Assessment of health-related quality of life among parents of children with solid tumors in Serbia

Ilić, Vesna; Nikitović, Marina; Marić, Gorica; Jovanović, Aleksa; Paripovic, Lejla; Bokun, Jelena; Stanić, Dragana; Popovic-Vukovic, Marija; Tepavčević, Darija Kisić; Pekmezović, Tatjana

doi:10.1007/s00520-020-05348-6

Cited by 4 publications

(3 citation statements)

References 18 publications

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“…The first four domains (PF, RP, BP and GH) constitute the physical health and the other four domains (VT, SF, RE and MH) constitute the MH ( Milic et al, 2020 ). The SF36 is widely used in health research and is validated and tested for reliability by several studies in Serbia ( Ilic et al, 2020 ; Stojanov et al, 2019 ; Ware & Sherbourne, 1992 ).…”

Section: Methodsmentioning

confidence: 99%

Quality of sleep and health-related quality of life among health care professionals treating patients with coronavirus disease-19

Stojanov¹,

Malobabić

Stanojević

et al. 2020

Int J Soc Psychiatry

123

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Background: Health care professionals exposed to coronavirus disease 2019 (COVID-19) are facing high levels of stress. Aim: The aim was to evaluate the quality of sleep (QoS) and health-related quality of life (HRQoL), among health care professionals treating patients with COVID-19, as well as quantifying the magnitude of symptoms of depression and levels of anxiety. Methods: We included 201 health care professionals in a cross-sectional, web-based study by applying 7-item Generalized Anxiety Disorder (GAD-7) Scale, Zung Self-rating Depression Scale, 36-item Health Survey of the Medical Outcomes Study Short Form (SF36), Pittsburgh Sleep Quality Index (PSQI) and additional survey constructed for the purpose of the study. Results: Health care workers who treated COVID-19 patients were more afraid of becoming infected or of transmitting the infection to a family member with a significantly low self-assessment of their mental status. Poor QoS and HRQoL correlated with high health anxiety and severe depressive symptoms and several demographic characteristics. Multiple linear regression analysis showed that higher scores on GAD-7 (beta = .71, p < .01) and lower scores on mental health (MH) subscale on SF36 questionnaire (beta = –.69; p < .01) were independent predictors of the higher PSQI score (adjusted R2 = .61, p < .01 for overall model). Higher scores on GAD-7 (beta = .68, p < .01) and worse self-perceived mental status (beta = .25; p < .05) were independent predictors of the lower SF36 scores (adjusted R2 = .73, p < .01 for overall model). Conclusion: The major MH burden of health care professionals treating infected patients during the COVID-19 pandemic indicates that they need psychological support.

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Section: Methodsmentioning

confidence: 99%

Quality of sleep and health-related quality of life among health care professionals treating patients with coronavirus disease-19

Stojanov¹,

Malobabić

Stanojević

et al. 2020

Int J Soc Psychiatry

123

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“…Having a child with cancer dramatically changes the psychological health of these mothers due to fear, anxiety, uncertainty of the future, and the social and financial changes imposed by the treatment from diagnosis to final outcome. [14][15][16][17] The use of psychosocial intervention measures has been shown to favor meeting the demands of the caregiver of the child with cancer, showing significant improvements in the group of mothers who had this type of support. 18 In the sociodemographic data and quality of life category, the relationship of the sociodemographic factors with the quality of life of mothers of children with cancer was described in four studies, punctuating situations of unemployment, larger number of children, family disorganization, and scarcity of financial resources as impediments to the access to minimum requirements and important to human dignity, translating into low scores of quality of life.…”

Section: Discussionmentioning

confidence: 99%

Quality of life of mothers of children with cancer: an integrative review / Qualidade de vida das mães de criança com câncer: revisão integrativa

Vieira

Santo

Santos

et al. 2022

RPCF

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Objetivo: analisar as evidências científicas da literatura sobre qualidade de vida das mães de criança com câncer. Método: revisão Integrativa da literatura, realizada nas bases de dados LILACS, Medical Subject Headings e CINAHL, nos idiomas inglês, português e espanhol, com utilização dos descritores controlados em português: “qualidade de vida”, “câncer”, “família” e “enfermagem” e suas versões em inglês e espanhol no recorte temporal de 2010 a 2020, Resultados: foram selecionados 12 estudos completos para análise interpretativa que permitiu a identificação de cinco: categorias: domínios afetados; dados sócios demográficos e qualidade de vida; espiritualidade e pensamento positivo; readaptando o modo de viver; papel da equipe de saúde. Conclusão: os estudos com a temática qualidade de vida das mães de crianças com câncer tiveram a preocupação em mostrar que ter um filho com diagnóstico de câncer altera significativamente a qualidade de vidas das mães, em diferentes aspectos: cognitivo, emocional, afetivo e social.

