Assessment of the quality of life of Egyptian and Tunisian autoimmune bullous diseases’ patients using an Arabic version of the autoimmune bullous disease quality of life and the treatment of autoimmune bullous disease quality of life questionnaires

Abstract

Assessment of the quality of life of Egyptian and Tunisian autoimmune bullous diseases' patients using an Arabic version of the autoimmune bullous disease quality of life and the treatment of autoimmune bullous disease quality of life questionnaires *

Autoimmune Bullous Disease Quality of Life (ABQoL) questionnaire: Validation of the translated Persian version in pemphigus vulgaris

“…Other causes of such a discrepancy could be the cultural and educational status of the target populations. The test–retest reliability in our version of the ABQoL questionnaire was also close to that of other versions previously published ( Kalinska-Bienias et al, 2017 , Patsatsi et al, 2017 , Saleh et al, 2019 , Sebaratnam et al, 2013 , Sebaratnam et al, 2015 , Yang et al, 2017 ) and indicated consistency in results under similar conditions during further evaluations of quality of life.…”

“…In this study, we carried out validity and reliability tests for the ABQoL questionnaire in an Iranian patient cohort with a blistering autoimmune disease, namely PV. The mean total score (29.37 of 51) was higher than that of the original Australian, North American, Chinese, and Egyptian/Tunisian patient cohorts ( Saleh et al, 2019 , Sebaratnam et al, 2013 , Sebaratnam et al, 2015 , Yang et al, 2017 ). This difference is partly due to disease activity status.…”

“…The internal consistency of the Persian version was higher than the original questionnaire in Australia and further validations in the Chinese and Egyptian/Tunisian cohorts ( Saleh et al, 2019 , Sebaratnam et al, 2013 , Yang et al, 2017 ). Patient population may explain this superiority based on the data acquired.…”

“…The original version is a 17-item, self-reported, English language questionnaire with a moderate correlation to DLQI and Short Form 36 in convergent validity and is more sensitive than the DLQI in discriminant validity. Since its development in an Australian patient cohort, the reliability and internal consistency of the ABQoL index have also been confirmed in North American, Greek, Polish, Chinese, and Egyptian/Tunisian populations to date ( Kalinska-Bienias et al, 2017 , Patsatsi et al, 2017 , Saleh et al, 2019 , Sebaratnam et al, 2015 , Yang et al, 2017 ). The ABQoL has recently been shown to be a useful tool in clinical trials for patients with PV and mucosal involvement ( Krain et al, 2019 ).…”

Patient Quality of Life Improvement in Bullous Disease: A Review of Primary Literature and Considerations for the Clinician

“…ABQOL questions focus on pain, itching, healing, depression, and anxiety while the TABQOL questions focus on the number of medications, financial burdens, fatigue, focus, and fears surrounding relapse. 58 The ABQOL and TABQOL assessments have been validated in various languages including English, 3,59,60 Chinese, 61,62 Arabic, 58 Farsi (ABQOL only), 63 Greek, 3 and Polish. 64 Both have a numeric score between 0-51.…”