Abstract:Aim:
Palliative Care Outcome Scale (POS) is one of the various tools, available for the evaluation of the effectiveness of palliative services, having 10item multidimensional questionnaire, designed to assess the physical, psychosocial, spiritual, and practical aspects of patients with various sufferings. In this study, we had assessed psychosocial distress among the patients of a palliative care clinic of a rural teaching hospital at Wardha district.
Methods:
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“…Our aim is to increase awareness and understanding of health care providers and the general population through the introduction of palliative care in the educational curriculum in both the medical and dental fields [18][19][20][21] Key results: In proposed cross sectional study having patients of palliative care various sociodemographic variables such as education, occupation, age, socioeconomic status, marital status, various addictions etc will be analysed after the final statistical analysis we will determine-Opinion, belief and severity of various variables of the participants.…”
Background: The assessment of the good health and well-being of palliative care patients is summarised in this protocol analysis. It will bring about the financial and physical wellbeing of patients. The standard of life of patients and their families has been reviewed.
Methods: It is a cross-sectional analysis involving selected villages in the Wardha district. A sample of 95 participants will be taken from Wardha Palliative Care. Patients will be randomly allocated to the survey by the Jawaharlal Nehru Medical College of Wardha District Department of Community Medicine. A pre-designed multidimensional survey questionnaire will be prepared and pre-tested for quantitative data collection . The pro forma used to gather the data will include their current disease and disease management and will integrate the psychosocial and moral elements of hospital care. The motive of this research is to understand the interpretation of palliative care in the lives of affected patients. The goal of this study is to know the conception of a compromised patient living.
Results: Using descriptive and inferential statistics using the chi-square test, the result will be obtained by attributing the baseline and terminal consequences.
Conclusion: The purpose of this research is to define the predictive, mediating and moderating functions of select variables: self-efficacy, disease, psychosocial, spiritual caregiver. The findings of this study will influence the interpretation of the resilience of patients with palliative care and will enhance functional outcomes for emotional, mental and spiritual health. This change in attitude would be beneficial to them in their lives. And the patient's quality of life will improve.
“…Our aim is to increase awareness and understanding of health care providers and the general population through the introduction of palliative care in the educational curriculum in both the medical and dental fields [18][19][20][21] Key results: In proposed cross sectional study having patients of palliative care various sociodemographic variables such as education, occupation, age, socioeconomic status, marital status, various addictions etc will be analysed after the final statistical analysis we will determine-Opinion, belief and severity of various variables of the participants.…”
Background: The assessment of the good health and well-being of palliative care patients is summarised in this protocol analysis. It will bring about the financial and physical wellbeing of patients. The standard of life of patients and their families has been reviewed.
Methods: It is a cross-sectional analysis involving selected villages in the Wardha district. A sample of 95 participants will be taken from Wardha Palliative Care. Patients will be randomly allocated to the survey by the Jawaharlal Nehru Medical College of Wardha District Department of Community Medicine. A pre-designed multidimensional survey questionnaire will be prepared and pre-tested for quantitative data collection . The pro forma used to gather the data will include their current disease and disease management and will integrate the psychosocial and moral elements of hospital care. The motive of this research is to understand the interpretation of palliative care in the lives of affected patients. The goal of this study is to know the conception of a compromised patient living.
Results: Using descriptive and inferential statistics using the chi-square test, the result will be obtained by attributing the baseline and terminal consequences.
Conclusion: The purpose of this research is to define the predictive, mediating and moderating functions of select variables: self-efficacy, disease, psychosocial, spiritual caregiver. The findings of this study will influence the interpretation of the resilience of patients with palliative care and will enhance functional outcomes for emotional, mental and spiritual health. This change in attitude would be beneficial to them in their lives. And the patient's quality of life will improve.
“…The most common concerns reported by Hindi speaking patients receiving palliative care services were pain, dyspnea, restlessness, bowel obstruction, depression, anxiety, stress, poor quality of life, changes in sleep, appetite, energy, spiritual/religious concerns, family emotional issues, social security, and financial needs. [26][27][28][29][30][31][32][33][34][35][36][37][38][39][40][41] A brief review of available tools and literature suggested that concerns raised in the IPOS were holistic and covered all concepts confirming face and content validity.…”
Background: Culturally relevant patient-centered outcomes tools are needed to identify the needs of patients and to assess their palliative care concerns. Aim: To translate and culturally adapt the Integrated Palliative Care Outcome Scale (IPOS) into Hindi. Design: The study applied a standardized methodology entailing six phases for translation and content validation: equivalence setting through a three-step process; forward translation; blind backward translation; expert review by a panel of the POS team; cognitive de-briefing with patients; and proof-reading of the final tool. All interviews and focus groups were audio-recorded, transcribed and analyzed using content analysis. Setting/participants: (1) Healthcare professionals including doctors, nurses, psychologists, counselors, and volunteers working in Indian palliative care settings with expertise in both English and Hindi languages; (2) Hindi speaking patients diagnosed with cancer who were receiving palliative care in community settings. Caregivers, palliative care experts, and language translators contributed to the translation procedure. Results: Phrases like nausea, poor appetite, drowsiness, and depression were difficult to translate into Hindi. Response categories “occasional” and “sometimes” were overlapping. All items, instructions and response categories were simple to understand. A visual thermometer is a unique feature of Hindi IPOS to facilitate responses from less educated patients. Conclusion: Hindi IPOS has face and content validity for use in clinical practice and research. The Hindi IPOS has implications beyond Indian palliative care settings. Millions of Hindi speakers can now respond to IPOS, and have a tool for communicating their palliative care needs in their mother tongue to inform patient-centered care.
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