Association between incongruence about survivor function and outcomes among stroke survivors and family caregivers

McCarthy, Michael J.; Bakas, Tamilyn; Schellinger, Jeffrey N.; Stapleton, Katie; Kissela, Brett M.

doi:10.1080/10749357.2018.1503458

Cited by 8 publications

(10 citation statements)

References 25 publications

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“…Research is increasingly focusing on the relational aspects of recovery after stroke including the extent to which dyad members are congruent (or incongruent) in their appraisal of symptoms, how they communicate about their experiences and needs, and how they engage together in behaviors that promote physical and emotional health (Lyons & Lee, 2018; McCarthy et al, 2018; McCarthy & Lyons, 2015; Pucciarelli et al, 2017; Ramazanu et al, 2020). Relationship functioning itself has been strongly linked to depressive symptoms in both members of the dyad, with survivors and caregivers who report a strong relationship with their partner reporting fewer depressive symptoms (Epstein-Lubow et al, 2009; King et al, 2001; King et al, 2010; McCarthy et al, 2012; McPherson et al, 2011).…”

mentioning

confidence: 99%

Feasibility of the Hand in Hand Relationship Intervention for Stroke Survivor–Caregiver Dyads: A Randomized Trial

McCarthy

Sanchez

Garcia

et al. 2020

Research on Social Work Practice

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Purpose: A strong interpersonal relationship after stroke is important for the prevention of depression in survivors and family caregivers. This study aimed to test the feasibility of quality of relationship intervention for stroke dyads called Hand in Hand (HiH). Methods: Sixteen dyads were randomized into either the HiH group ( n = 8) or information, support, and referral (ISR) control group ( n = 8). HiH dyads received up to eight sessions, with topics prioritized according to a 17-item screening tool. ISR dyads received up to eight sessions that included information, active listening, and referrals. Feasibility, acceptability, and outcomes data were collected for both groups. Results: The HiH and ISR groups were feasible and acceptable. Caregivers in both groups, as well as survivors in the ISR group, experienced improvements in depressive symptoms and other select outcomes. Conclusions: Findings suggest that HiH is feasible to implement with stroke dyads and that it merits further refinement and testing.

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confidence: 99%

Feasibility of the Hand in Hand Relationship Intervention for Stroke Survivor–Caregiver Dyads: A Randomized Trial

McCarthy

Sanchez

Garcia

et al. 2020

Research on Social Work Practice

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“…First, an increasing number of researchers are starting to pay attention to caregivers’ health related to the burden of their profession (Majestic & Eddington, 2019). Moreover, caregivers’ influence on patients’ outcomes has been gradually explored (Kootker et al, 2019; McCarthy, Bakas, Schellinger, Stapleton, & Kissela, 2019). Lastly, inventions for caregivers or patient–caregiver dyads have been attempted in recent years (Marcotte, Tremblay, Turcotte, & Michaud, 2019; Mosher et al., 2018).…”

Section: Discussionmentioning

confidence: 99%

Research trends and hotspots in caregiver studies: A bibliometric and scientometric analysis of nursing journals

Dong

Wei

Wang

et al. 2020

Journal of Advanced Nursing

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Aims: To explore the intellectual landscape of care-giving studies and identify research trends and hotspots in this field. Design: A bibliometric and scientometric analysis of care-giving literature was undertaken from January-February 2020. Methods: CiteSpace was used to analyse research published between 1900-2019. A references-based co-citation analysis was used to identify the intellectual landscape of care-giving research. A keywords-based co-occurrence analysis with citation bursts was used to explore research hotspots and frontiers. Lastly, a co-authorship network analysis was used to identify cooperation among authors, countries, and institutions. Results: There has been an increasing trend in the number of publications on caregiving research with light fluctuations. Relevant literature mainly focused on the fields of oncology and psychiatry. The keywords-based analysis indicated that the main research targets had previously been informal caregivers of patients with stroke, Alzheimer's disease, and schizophrenia. In recent years, focus has shifted onto informal caregivers of patients with cancer, heart failure, and those at end-of-life. Conclusion: This bibliometric and scientometric analysis helps us understand the current state of caregiver research and its recent developments. Impact: • Caregivers' mental health and care experience have become research hotspots. Where and on whom will the research have an impact?: • This research allows the development of future research on care-giving. • Future researchers should explore effective interventions for the health of patient-caregiver dyads.

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“…Previous studies of stroke couples have already focused on the incongruence between stroke survivors' and spouse' appraisal of the illness, especially in survivors' memory and thinking function (McCarthy, Bakas, Schellinger, Stapleton, & Kissela, 2018; McCarthy & Lyons, 2015; Witty, Heffernan, & Riby, 2017). Qualitative research shows that spouses tend to overestimate the severity of the patient's illness, thereby overprotective patients away from some activity, which may cause the survivors feel be belittled (McCarthy & Lyons, 2015).…”

Section: Introductionmentioning

confidence: 99%

“…Qualitative research shows that spouses tend to overestimate the severity of the patient's illness, thereby overprotective patients away from some activity, which may cause the survivors feel be belittled (McCarthy & Lyons, 2015). It is examined that such incongruence between stroke couples is associated with the poor mental health of spouses (McCarthy et al, 2018). Nevertheless, how incongruence of dyadic appraisal works on dyadic mental health is unknown.…”

Section: Introductionmentioning

confidence: 99%

Dyadic appraisals, dyadic coping, and mental health among couples coping with stroke: A longitudinal study protocol

Zhang

Mei

et al. 2020

Journal of Advanced Nursing

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Stroke is one of the major causes of disability in adult worldwide (Feigin et al., 2015). Half of the survivors were unable to perform past work after stroke and nearly two-thirds faced long-term disability (Tanaka, Toyonaga, & Hashimoto, 2014). After the onset of stroke, most survivors have long-term cognitive, physical dysfunction, prone to anxiety and depression, and other psychological problems (Crichton, Bray, McKevitt, Rudd, & Wolfe, 2016). The caregivers also experience poor mental health because of the heavy burden for caring (Hu, Yang, Kong, Hu, & Zeng, 2018; Pucciarelli et al., 2017). A meta-analysis showed that the incidence of depression and anxiety in stroke caregivers was 40.2% and 21.4%, respectively (Loh, Tan, Zhang, & Ho, 2017). Both the stroke survivors (SS) and their spouses caregivers have prominent psychosocial problems (Bucki, Spitz,

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Association between incongruence about survivor function and outcomes among stroke survivors and family caregivers

Cited by 8 publications

References 25 publications

Feasibility of the Hand in Hand Relationship Intervention for Stroke Survivor–Caregiver Dyads: A Randomized Trial

Feasibility of the Hand in Hand Relationship Intervention for Stroke Survivor–Caregiver Dyads: A Randomized Trial

Research trends and hotspots in caregiver studies: A bibliometric and scientometric analysis of nursing journals

Dyadic appraisals, dyadic coping, and mental health among couples coping with stroke: A longitudinal study protocol

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