Assessment of Nutritional Problems in Pediatric Patients with Cancer and the Information Needs of Their Parents: A Parental Perspective

Arpaci, Tuba; Törüner, Ebru Kılıçarslan; Altay, Naime

doi:10.4103/apjon.apjon_78_17

Cited by 29 publications

(30 citation statements)

References 26 publications

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“…Hasil penelitian menunjukkan bahwa makanan yang bergizi baik sebelum, selama, dan setelah pengobatan kanker memiliki keuntungan bagi penderita kanker, di antaranya dapat meningkatkan kualitas hidup, menjaga tetap sehat, membantu dalam mengurangi efek samping pengobatan kanker, menunjang keberhasilan terapi, serta meningkatkan sistem imun tubuh. 3,4 Informasi mengenai kebutuhan nutrisi serta pengalaman orang tua berperan penting dalam menunjang nutrisi anak. Dengan pemahaman orang tua dan informasi yang memadai tentang nutrisi yang baik, perawatan anak dengan kanker akan lebih berkualitas.…”

Section: Pendahuluanunclassified

“…Dengan pemahaman orang tua dan informasi yang memadai tentang nutrisi yang baik, perawatan anak dengan kanker akan lebih berkualitas. 4 Seiring dengan perkembangan teknologi, informasi yang didapatkan oleh para orang tua tentunya bervariasi. Informasi tersebut perlu dikaji lebih mendalam, sehingga para orang tua tidak menerima informasi yang kurang tepat.…”

Section: Pendahuluanunclassified

“…Hasil berbagai penelitian menunjukkan bahwa makan makanan yang bergizi pada sebelum, selama, dan setelah pengobatan kanker dapat memberikan dampak positif bagi penderita kanker. 3,4 Saran dan edukasi tentang pola makan bagi anak kanker berbeda-beda baik dari dokter maupun dari ahli gizi. Begitu pula dengan semakin berkembangnya teknologi sehingga para orang tua dapat mengakses informasi dari berbagai sumber, misalnya dari internet, dari pendapat kolega dan teman mereka, serta dari tradisi dan budaya mereka.…”

Section: Bahasanunclassified

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Pemahaman Orang Tua terhadap Pola Makan Anak Penderita Kanker di RSUP Prof Dr. R. D. Kandou Manado

Rompies¹,

Tatara²,

Gunawan³

2020

MSJ

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Information about nutrition and parents’ experience are very important in supporting the nutrition of children with cancer. This study was aimed to obtain the parents’ understanding about nutrition of children with cancer. We used modified structured questionnaire about diet and sanitation which were already validation testing. The results showed that there were 38 complete questionnaires consisted of acute lymphoblastic leukemia (ALL) in 14 children (36.8%), followed by acute myeloid leukemia (AML) in 8 children, and retinoblastoma in 7 children. The majority of parents were housewives (84%) meanwhile senior high school educated was the most common education (57.8% of mothers and 52.6% of fathers)). All parents changed the diet style of their children after diagnosed as cancer. Most parents (78.9%) answered that food could cause cancer, and (94.7%) avoided certain foods; (78.9%) chose junk food as avoided food; and during treatment, (89.4%) gave special foods which were high protein, fruits, vegetables, and milk. Most parents (94.7%) answered that children with cancer had to avoid street foods, and (94.7%) chose mineral water as a safe drink. In conclusion, education of medical workers about nutrition of children with cancer is needed to achieve agreement in optimal nutrition.Keywords: nutrition of children with cancer Abstrak: Informasi mengenai kebutuhan nutrisi dan pengalaman orang tua berperan penting dalam menunjang nutrisi anak dengan kanker. Penelitian ini bertujuan untuk mengetahui pemahaman orang tua tentang nutrisi yang optimal bagi anak dengan kanker. Pada penelitian ini digunakan kuesioner terstruktur tentang diet dan kebersihan yang dimodifikasi, teruji dengan validitas isi. Hasil penelitian mendapatkan 38 kuesioner yang diisi lengkap, dengan diagnosis terbanyak acute lymphoblastic leukemia (ALL) pada 14 anak (36,8%), diikuti acute myeloid leuke-mia (AML) 8 anak, dan retinoblastoma 7 anak. Mayoritas orang tua memiliki pekerjaan ibu rumah tangga (84%) dan pendidikan terakhir yang terbanyak ialah SMA (ibu 57,8% dan ayah 52,6%). Semua orang tua merubah pola makan anak mereka setelah terdiagnosis kanker. Sebagian besar orang tua (78,9%) menjawab makanan dapat menyebabkan kanker dan (94,7%) menghindari makanan tertentu; (78,9%) memilih junk food sebagai makanan yang harus dihindari; dan (89,4%) memberikan makanan khusus selama pengobatan mengandung tinggi protein, buah, sayur, dan susu. Sebagian besar orang tua (94,7%) menjawab anak penderita kanker tidak boleh makan makanan di pinggir jalan, dan (94,7%) memilih air mineral sebagai minuman yang aman untuk diminum. Simpulan penelitian ialah perlu dilakukan edukasi dan penyuluhan oleh tenaga medis tentang nutrisi untuk anak kanker agar terdapat kesepahaman dalam pemberian nutrisi yang optimal.Kata kunci: nutrisi anak dengan kanker