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“…A cross-sectional study of Chinese parents of children with leukemia found that as many as 77% of mothers and 42% of fathers had depressive symptoms [ 7 ]. Although the negative effects of parents’ depressive symptoms on the quality of life (QoL) and well-being of both the parents and their children with cancer are widely acknowledged [ 8 , 9 ], little attention has been devoted to the prevention and alleviation of depressive symptoms in Chinese parents of children with cancer.…”

Section: Introductionmentioning

confidence: 99%

Effectiveness of a Mobile Device–Based Resilience Training Program in Reducing Depressive Symptoms and Enhancing Resilience and Quality of Life in Parents of Children With Cancer: Randomized Controlled Trial

Luo¹,

Xia²,

Cheung³

et al. 2021

J Med Internet Res

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Background Caring for children with cancer can be a stressful experience for parents and may have negative effects on their physical and psychological well-being. Although evidence has shown that resilience is associated with positive psychological well-being, few interventions have been specifically designed to enhance the resilience of parents of children with cancer. Objective The aim of this study is to examine the effectiveness of a mobile device–based resilience training program in reducing depressive symptoms and enhancing resilience and quality of life (QoL) in parents of children with cancer. Methods Parents of children diagnosed with cancer were recruited from the pediatric oncology wards of 3 tertiary hospitals in China. The participants were randomly assigned to either the experimental group (52/103, 50.5%) to undergo an 8-week mobile device–based resilience training program or to the control group (51/103, 49.5%) to receive an 8-week program of placebo information. The study outcomes included resilience, depressive symptoms, and QoL, as measured by the Connor–Davidson Resilience Scale, the Self-Rating Depression Scale, and the Short Form of the 6-Dimension Health Survey, respectively. All data were collected at baseline and at 2 and 6 months of follow-up. The data analysis followed the intention-to-treat principle. A generalized estimating equation was used to examine the effects of the intervention. Results The participants were mostly female (72/103, 69.9%), and their mean age was 33.6 (SD 5.2) years. The participants in the experimental group showed significantly higher levels of resilience (mean 67.96, SD 15.8 vs mean 58.27, SD 19.0; P<.001) and lower levels of depressive symptoms (mean 40.17, SD 9.9 vs mean 46.04, SD 10.9; P<.001) than those in the control group at 6 months of follow-up. The intervention showed statistically significant effects in improving resilience (β=6.082; P=.01) and decreasing depressive symptoms (β=−2.772; P=.04) relative to the control group. The QoL score in the experimental group was higher than that in the control group at 6 months of follow-up (mean 0.79, SD 0.2 vs mean 0.76, SD 0.3; P=.07); however, no statistically significant intervention effect was detected (β=.020; P=.38). Conclusions The mobile device–based resilience training program effectively enhanced resilience and alleviated depressive symptoms in parents of children with cancer. It is highly recommended that health care professionals incorporate this resilience training program when providing psychological care to parents of children with cancer. Trial Registration Clinical.Trials.gov NCT04038242; http://clinicaltrials.gov/ct2/show/NCT04038242

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Assessment of health-related quality of life among parents of children with solid tumors in Serbia

Cited by 4 publications

References 18 publications

Quality of sleep and health-related quality of life among health care professionals treating patients with coronavirus disease-19

Quality of sleep and health-related quality of life among health care professionals treating patients with coronavirus disease-19

Quality of life of mothers of children with cancer: an integrative review / Qualidade de vida das mães de criança com câncer: revisão integrativa

Effectiveness of a Mobile Device–Based Resilience Training Program in Reducing Depressive Symptoms and Enhancing Resilience and Quality of Life in Parents of Children With Cancer: Randomized Controlled Trial

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