Association between Family Caregivers' Satisfaction with Care for Terminal Cancer Patients and Quality of Life of the Bereaved Family: A Prospective Pre- and Postloss Study

Morishita-Kawahara, Miki; Tsumura, Akemi; Aiki, Sayo; Sei, Yoshie; Iwamoto, Yumiko; Matsui, Haruki; Kawahara, Takuya

doi:10.1089/jpm.2021.0043

Cited by 7 publications

(3 citation statements)

References 32 publications

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“…Also, caregiver satisfaction with care had a significant impact on bereaved caregivers’ complicated grief, depression, and quality of life. 8,9 Although factors related to improving EOL care satisfaction for patients with cancer has been widely investigated, few studies have focused upon caregivers’ satisfaction with EOL care. Since caregiver satisfaction is one of the crucial quality indicators of high-quality care and satisfaction can aid in the caregivers’ grief process after the patient has died, 10,11 understanding caregiver satisfaction with EOL care is vital.…”

Section: End-of-life Care and Caregiver Satisfactionmentioning

confidence: 99%

Aggressive End-of-Life Care and Caregiver Satisfaction for Patients With Advanced Cancer

Park,

Douglas,

Boveington-Molter

et al. 2023

West J Nurs Res

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Aggressive end-of-life care in patients with advanced cancer is associated with poor experiences and outcomes. The purpose of the study was to examine the impact of aggressive end-of-life care on caregiver satisfaction for caregivers of bereaved advanced cancer patients. Data of 101 caregivers were gathered using a longitudinal, descriptive correlational design study. Postdeath interviews were conducted 2 months after the patient’s death. The most common end-of-life care indicators were patient not enrolled in hospice or enrolled within 3 days of death, >1 hospitalization, and intensive care unit admission. More than one-third of patients received at least one of the aggressive end-of-life care indicators in the last 30 days of life. From the multiple linear regression analyses, patient intensive care unit admission and having more than one hospitalization significantly affected caregiver satisfaction with care. Understanding caregiver satisfaction with care may improve the clinical practice of nurses who have crucial role in patients’ end-of-life care.

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Section: End-of-life Care and Caregiver Satisfactionmentioning

confidence: 99%

Aggressive End-of-Life Care and Caregiver Satisfaction for Patients With Advanced Cancer

Park,

Douglas,

Boveington-Molter

et al. 2023

West J Nurs Res

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“…These caregivers may be deriving a sense of satisfaction from their caregiving experience and the loss of this role may lead to a loss of purpose for them. However, most studies are limited to examining caregivers’ grief and psychological distress after the death of the older adult [ 34 , 37 , 38 ]; overall quality of life and spiritual well-being, have been less examined [ 39 , 40 ]. None have examined the relationship between trajectories of negative and positive experiences of caregiving and caregivers’ outcomes after the death of the older adult.…”

Section: Introductionmentioning

confidence: 99%

Trajectories of negative and positive experiences of caregiving for older adults with severe dementia: application of group-based multi-trajectory modelling

Malhotra,

Chaudhry,

Shah

et al. 2024

BMC Geriatr

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Background Family caregivers of older adults with severe dementia have negative and positive experiences over the course of caregiving. We aimed to delineate joint trajectories (patterns over time) for negative and positive experiences, identify risk factors associated with membership of joint trajectories, and ascertain the association between joint trajectories and caregivers’ outcomes after the death of the older adult. Methods Two hundred fifteen family caregivers of older adults with severe dementia in Singapore were surveyed every 4 months for 2 years, and 6 months after the death of the older adult. Using group-based multi trajectory modelling, we delineated joint trajectories for positive (Gain in Alzheimer Care Instrument) and negative (sub-scales of modified Caregiver Reaction Assessment) experiences of caregiving. Results We identified four joint trajectories – “very high positive, low negative” (23% of caregivers), “high positive, moderate negative” (28%), “very high positive, moderate negative” (28%), and “high positive, high negative” (21%). Caregivers of older adults with more behavioural symptoms, and who did not receive strong emotional support from family were more likely to have “high positive, moderate negative” or “very high positive, moderate negative” trajectory. Compared to caregivers with “very high positive, low negative” trajectory, caregivers with “very high positive, moderate negative” or “high positive, high negative” trajectories expressed greater grief and distress, with the latter also having lower spiritual well-being and quality of life at 6 months after the death of the older adult. Conclusion The caregiving experiences for older adults with severe dementia vary between caregivers but remain stable over time. Modifiable risk factors identified for trajectories involving negative experiences of caregiving may be targeted in future interventions to improve the experience of caregiving and caregiver quality of life and distress after the death of the older adult. Trial registration http://www.clinicaltrials.gov (NCT03382223).

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“… 6 , 7 Inadequate EoLC can cause patients and their families experience grief, dissatisfaction, and a lower quality of life (QoL). 8 , 9 As a result, it is critical to explore the experiences and views of healthcare workers, especially nursing students who are the future nursing workforce, regarding EoLC in order to identify gaps and areas for improvement. The nursing students need to be well-prepared and trained to provide high-quality EoLC to their patients and their families.…”

Section: Introductionmentioning

confidence: 99%

A Qualitative Study of Perception and Experience Toward End-of-Life Care Among Nursing Students Who Witnessed Dying People in Their Family

Haroen¹,

Mirwanti²,

Agustina³

et al. 2023

JMDH

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Introduction This study aims to explore nursing students’ perception and experience of end-of-life care (EoLC) in Indonesia, particularly in the family environment. Methods This study used a qualitative research design to explore the experiences and perceptions of nursing students who have witnessed the dying of their family members. The study recruited 15 nursing students using a purposive sampling method, who were then invited to reflect and write their experiences in witnessing death of their families, and perceptions towards EoLC. The written reflections were analyzed using thematic analysis. Results Thematic analysis showed that the experience of witnessing dying of a family member shaped nursing students’ perceptions and attitudes towards EoLC. Some themes that emerged in this study included the importance of effective communication with patients and their families, symptom management, spiritual, emotional, and social support, as well as the need to improve nursing education and training. Conclusion This present study shows that the experience of witnessing the death of a family member shapes nursing students’ perceptions of EoLC in Indonesia. This present study provides recommendations that the students must be prepared emotionally and psychologically in caring EoL or dying patients. How attitude and readiness to care EoL patients are shaped by the experience in witnessing the dying family or loved one. As such, palliative and EoL curriculum should be included methods that allow desensitization and naturalization of dying for the students in order to make them ready to provide better EoLC for patients and their families. The results of this study can contribute to improving the quality of EoLC in Indonesia.

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Association between Family Caregivers' Satisfaction with Care for Terminal Cancer Patients and Quality of Life of the Bereaved Family: A Prospective Pre- and Postloss Study

Cited by 7 publications

References 32 publications

Aggressive End-of-Life Care and Caregiver Satisfaction for Patients With Advanced Cancer

Aggressive End-of-Life Care and Caregiver Satisfaction for Patients With Advanced Cancer

Trajectories of negative and positive experiences of caregiving for older adults with severe dementia: application of group-based multi-trajectory modelling

A Qualitative Study of Perception and Experience Toward End-of-Life Care Among Nursing Students Who Witnessed Dying People in Their Family

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