Assessment of family needs in children with physical disabilities: development of a family needs inventory

Abstract

Based on responses of parents and healthcare professionals the FNI-PR has been developed, a comprehensive inventory for family needs that can be used in paediatric rehabilitation. An inventory checked by parents resulted in more family needs than a single open-ended question. The inventory may facilitate the implementation of family-centred care.

Parents' perceptions of the services provided to children with cerebral palsy in the transition from preschool rehabilitation to school‐based services

“…Individual and repeated assessment of service needs could help in this process (Alsem et al . ). Improving parental guidance in the transition to primary school and the therapists involved in the new situation could help in improving FCS.…”

“…informational, practical and emotional) the needs of parents of children with physical disabilities (Alsem et al . ).…”

What do parents need to enhance participation of their school‐aged child with a physical disability? A cross‐sectional study in the Netherlands

“…To improve FCS in paediatric rehabilitation, an overview and more knowledge about families' needs is warranted (Alsem et al . ).…”

A Systematic Search and Technical Review of Online Information Pertaining to Medical Care for Patients with Disability

“…Thus, the information available online has the potential to guide disability-related clinical decisions and interactions. Despite the obvious easy access to medical and health care information, there is little knowledge about the quality and availability of disability-related health information that will meet the variety and depth of needs of patients with disability and their families (Alsem et al, 2014). …”

“…Thus, it might be challenging for all population groups to find information related to caring for patients with disability using popular search engines. Viewers may be left to rely on a small portion of information on which to base clinical interactions, decisions, and expectations.Additionally, the information these groups do find to meet their varying information needs (Alsem et al, 2014) may then be of low technical quality. …”