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Section: Pendahuluanunclassified

Section: Bahasanunclassified

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Pemahaman Orang Tua terhadap Pola Makan Anak Penderita Kanker di RSUP Prof Dr. R. D. Kandou Manado

Rompies¹,

Tatara²,

Gunawan³

2020

MSJ

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“…In relation to nutritional problems in cancer, previous descriptive research conducted with children and their parents ( n = 69) has highlighted that parents as well as children need comprehensive and regular information [ 59 ]. Indeed, information on both diet and nutrition have been reported as an unmet among AYA patients with cancer [ 12 ].…”

Section: Cancer-associated Weight Loss: Impact On Patients and Their mentioning

confidence: 99%

Communicating with Adolescents and Young Adults about Cancer-Associated Weight Loss

2019

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Purpose of Review Over the past two decades, advances have been made in understanding the pathophysiology of cancer-associated weight loss, termed “cachexia.” To date, there is no proven effective intervention to completely reverse cachexia and there are no approved drug therapies to treat it. This paper will review relevant literature in relation to communicating with adolescents and young adults about cancer-associated weight loss. Recent Findings Adolescents and young adults (AYAs) who have cancer are a unique group of patients due to their stage of development and maturity. Summary This article outlines issues specific to this patient cohort that need to be considered to better understand the impact of cachexia and explore pertinent matters when communicating with AYAs in relation to cachexia.

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“…Одна из наиболее распространенных проблем -нарушение питания во время проведения специфической терапии. Более чем у 85% детей с ЗНО во время лечения основного заболевания развиваются проблемы, связанные с нарушением поступления или усвоения пищи [2]. Недостаток питательных веществ приводит к развитию белково-энергетической недостаточности (БЭН), которая проявляется дефицитом массы тела и/или роста и сопровождается комплексом нарушений гомеостаза и органной недостаточностью [3].…”

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Nutrition features of young children with oncological diseases in the process of antitumor treatment

Vashura

Alymova

2019

Med. sov.

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Carrying out antitumor treatment of children with oncological diseases is often accompanied by many complications, one of the most significant eating disorders. These disorders can aggravate the existing problems, complicate the patient’s treatment and often dictate the need for special nutritional support. First of all, it is based on the limitations associated with the requirements for low microbial density of food (due to sharply reduced immunity), gastrointestinal disorders of varying severity and prevalence, peculiarities of taste and appetite of the child (which are almost always violated in the process of antitumor therapy), as well as psychological problems. In children of early age, this situation is very significant, since complications (especially gastrointestinal complications) can last for a long time, which may limit the development of the child, even if the basic treatment is successfully completed, or even prevent him or her from developing at all. Therefore, such patients need special nutritional support: enteral and often parenteral nutrition, as well as a special approach to diet, which is often based on industrial baby food products.

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Assessment of Nutritional Problems in Pediatric Patients with Cancer and the Information Needs of Their Parents: A Parental Perspective

Cited by 29 publications

References 26 publications

Pemahaman Orang Tua terhadap Pola Makan Anak Penderita Kanker di RSUP Prof Dr. R. D. Kandou Manado

Pemahaman Orang Tua terhadap Pola Makan Anak Penderita Kanker di RSUP Prof Dr. R. D. Kandou Manado

Communicating with Adolescents and Young Adults about Cancer-Associated Weight Loss

Nutrition features of young children with oncological diseases in the process of antitumor treatment

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