PHC) outlined by the European Association for Haemophilia and Associated Disorders (EAHAD) and also the World Federation of Hemophilia. A similar document applicable to the Asia-Pacific region must take into account not only the highly varied healthcare systems but also the tremendous socio-economic and cultural diversities which impact provision of such care. The Asia-Pacific Haemophilia Working Group (APHWG), representing the countries in this region, has prepared this perspective of the PHC. While endorsing the overall framework outlined by EAHAD, this APHWG document emphasizes regional priorities on education and training of healthcare personnel in the diagnosis and management of hereditary bleeding disorders. Central coordinating agencies with wide stakeholder input, networks of haemophilia treatment centres and national registries as well as robust processes for procurement and distribution of safe and effective clotting factor concentrates (CFCs), implementation of prophylaxis programmes and management of patients with inhibitors should also be developed. The implementation of these strategies should lead to establishment of good comprehensive care programmes. This document should also be an advocacy tool to lobby for improved care for people with haemophilia (PWH) in the region. We urge national healthcare policy makers to consider these principles and initiate strong and decisive action to reach these goals.

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Section: Principle 12: Recognition Of Socio‐economic and Cultural DIVmentioning

confidence: 99%

Section: Principle 12: Recognition Of Socio‐economic and Cultural DIVmentioning

confidence: 99%

Section: Cultural and Religious Attitudes And Impact On Haemophiliamentioning

confidence: 99%

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Principles of haemophilia care: The Asia‐Pacific perspective

et al. 2018

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“…Prior to that moment the embryo has sanctity, but not reaching that of a full human being. 9 Fatwa (an Islamic edict) 4 of the Islamic Jurisprudence Council of the World Islamic League (Organization of Islamic Countries) at its 12th session (15)(16)(17)(18)(19)(20)(21)(22) Rajab 1410H/10-17 February, 1990 CE) in Makkah Al-Mukarama agreed by a majority vote to allow for the option of abortion under certain specific conditions. The fatwa determined that an abortion may take place only if a committee of specialized, competent physicians has decided that the fetus is grossly malformed and that its life would be a calamity for both the family and itself.…”

Section: Introductionmentioning

confidence: 99%

“…7,8,[14][15][16][17] The attitude of health care professionals toward PND and TOP has been studied in some countries such as Sri Lanka and Japan. 5,18 However, there is currently a gap in the literature regarding the attitude toward PND and TOP among health care professionals in Saudi Arabia. Jeddah is a cosmopolitan city and the commercial capital of Saudi Arabia.…”

Section: Introductionmentioning

confidence: 99%

Attitude toward Prenatal Testing and Termination of Pregnancy among Health Professionals and Medical Students in Saudi Arabia

et al. 2017

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This study was aimed at assessing the attitude of health care professionals in Jeddah city toward prenatal diagnosis (PND) and termination of pregnancy (TOP). A cross-sectional study was conducted, and the participants completed a self-administered questionnaire. Approximately 82% of participants showed a consistent trend of accepting PND when appropriate, and 47.5% of the respondents were in favor of TOP if the fetus had a severe disease. Compared with men (69.3%), a significantly greater number of women (88%) accepted to have PND. The most acceptable prenatal diagnostic tests in the study were invasive techniques as most of the participants thought that noninvasive tests were nonspecific.

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Late abortion. Attitudes amongst young physicians in Romania

Hostiuc

Buda

Hostiuc

2013

Arch Gynecol Obstet

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Our study reveals that the main reasons for conducting therapeutic abortion (TA) in the 2nd or 3rd trimester are: (1) if the mother is put in immediate risk by the continuation of the pregnancy and (2) if the congenital anomaly is extremely severe. Even though the number of respondents considering Down syndrome to be a congenital malformation severe enough to allow TA, the value much lower compared with other low and middle income countries. The main reasons for refusing TA in the 2nd or 3rd trimester are the presence of a minor congenital anomaly or if it is against the moral principles of the physician.

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Attitudes toward prenatal diagnosis and termination of pregnancy for genetic disorders among healthcare workers in a selected setting in Sri Lanka

Cited by 9 publications

References 17 publications

Principles of haemophilia care: The Asia‐Pacific perspective

Principles of haemophilia care: The Asia‐Pacific perspective

Attitude toward Prenatal Testing and Termination of Pregnancy among Health Professionals and Medical Students in Saudi Arabia

Late abortion. Attitudes amongst young physicians in Romania

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