Attitudes of healthcare staff in the treatment of children and adolescents with intellectual disability: A brief report

Ong, Natalie; McCleod, Evelyn; Nicholls, Laura; Fairbairn, Natalie; Tomsic, Gail; Lord, Bruce; Eapen, Valsamma

doi:10.3109/13668250.2016.1236368

Cited by 22 publications

(16 citation statements)

References 11 publications

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“…Similarly, their parents spoke of feeling nervous and apprehensive, with fears exacerbated if they felt unprepared for treatment. Healthcare staff may not receive appropriate training for working with children with intellectual disabilities (Ong et al, ), potentially escalating challenges. Scott, Wharton, and Hames () UK research into the hospital experiences of 14 young people with intellectual disabilities highlighted limited communication between themselves and staff, staff dealing directly with parents and not them, feelings of fear and uncertainty, alongside boring waiting rooms and ward environments.…”

Section: Introductionmentioning

confidence: 99%

Specialist hospital treatment and care as reported by children with intellectual disabilities and a cleft lip and/or palate, their parents and healthcare professionals

Bates

Forrester‐Jones

McCarthy

2019

Research Intellect Disabil

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Background Research into hospital treatment and care of children with intellectual disabilities is extremely limited, but available literature points to difficulties. Some children have a co‐occurring condition alongside an intellectual disability which requires ongoing treatment, such as a cleft lip/palate. To date, their experiences remain untapped. Method Semi‐structured interviews with 23 participants; five children with intellectual disabilities (aged 11–16), their parents (n = 9) and nine healthcare professionals working in cleft care. Thematic analysis determined patterns across the data. Results Three key themes were found: struggles (stress and distress, and power imbalance), tensions (perceived levels of choice and control in decision making, lack of training around intellectual disability assumptions and jargon) and good practice (appropriate communication and information, and tailored treatment). Conclusion Good practice was evident, but was ad hoc. Individualized treatment and communication based upon children's needs are required as is further investigation into general anaesthetic induction for children with intellectual disabilities.

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Section: Introductionmentioning

confidence: 99%

Specialist hospital treatment and care as reported by children with intellectual disabilities and a cleft lip and/or palate, their parents and healthcare professionals

Bates

Forrester‐Jones

McCarthy

2019

Research Intellect Disabil

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“…Despite the higher health‐care needs of people with developmental disabilities (DDs), they continue to experience significant barriers in accessing and receiving optimal health care, leading to poorer health outcomes 1–4 . There is a need for improved professional development for health‐care staff in terms of their knowledge and attitudes about health‐care provision and how best to communicate with children with DD 2 .…”

Section: Figurementioning

confidence: 99%

Motivation for change in the health care of children with developmental disabilities: Pilot continuing professional development‐quality improvement project

Ong

Goff

Eapen

et al. 2020

J Paediatrics Child Health

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Aim People with developmental disabilities (DDs) experience significant barriers accessing and receiving optimal health care resulting in poorer health‐care outcomes. Continuing professional development (CPD) represents an effective means to alter health‐care staff behaviour to improve the care of people with DDs. However, given the scepticism regarding the effectiveness of certain CPD models' ability to alter learner's workplace behaviour, the current pilot study developed and determined the feasibility of a novel CPD programme aimed at improving the health care provided to children with DDs. Methods Motivation for Change (MFC) is a novel CPD programme based on empirically based behaviour and educational strategies including motivational interviewing, flipped classroom and process mapping. It utilises input of patients, practitioners, and family members during administration of the programme. MFC was administered with 14 staff members in a Sydney Children's Hospital Sleep service. Results After MFC engagement, staff reported significant improvements in their knowledge of behavioural characteristics of children with DDs, the difficulties they face, how best to support them within the learner's work setting and confidence in working with children with DDs. There was a non‐significant decline in their reported need for further training and expressed high level of satisfaction with the MFC programme. Conclusion MFC represents a feasible means of providing CPD to health‐care staff but further research is needed to determine objective clinical behavioural change. Evaluation of the impact on patient health outcomes, parent/child satisfaction, staff sustainability and overall system functioning is also needed. It may represent an effective model of CPD for other targets of health‐care improvement.

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“…The inclusion of knowledge variables is important because they relate to the formulation of an accurate diagnosis of the mental illness being studied. Having an accurate diagnosis increases the health professionals' con dence in communicating and discussing the disorder with either the patient or his or her parents [31][32][33][34].…”

Section: Independent Variablesmentioning

confidence: 99%

Communication patterns in the doctor–patient relationship: evaluating determinants associated with low paternalism in Mexico.

Lazcano-Ponce

Ángeles-Llerenas

Rodríguez-Valentín

et al. 2020

Preprint

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Abstract Background: Paternalism/overprotection limits communication between healthcare professionals and patients and does not promote shared therapeutic decision-making. In the global north, communication patterns have been regulated to promote autonomy, whereas in the global south, they reflect the physician’s personal choices. The goal of this work was contribute to knowledge of the communication patterns used in clinical practice in Mexico and to identify the determinants that favour a doctor-patient relationship characterized by low paternalism/autonomism. Methods: A self-report study of communication patterns within a sample of 761 mental healthcare professionals in Central and Western Mexico was conducted. Multiple ordinal logistic regression models were performed to analyse paternalism and associated factors. Results: A high prevalence (68.7% [95% CI 60.0-70.5]) of paternalism was observed among mental healthcare professionals in Mexico. The main determinants of low paternalism/autonomism were medical specialty (OR 1.67 [95% CI 1.16-2.40]) and gender, with female physicians more likely to explicitly share diagnoses and therapeutic strategies with patients and their families (OR 1.57 [95% CI 1.11-2.22]). A pattern of highly explicit communication was strongly associated with low paternalism/autonomism (OR 12.13 [95% CI 7.71-19.05]). Finally, a modifying effect of age strata on the association between communication pattern or specialty and low paternalism/autonomism was observed. Conclusions: Among mental healthcare professionals in Mexico, an elevated paternalism prevailed. Gender, specialty, and a pattern of open communication were closely associated with low paternalism/autonomism. Strengthening the competencies of health professionals and promoting explicit communication could contribute to the transition towards more autonomist communication in clinical practice in Mexico. The ethical implications will need to be resolved in the near future.

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Attitudes of healthcare staff in the treatment of children and adolescents with intellectual disability: A brief report

Cited by 22 publications

References 11 publications

Specialist hospital treatment and care as reported by children with intellectual disabilities and a cleft lip and/or palate, their parents and healthcare professionals

Specialist hospital treatment and care as reported by children with intellectual disabilities and a cleft lip and/or palate, their parents and healthcare professionals

Motivation for change in the health care of children with developmental disabilities: Pilot continuing professional development‐quality improvement project

Communication patterns in the doctor–patient relationship: evaluating determinants associated with low paternalism in Mexico.

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